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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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Social Environment and Biomarkers of Aging Study in Taiwan Resource Report Resource Website |
Social Environment and Biomarkers of Aging Study in Taiwan (RRID:SCR_003704) | SEBAS | data or information resource, data set | Data sets of information regarding the health and well-being of older persons in Taiwan (from 2000 and 2006), in particular the relationship between life challenges and mental and physical health, the impact of social environment on the health and well-being of the elderly, and biological markers of health and stress. The study collected self-reports of physical, psychological, and social well-being, plus extensive clinical data based on medical examinations and laboratory analyses. Examination of health outcomes included chronic illnesses, functional status, psychological well-being, and cognitive function. Questions regarding life challenges focused on perceived stress, economic difficulties, security and safety, and the consequences of a major earthquake. Biological markers were used to identify cardiovascular risk factors, metabolic process measures, immune-system activity, the hypothalamic-pituitary adrenal axis, and sympathetic nervous system activity. The study design consists of face-to-face interviews with participants drawn from a random sub-sample of participants from 27 PSUs from the 1999 Survey of Health and Living Status of the Middle Aged and Elderly in Taiwan. Hospital visits and blood and urine specimens also were collected. A second wave of SEBAS was conducted in 2006 using a similar protocol to SEBAS 2000, but with the addition of performance assessments conducted by the interviewers at the end of the home interview. * Dates of Study: -2000, 2006 * Study Features: Longitudinal, International, Anthropometric Measures * Sample Size: 27 PSUs | late adult human, middle adult human, longitudinal, international, anthropometric measure, health, well-being, taiwan, biomarker, cognitive functioning, diet, disease, health behavior, health status, illness, leisure, life event, life satisfaction, medical evaluation, medical history, medication, mental health, physical condition, physical limitation, psychological well-being, social environment, stress, urinalysis, clinical, interview, metabolic process, immune-system, hypothalamic-pituitary adrenal, sympathetic nervous system, blood, urine |
is listed by: National Archive of Computerized Data on Aging (NACDA) is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Georgetown University; Washington D.C.; USA |
Aging, Cardiovascular disease | Taiwan Department of Health ; Bureau of Health Promotion National Health Research Institute Taiwan ; Taiwan Provincial Government ; NIA R01 AG16790; NIA R01 AG16661 |
Public, Data Use Agreement | nlx_157859 | http://www.icpsr.umich.edu/icpsrweb/NACDA/studies/03792/version/5 http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/03792 |
http://cph.georgetown.edu/Taiwan/taiwan.htm | SCR_003704 | Social Environment and Biomarkers of Aging Study (SEBAS) in Taiwan, SEBAS in Taiwan | 2026-02-17 10:00:17 | 0 | |||
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National Longitudinal Survey of Older Men Resource Report Resource Website 1+ mentions |
National Longitudinal Survey of Older Men (RRID:SCR_008947) | NLS Older Men, | data or information resource, data set | A dataset that permits examination of health, economic, work, and retirement trajectories for a representative national sample of men from middle to old age. The original sample of 5,020 men, first interviewed in 1966, was re-interviewed periodically until 1983 under a contract with the US Department of Labor. The study provided a detailed longitudinal record of their labor market activity, health, financial status, family structure, and attitudes toward and experience in retirement. The NIA grant made possible a re-interview in 1990 with the surviving men and the widows (or other next-of-kin) of the decedents. The merging of the 1990 data includes death certificate information for the decedents, Blacks were over-represented in the original sample in a ratio of about three or four to one, resulting in about 500 surviving black men in the sample. Information on labor market activity, income, and assets also is available for a sample of about 1,350 widows, 90 percent of whom are between 60 and 89 years of age. This information can be linked to earlier data on the women''s health and work activity that was reported by their late husbands. Due to the original sample selection, other NLS cohorts contain wives and daughters of the older men. These other surveys also hold a wealth of detailed information on aging and retirement issues, especially on income transfers. * Dates of Study: 1966-1990 * Study Features: Longitudinal, Minority Oversamples * Sample Size: ** 1966: 5,020 men (baseline) ** 1990: 2,092 surviving men, 1,341 widows, 865 other next-of-kin Links: * BLS Website on NLS: http://www.bls.gov/nls/ * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/04675 | middle adult human, late adult human, labor, longitudinal, minority, retirement, compensation, education, educational program, employment, employment discrimination, earned degree, finance, asset, health, health care, health problem, higher education, health insurance, industry, job description, job tenure, job training, leisure, military service, occupation, pension, psychological well-being, retirement planning, unemployment, union membership, vocational education, volunteer, work attitude, working hour, male, man, interview, questionnaire, financial status, family structure, death certificate, african-american, death, widow, daughter, female, income transfer, survey, labor market, discrimination, training, alcohol use, cigarette use, demographic, family |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Ohio State University; Ohio; USA |
Aging | NIA ; U.S. Department of Labor |
Publicly available to the research community | nlx_151863 | SCR_008947 | National Longitudinal Survey: 1990 Resurvey of Older Males, National Longitudinal Survey: 1990 Resurvey of Older Males (NLS-Older Males), NLS-Older Males, National Longitudinal Surveys of Older Men | 2026-02-17 10:01:11 | 3 | |||||
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Panel Study of Income Dynamics Resource Report Resource Website 10+ mentions |
Panel Study of Income Dynamics (RRID:SCR_008976) | PSID | data or information resource, data set | Long-term longitudinal dataset with information on generational links and socioeconomic and health conditions of individuals over time. The central foci of the data are economic and demographic, with substantial detail on income sources and amounts, wealth, savings, employment, pensions, family composition changes, childbirth and marriage histories, and residential location. Over the life of the PSID, the NIA has funded supplements on wealth, health, parental health and long term care, housing, and the financial impact of illness, thus also making it possible to model retirement and residential mobility. Starting in 1999, much greater detail on specific health conditions and health care expenses is included for respondent and spouse. Other enhancements have included a question series about emotional distress (2001); the two stem questions from the Composite International Diagnostic Interview to assess symptoms of major depression (2003); a supplement on philanthropic giving and volunteering (2001-03); a question series on Internet and computer use (2003); linkage to the National Death Index with cause of death information for more than 4,000 individuals through the 1997 wave, updated for each subsequent wave; social and family history variables and GIS-linked environmental data; basic data on pension plans; event history calendar methodology to facilitate recall of employment spells (2001). The reporting unit is the family: single person living alone or sharing a household with other non-relatives; group of people related by blood, marriage, or adoption; unmarried couple living together in what appears to be a fairly permanent arrangement. Interviews were conducted annually from 1968 through 1997; biennial interviewing began in 1999. There is an oversample of Blacks (30%). Waves 1990 through 1995 included a 20% Hispanic oversample; within the Hispanic oversample, Cubans and Puerto Ricans were oversampled relative to Mexicans. All data from 1994 through 2001 are available as public release files; prior waves can be obtained in archive versions. The special files with weights for families are also available. Restricted files include the Geocode Match File with information for 1968 through 2001, the 1968-2001 Death File, and the 1991 Medicare Claims File. * Dates of Study: 1968-2003 * Study Features: Longitudinal, Minority Oversampling * Sample Size: 65,000+ Links * ICPSR Series: http://www.icpsr.umich.edu/icpsrweb/ICPSR/series/00131 * ICPSR 1968-1999: Annual Core Data: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/07439 * ICPSR 1968-1999: Supplemental Files: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/03202 * ICPSR 1989-1990: Latino Sample: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/03203 | longitudinal, minority, employment, income, wealth, expenditure, health, marriage, childbearing, child development, philanthropy, education, family income, attitude, economic behavior, economic change, economic condition, employment history, family, family history, fertility, food aid, household expenditure, household income, housing, population trend, poverty, social change, social indicator, socioeconomic status, african-american, survey, interview, questionnaire, census data, latino, economic status, demographic, intergeneration, individual, health condition, economic, income source, income amount, pension, family composition, childbirth, marriage history, residential location, emotional distress, hispanic, cuban, puerto rican, mexican |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: University of Michigan; Ann Arbor; USA |
Aging | NIA ; U.S. Department of Health and Human Services ; APSE ; United States Department of Agriculture ; NICHD ; NSF |
Public, Acknowledgement requested | nlx_152067 | SCR_008976 | Panel Study of Income Dynamics - PSID, PSID - A national survey of socioeconomics and health over lifetimes and across generations, Panel Study of Income Dynamics (PSID) | 2026-02-17 10:01:20 | 17 | |||||
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New Immigrant Survey Resource Report Resource Website 1+ mentions |
New Immigrant Survey (RRID:SCR_008973) | NIS | data or information resource, data set | Public use data set on new legal immigrants to the U.S. that can address scientific and policy questions about migration behavior and the impacts of migration. A survey pilot project, the NIS-P, was carried out in 1996 to inform the fielding and design of the full NIS. Baseline interviews were ultimately conducted with 1,127 adult immigrants. Sample members were interviewed at baseline, 6 months, and 12 months, with half of the sample also interviewed at three months. The first full cohort, NIS-2003, is based on a nationally representative sample of the electronic administrative records compiled for new immigrants by the US government. NIS-2003 sampled immigrants in the period May-November 2003. The geographic sampling design takes advantage of the natural clustering of immigrants. It includes all top 85 Metropolitan Statistical Areas (MSAs) and all top 38 counties, plus a random sample of other MSAs and counties. Interviews were conducted in respondents'' preferred languages. The baseline was multi-modal: 60% of adult interviews were administered by telephone; 40% were in-person. The baseline round was in the field from June 2003 to June 2004, and includes in the Adult Sample 8,573 respondents, 4,336 spouses, and 1,072 children aged 8-12. A follow-up was planned for 2007. Several modules of the NIS were designed to replicate sections of the continuing surveys of the US population that provide a natural comparison group. Questionnaire topics include Health (self-reports of conditions, symptoms, functional status, smoking and drinking history) and use/source/costs of health care services, depression, pain; background; (2) Background: Childhood history and living conditions, education, migration history, marital history, military history, fertility history, language skills, employment history in the US and foreign countries, social networks, religion; Family: Rosters of all children; for each, demographic attributes, education, current work status, migration, marital status and children; for some, summary indicators of childhood and current health, language ability; Economic: Sources and amounts of income, including wages, pensions, and government subsidies; type, value of assets and debts, financial assistance given/received to/from respondent from/to relatives, friends, employer, type of housing and ownership of consumable durables. * Dates of Study: 2003-2007 * Study Features: Longitudinal * Sample Size: 13,981 | longitudinal, immigrant, migration, behavior, adult human, spouse, child, questionnaire, health, family, economic, self-report, smoking, drinking, health care service, depression, pain, background, childhood history, living condition, education, migration history, marital history, military history, fertility history, language skill, employment history, social network, religion, education, work status, income, wage, pension, government subsidy, asset, debt, financial assistance, interview | has parent organization: Princeton University; New Jersey; USA | Aging | NIA ; NICHD ; Office of Behavioral and Social Sciences Research ; NSF ; US Citizenship and Immigration Services ; ASPE ; Pew Charitable Trusts |
Public: Users must complete a short registration process the first time they access the data. | nlx_152061 | SCR_008973 | 2026-02-17 10:01:28 | 2 | ||||||
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National Survey of Midlife Development in the United States Resource Report Resource Website 10+ mentions |
National Survey of Midlife Development in the United States (RRID:SCR_008972) | MIDUS | data or information resource, data set | Data set from a collaborative, interdisciplinary investigation of patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. Respondents were asked to provide extensive information on their physical and mental health throughout their adult lives, and to assess the ways in which their lifestyles, including relationships and work-related demands, contributed to the conditions experienced. An additional series of questions focusing on childhood queried respondents regarding the presence/absence of their parents, religion, rules/punishments, love/affection, physical/verbal abuse, and the quality of their relationships with their parents and siblings. Respondents were drawn from a nationally representative random-digit-dial sample of non-institutionalized, English-speaking adults, aged 25-74, selected from working telephone banks in the coterminous United States. Those queried participated in an initial telephone interview and responded to a mail questionnaire. MIDUS 2 carried forward MIDUS 1 and enlisted a new sample of African Americans. MIDUS2 also expanded the focus by incorporating detailed neurophysiological assessments on a large subsample in three geographic regions. Data collection largely repeats T1 assessments (45 minute phone interview, 100 page self-administered questionnaire) plus additions in select areas (e.g., cognitive functioning, optimism and coping, life events, caregiving). In addition, MIDUS 2 is using diary techniques to assess daily stressors in a subsample of respondents; conducting cognitive testing through telephone interviews; collecting biological data on a subsample of respondents, including baseline biomarkers as well as laboratory challenge studies, with assessments of salivary cortisol, blood pressure, and heart rate variability; and collecting EEG measures to focus on the central circuitry of emotion, related to affect and depression. Siblings and Twins: Similar data were collected from a survey of 951 siblings of a respondent in the main survey. MIDUS also contains twins data, from a separate national survey unrelated to the main MIDUS survey. From this separate national survey, a total of 1,996 twins agreed to participate. The Twins respondents were given the same assessments as the Main and Siblings samples. Additionally, the Twins sample was asked a series of questions about their birth, shared physical characteristics, childhood and adult relationships with their twin, whether they were dressed alike as children, and whether others experienced difficulty identifying them correctly. Data and comprehensive documentation for MIDUS 1 and 2 are available via ICPSR. * Dates of Study: 1995-2008 * Study Features: Longitudinal, Minority Oversampling, Anthropometric Measures * Sample Size: ** 1995-6: 4,242 (MIDUS 1) ** 2004-6: 7,108 (MIDUS 2) Links: * ICPSR ����?? MIDUS 1: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/02760 * ICPSR ����?? MIDUS 2: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/04652 | adult, middle adult human, longitudinal, minority, anthropometric measure, midlife development, physical health, psychological well-being, social responsibility, sibling, twin, family relationship, family, health status, life satisfaction, lifestyle, mental health, midlife, social indicator, work attitude, behavior, psychology, social, late adult human, interview, cognitive functioning, optimism, coping, stressful life event, caregiving, questionnaire, african american, relationship, psychological factor, personality trait, positive affect, negative affect, sense of control, goal commitment, neurophysiological assessment |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: National Archive of Computerized Data on Aging (NACDA) has parent organization: Harvard Medical School; Massachusetts; USA has parent organization: University of Wisconsin-Madison; Wisconsin; USA |
Aging | MacArthur Foundation ; NIA |
Public | nlx_152055 | http://midmac.med.harvard.edu/ | SCR_008972 | Midlife Development in the U.S. | 2026-02-17 10:01:20 | 25 | ||||
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National Survey of the Japanese Elderly Resource Report Resource Website |
National Survey of the Japanese Elderly (RRID:SCR_008971) | NSJE | data or information resource, data set | A panel data set for use in cross-cultural analyses of aging, health, and well-being between the U.S. and Japan. The questionnaires were designed to be partially comparable to many surveys of the aged, including Americans'' Changing Lives; 1984 National Health Interview Survey Supplement on Aging; Health and Retirement Study (HRS), and Well-Being Among the Aged: Personal Control and Self-Esteem (WBA). NSJE questionnaire topics include: * Demographics (age, sex, marital status, education, employment) * Social Integration (interpersonal contacts, social supports) * Health Limitations on daily life and activities * Health Conditions * Health Status (ratings of present health) * Level of physical activity * Subjective Well-Being and Mental Health Status (life satisfaction, morale), * Psychological Indicators (life events, locus of control, self-esteem) * Financial situation (financial status) * Memory (measures of cognitive functioning) * Interviewer observations (assessments of respondents) The NSJE was based on a national sample of 2,200 noninstitutionalized elderly aged 60+ in Japan. This cohort has been interviewed once every 3 years since 1987. To ensure that the data are representative of the 60+ population, the samples in 1990 and 1996 were refreshed to add individuals aged 60-62. In 1999, a new cohort of Japanese adults aged 70+ was added to the surviving members of previous cohorts to form a database of 3,990 respondents 63+, of which some 3,000 were 70+. Currently a 6-wave longitudinal database (1987, 1990, 1993, 1996, 1999, & 2002) is in place; wave 7 began in 2006. Data Availability: Data from the first three waves of the National Survey of the Japanese Elderly are currently in the public domain and can be obtained from ICPSR. Additional data are being prepared for future public release. * Dates of Study: 1987-2006 * Study Features: Longitudinal, International * Sample Size: ** 1987: 2,200 ** 1990: 2,780 ** 1993: 2,780 ** 1996: ** 1999: 3,990 ** 2002: ** 2006: Links: * 1987 (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06842 * 1990 (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/03407 * 1993 (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/04145 * 1996 (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/26621 | longitudinal, international, japan, demographic, health status, mental health, late adult human, psychological wellbeing, social integration, survey, age, sex, marital status, education, employment, interpersonal contact, social support, health, physical activity, life satisfaction, morale, financial status, memory, cognitive functioning, interview, questionnaire |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: National Archive of Computerized Data on Aging (NACDA) has parent organization: University of Michigan; Ann Arbor; USA |
Aging, Noninstitutionalized, Late adult human | Japanese Ministry of Health Labor and Welfare ; Longevity Foundation ; NIA AG06643-08 |
Public | nlx_152040 | SCR_008971 | 2026-02-17 10:01:27 | 0 | ||||||
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Texas University Health Science Center at San Antonio Long School of Medicine Department of Cell Systems and Anatomy Optical Imaging Core Facility Resource Report Resource Website 1+ mentions |
Texas University Health Science Center at San Antonio Long School of Medicine Department of Cell Systems and Anatomy Optical Imaging Core Facility (RRID:SCR_012171) | UTHSCSA OIF | service resource, access service resource, core facility | Service resource which makes imaging technology available to investigators on UTHSCSA campus and neighboring scientific community. Core Optical Imaging Facility offers access to technology for imaging of living cells, tissues, and animals, consultation, education and assistance regarding theory and application of optical imaging techniques, technical advice on specimen preparation techniques and probe selection. | Optical, imaging, facility, living, cell, tissue, animal, consultation, speciment, preparation |
is listed by: ScienceExchange has parent organization: University of Texas Health Science Center at San Antonio; Texas; USA |
NCI ; UTHSCSA ; NIA P01 AG19316 |
Restricted | SciEx_10134 | http://www.scienceexchange.com/facilities/optical-imaging-facility-oif | SCR_012171 | University of Texas Health Science Center at San Antonio Optical Imaging Facility, University of Texas Health Science Center at San Antonio Optical Imaging Facility (OIF), UTHSCSA Optical Imaging Facility, UTHSCSA Optical Imaging Facility (OIF) | 2026-02-17 10:02:00 | 1 | |||||
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University of Kentucky's Alzheimer's Disease Center Resource Report Resource Website 1+ mentions |
University of Kentucky's Alzheimer's Disease Center (RRID:SCR_008766) | UK-ADC, UK ADC | biomaterial supply resource, tissue bank, material resource | An organization which includes a tissue bank, a database, study design consultation, clinical resources, and a community registry database. The UK-ADC shares data with the NIA national database (NACC), as well as with independent, qualified investigators both within and outside the UK-ADC. This resource's associated tissue bank is comprised of anonymized brain tissue, blood, and cerebrospinal fluid samples from patients in the clinic, as well as frozen post-mortem brain tissue samples. This organization also shares research resources with the National Alzheimer's Coordinating Center (NACC), NACC collaborative initiatives, the Alzheimer's Disease Neuroimaging Initiative (ADNI), other Alzheimer Disease Centers (ADCs), and any qualified investigators from either the University of Kentucky or the general scientific community. | post-mortem, brain, brain tissue, cerebral spinal fluid, serum, plasma, buffy coat, blood, alzheimer's disease, dementing disorder, mild cognitive impairment, dementia, frozen, formalin fixed, paraffin embedded slide, clinical, neuropathology, neuropathologic disease, neuropathologic diagnosis, clinical, registry |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Kentucky Alzheimer's Disease Center |
Alzheimer's disease, Dementing disorder, Dementia, Neuropathologic diagnosis | NIA P30 AG028383 | Public | nlx_144056 | http://www.mc.uky.edu/coa/clinicalcore/alzheimercenter.html#neuropathology, http://www.mc.uky.edu/coa/clinicalcore/Neuropathology%20Core.html | SCR_008766 | University of Kentucky Alzheimer's Disease Center Biospecimen Data or Clinical Request, UK-Alzheimer's Disease Center Biospecimen Data or Clinical Request | 2026-02-17 10:01:09 | 1 | ||||
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Alzheimer's Disease Cooperative Study Resource Report Resource Website 10+ mentions |
Alzheimer's Disease Cooperative Study (RRID:SCR_008254) | ADCS | biomaterial supply resource, tissue bank, material resource | An initiative for Alzheimer's disease clinical studies that works to facilitate the discovery, development and testing of new drugs, and is a part of the Alzheimer's Disease Prevention Initiative. This resource has an emphasis on expanding the range of its patients, mainly by enhancing the recruitment of minority groups. There is a further emphasis placed on testing agents that cannot be patented, as well as developing novel compounds that had been developed by individuals, academic institutions and drug discovery units. This resource also helps in the development of Alzheimer's disease centers to carry out studies, as well as establish administrative, data, operations and medical cores in San Diego. This organization is specifically involved in studies demonstrating the lack of benefit associated, previously used treatments such as: the use of estrogen, non-steroidal anti-inflammatory drugs, B vitamins and a statin drug. The Alzheimer's Disease Cooperative Study also develops assessment instruments to be used in clinical trials. The most frequently used of these tools include: the Alzheimer's Disease Assessment Scale-Cognitive sub-scale (ADAS-cog), Activities of Daily Living (ADL), and the Clinical Global Impression of Change Scale (CGIC). There is also an associated tissue bank at UCSD that includes materials from the clinical trials including: human tissue, blood, plasma, DNA, urine and cerebrospinal fluid. | drug, alzheimer's disease, cognitive assessment, behavioral assessment, blood, clinical trial, dementia, plasma, prevention, urine, cerebral spinal fluid, dna, image, data sharing, tissue, cognition, behavior |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of California at San Diego; California; USA |
Alzheimer's disease | NIA | Public | nif-0000-22434 | SCR_008254 | 2026-02-17 10:01:19 | 27 | ||||||
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MiMeDB Resource Report Resource Website 1+ mentions |
MiMeDB (RRID:SCR_025108) | data or information resource, database | Database containing detailed information about small molecules produced by human microbiome. Provides metabolite data including structure, names, descriptions, chemical taxonomy, chemical ontology, physico-chemical data, spectra and contains detailed information about microbes that produce these chemicals, enzymatic reactions responsible for their production, bioactivity of chemicals and anatomical location of these chemicals and microbes. Many data fields in the database are hyperlinked to other databases including FooDB, HMDB, KEGG, PubChem, MetaCyc, ChEBI, UniProt, and GenBank. Database is FAIR compliant.The data in MiMeDB are released under the Creative Commons (CC) 4.0 License. | FAIR, small molecule metabolites, human microbiome, metabolite data, |
works with: HMDB works with: KEGG works with: PubChem works with: MetaCyc works with: CHEBI works with: UniProt works with: GenBank |
NIA U19 AG063744; Natural Sciences and Engineering Research Council of Canada ; Canadian Institutes for Health Research ; Canada Foundation for Innovation ; Genome Canada |
PMID:36215042 | Free, Freely available | SCR_025108 | , Microbial Metabolites Database, The Human Microbial Metabolome Database | 2026-02-17 10:04:17 | 6 | |||||||
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Patient-Reported Outcomes Measurement Information System Resource Report Resource Website 1000+ mentions |
Patient-Reported Outcomes Measurement Information System (RRID:SCR_004718) | PROMIS | assessment test provider, material resource | Repository of person centered measures that evaluates and monitors physical, mental, and social health in adults and children. | adult, child, assessment, clinical, anger, pain, fatigue, physical function, depression, anxiety, social function, patient reported outcome, health, measure |
is recommended by: National Library of Medicine has parent organization: University of Washington; Seattle; USA |
NCCIH ; NCI ; NHLBI ; NIA ; NIAMS ; NIDA ; NIDCD ; NIDDK ; NIMH ; NINDS ; NINR ; OD |
nlx_143881 | http://www.healthmeasures.net/index.php?option=com_content&view=category&layout=blog&id=71&Itemid=817 | SCR_004718 | PROMIS, Patient Reported Outcomes Measurement Information System | 2026-02-17 10:00:22 | 2881 | ||||||
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National Long Term Care Survey Resource Report Resource Website |
National Long Term Care Survey (RRID:SCR_008943) | NLTCS | biomaterial supply resource, material resource | A data set of a longitudinal survey designed to study changes in the health and functional status of older Americans (aged 65+). It also tracks health expenditures, Medicare service use, and the availability of personal, family, and community resources for caregiving. The survey began in 1982, and follow-up surveys were conducted in 1984, 1989, 1994, 1999, and 2004. The surveys are of the entire Medicare-enrolled aged population with a particular emphasis on the functionally impaired. As sample persons are followed through the Medicare record system, virtually 100% of cases can be longitudinally tracked so that declines, as well as increases, in disability may be identified as well as exact dates of death. NLTCS sample persons are followed until death and are permanently and continuously linked to the Medicare record system from which they are drawn. Linkage to the Medicare Part A and B service use records extends from 1982 to 2004, so that detailed Medicare expenditures and types of service use may be studied. Through the careful application of methods to reduce non-sampling error, the surveys provide nationally representative data on: * The prevalence and patterns of functional limitations, both physical and cognitive; * Longitudinal and cohort patterns of change in functional limitation and mortality over 22 years; * Medical conditions and recent medical problems; * Health care services used; * The kind and amount of formal and informal services received by impaired individuals and how it is paid for; * Demographic and economic characteristics like age, race, sex, marital status, education, and income and assets; * Out-of-pocket expenditures for health care services and other sources of payment; * Housing and neighborhood characteristics. In each of the six surveys, large samples (N~20,000) of the oldest-old population (i.e., those 85 and over) are obtained. The survey data (i.e., detailed community and institutional interviews. The linkage to Medicare enrollment files between 1982 and 2004 was 100%, i.e., there was complete follow-up of all cases (including survey non-respondents) for Medicare eligibility (and for most years, detailed Part A and B use), mortality, and date of death. Medicare mortality records (and dates of death) are available for 1982 to 2005. The number of deaths (i.e., about 32,000 from 1982 to 2005) is large enough that detailed mortality analyses can be done. Over the 22 years spanned by the six surveys, a total of 49,242 distinct individuals were followed from and linked to Medicare records. Data Availability: The data are available through ICPSR as Study No. 9681. The data are available only on CD-ROM and only upon completion of a signed Data Use Agreement. Continuously linked Medicare data (1982 through 2004) for the National Long Term Care Surveys are only available from CMS. * Dates of Study: 1982-2004 * Study Features: Longitudinal, Anthropometric Measures * Sample Size: ** 1982: 20,485 ** 1984: 25,401 ** 1989: 17,565 ** 1994: 19,171 ** 1999: 19,907 ** 2004: 20,474 Link: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09681 | longitudinal, survey, late adult human, interview, medicare, questionnaire, disabled, non-disabled, community, institution, disability, medical condition, education, income, blood, buccal wash, activity, caregiver, diet, family relations, health care service, health services utilization, health status, life satisfaction, live expectancy, living arrangement, marriage, perception, quality of life, apoe, sod2, physical, cognitive, functional limitation, mortality, demographic, economic, race, marital status, asset, payment, housing, neighborhood |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Duke University; North Carolina; USA has parent organization: National Archive of Computerized Data on Aging (NACDA) |
Aging, Functionally impaired, Late adult human, Non-disabled | NIA N2 U01 AG0007198 | Public, Data use agreement required. | nlx_151860 | http://dx.doi.org/10.3886/ICPSR09681.v5 | SCR_008943 | NLTCS: National Long-Term Care Survey, National Long Term Care Survey (NLTCS), National Long-Term Care Survey | 2026-02-17 10:01:20 | 0 | ||||
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Layton Center Biomarkers and Genetics Resource Report Resource Website |
Layton Center Biomarkers and Genetics (RRID:SCR_008824) | Layton Biomarkers and Genetics | biomaterial supply resource, material resource | A center that works with the Oregon Alzheimer's Disease Center's Data Core, and collects and stores tissue samples, family history and genotype data of various populations. These include samples and data from subjects from the following sources: OADC clinical studies, the Oregon Brain Aging Study, the Community Brain Donor Program, the Preventing Cognitive Decline with Alternative Therapies program (informally called the Dementia Prevention Study or DPS), the African American Dementia and Aging Project, and the Klamath Exceptional Aging Project. The collected data samples include genomic DNA, lymphoblast cell lines, genome-wide and candidate region SNP marker data, APOE, AD candidate gene markers. | genomic dna, lymphoblast cell line, plasma, dna, cell line, lymphoblast, dementia, late adult human, normal, alzheimer's disease, clinical data, genotype data, genotype, clinical, family history |
is listed by: One Mind Biospecimen Bank Listing has parent organization: OHSU Layton Aging and Alzheimer's Disease Center |
Aging, Dementia, Alzheimer's disease | NIA P30 AG08017 | Researchers must fill out request forms | nlx_144448 | SCR_008824 | Layton Aging and Alzheimers Disease Center Biomarkers and Genetics, Layton Center Biomarkers and Genetics | 2026-02-17 10:01:25 | 0 | |||||
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Iowa 65+ Rural Health Study Resource Report Resource Website 1+ mentions |
Iowa 65+ Rural Health Study (RRID:SCR_008937) | Iowa 65+ Rural Health Study | biomaterial supply resource, material resource | A data set and sister study to the Established Populations for Epidemiologic Study of the Elderly (EPESE). It complements the findings of the three other EPESE sites (East Boston, MA; New Haven, CT; and north-central North Carolina) and has common items and methods in many domains. The target population was all persons 65 years and older in two rural counties in east central Iowa: Iowa and Washington counties. In 1981 a census of older persons in the target area was conducted by the investigators, creating an ascertainment list having 99% of the persons identified in the previous year by the US Decennial Census. The baseline survey was conducted between December 1991 and August 1992. Overall, 3,673 persons, or 80% of the target population were interviewed: 65-69 (N = 986), 70-74 (N = 988), 75-79 (N = 815), 80-84 (N = 523), and 85+ (N = 361). The population is virtually entirely Caucasian. Subsequently, personal follow-up surveys were conducted 3, 6, and 10 years after the baseline survey. Telephone surveys were conducted 1, 2, 4, 5, and 7 years after the baseline survey. Data collected from respondents included information about demographics, major health conditions, health care utilization, hearing and vision, weight and height, elements of nutrition, sleep problems, depressive and anxiety symptoms, alcohol and tobacco use, cognitive performance and dementia screening, incontinence measures, life satisfaction index, social networks and support, worries, medication use, activities of daily living, dental problems, satisfaction with medical care, life events, brief economic status, automobile driving habits, multiple measures of physical and disability status, and blood pressure. At follow-up #6, there were a series of physical function performance tests, the so-called NIA-MacArthur Battery, and blood was drawn for biochemical tests and potentially other determinations. In addition, some datasets were linked to the EPESE dataset under appropriate restrictions, including Iowa state driving records and clinical diagnoses and medical care utilization from the Centers for Medicare and Medicaid Services. Data Availability: The dataset has been shared with several investigative teams under special arrangement with the Principal Investigator. Early surveys are available from ICPSR. A small storage of blood is available for exploratory analyses. * Dates of Study: 1991-2001 * Study Features: Longitudinal, Anthropometric Measures, Biomarkers * Sample Size: 1991-2: 3,673 (baseline) Link: EPESE 1981-93 ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09915 | blood, mortality, hospitalization, chronic disease, late adult human, longitudinal, anthropometry, biomarker, survey, caucasian, demographics, health, health care, hearing, vision, weight, height, nutrition, sleep, depression, anxiety, alcohol use, tobacco use, cognition, dementia, incontinence, social, medication use, activity, dental, satisfaction, medical care, economic status, driving, physical, disability, blood pressure, interview |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Established Populations for Epidemiologic Studies of the Elderly |
Aging | NIA | Public | nlx_151838 | SCR_008937 | Iowa 65 and over Rural Health Study, Iowa 65 Plus Rural Health Study | 2026-02-17 10:01:20 | 3 | |||||
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KI Biobank - SATSA Resource Report Resource Website 1+ mentions |
KI Biobank - SATSA (RRID:SCR_005966) | KI Biobank - SATSA | biomaterial supply resource, material resource | Longitudinal twin study to understand individual differences in aging with corresponding data and biological samples. The twin design and the inclusion of twins reared apart makes it possible to study the importance of genetic and environmental factors that may underlie differing aging outcomes. Further, the broad spectrum of biological, psychological, and social domains assessed across the life span makes it possible to study patterns of change within and across domains and how these predict health and diseases of aging. The study is comprised of several longitudinal components including, a comprehensive questionnaire that was sent to all twins in the Swedish Twin Registry who were separated at an early age and reared apart and a control sample of twins reared together. The questionnaires include items concerning rearing, family, adult, and working environment, health status, health related behaviors (e.g. alcohol, tobacco, and dietary habits) as well as relationships, and personality measures. The questionnaires were sent again at 3 year intervals in 1987, 1990, 1993 and after a break again in 2004, 2007, and 2010. Thus far more than 2,000 twins have responded to at least one of the seven questionnaire assessments conducted between 1984 and 2010. Additionally there is information about midlife life style factors from the Swedish Twin Registry that were collected about twenty years before SATSA started. In the second component a subsample of 861 individuals have participated in at least one wave of in-person testing (IPT). The first IPT started in 1986 and since then eight IPTs have been collected and the last wave will be collected during 2012-2013. The IPT includes a health examination, structured interviews, tests of functional capacity, and memory and thinking abilities. To date, over 76% of the sample has participated in 3 or more measurement waves. At IPT9 a third component was added to SATSA, a measure of day-to-day fluctuations in memory and thinking abilities, and emotions. Information about social interactions is also collected. After the visit by the research nurses the twins fill out the day-to-day booklet during the next five days. This procedure will be repeated in IPT10. This will add information about small and short-term changes and more changes are supposed to indicate the beginning of poor health. Data from SATSA can be used to study various aspects of aging. For example, the relative importance of genetic and environmental factors for individual differences in aging especially in cognitive and physical domains has been studied. A further main focus is to study changes within and across domains and which genetic and life style factors predict these changes. Given the wide spectrum of data from measured genes to social relationships collected over more than two decades they dare to say that SATSA is a unique study, with the possibility to answer many questions within gerontology and geriatrics. Types of samples * Serum * DNA Number of sample donors: 674 (June 2010) | gene, environment, health, disease, longitudinal, questionnaire, life style, interview, functional capacity, memory, thinking, emotion, social interaction, cognitive, physical, behavior, relationship, personality, health |
uses: Swedish Twin Registry is listed by: One Mind Biospecimen Bank Listing is related to: KI Biobank - HARMONY has parent organization: Karolisnka Biobank |
Aging, Twin, Control, (reared apart vs. reared together) | MacArthur Foundation Research Network on Successful Aging ; NIA AG04563; NIA AG10175; NIA AG08724; Swedish Research Council 825-2007-7460; Swedish Research Council 825-2009-6141; Swedish Research Council 825-3011-6182; Swedish Council for Working Life and Social Research 97:0147:1B 2009-0795 |
nlx_151325 | http://ki.se/forskning/ki-biobank, http://ki.se/ki/jsp/polopoly.jsp?d=29354&a=24035&l=en | SCR_005966 | Swedish Adoption / Twin Study of Aging, KI Biobank - Swedish Adoption/Twin Study of Aging, SATSA - The Swedish Adoption/Twin Study of Aging, Swedish Adoption/Twin Study of Aging | 2026-02-17 10:00:50 | 1 | |||||
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National Social Life Health and Aging Project (NSHAP) Resource Report Resource Website 1+ mentions |
National Social Life Health and Aging Project (NSHAP) (RRID:SCR_008950) | NSHAP | biomaterial supply resource, material resource | A longitudinal, population-based study of health and social factors, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health and illness, medication use, cognitive function, emotional health, sensory function, health behaviors, social connectedness, sexuality, and relationship quality. NSHAP provides policy makers, health providers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships. The study contributes to finding new ways to improve health as people age. In 2005 and 2006, NORC and Principal Investigators at the University of Chicago conducted the first wave of NSHAP, completing more than 3,000 interviews with a nationally representative sample of adults aged 57 to 85. In 2010 and 2011, nearly 3,400 interviews were completed for Wave 2 with these Wave 1 Respondents, Wave 1 Non-Interviewed Respondents, and their spouses or cohabiting romantic partners. The second wave of NSHAP is essential to understanding how social and biological characteristics change. NSHAP, by eliciting a variety of information from respondents over time, provides data that will allow researchers in a number of fields to examine how specific factors may or may not affect each other across the life course. For both waves, data collection included three measurements: in-home interviews, biomeasures, and leave-behind respondent-administered questionnaires. The face-to-face interviews and biomeasure collection took place in respondents'''' homes. NSHAP uses a national area probability sample of community residing adults born between 1920 and 1947 (aged 57 to 85 at the time of the Wave 1 interview), which includes an oversampling of African-Americans and Hispanics. The NSHAP sample is built on the foundation of the national household screening carried out by the Health and Retirement Study (HRS) in 2004. Through a collaborative agreement, HRS identified households for the NSHAP eligible population. A sample of 4,400 people was selected from the screened households. NSHAP made one selection per household. Ninety-two percent of the persons selected for the NSHAP interview were eligible. For Wave 2 in 2010 and 2011, NSHAP returned to Wave 1 Respondents and eligible non-interviewed respondents from Wave 1 (Wave 1 Non-Interviewed Respondents). NSHAP also extended the Wave 2 sample to include the cohabiting spouses and romantic partners of Wave 1 Respondents and Wave 1 Non-Interviewed Respondents. Partners were considered to be eligible to participate in NSHAP if they resided in the household with the Wave 1 Respondent/Wave 1 Non-Interviewed Respondent at the time of the Wave 2 interview and were at least 18 years of age. Wave I biomeasures: height; weight; waist circumference; blood pressure; smell; taste; vision; touch; respondent-administered vaginal swabs; oral mucosal transudate (OMT) for HIV-1 antibody screening; saliva; ����??get up and go����??; and blood spots. Technological advances in biomeasure collection methods have decreased respondent burden and increased ease of collection, storage, and yield of various biomeasures for the second wave of NSHAP. Wave II biomeasures: anthropometrics, including height, hip and waist circumference, and weight; cardiovascular function, including blood pressure, heart rate variability, and pulse; 2 of the 3 components of the short physical performance battery (SPPB) including chair stands and a timed walk; sensory function including smell; and actigraphy. In addition, we collect dried blood spots, microtainer blood, passive drool and salivettes, urine, and respondent-administered vaginal swabs, each of which are analyzed using multiple assays for a variety of measures and rationales. Furthermore, we assess respondents����?? cognition using the Montreal Cognitive Assessment (MoCA). Data Availability: NSHAP data made available to the public does not contain any identifiable respondent information and uses code numbers instead of names for all data. De-identified data from the 2005 and 2006 interviews are available to researchers through the National Archive of Computerized Data on Aging, located within Inter-University Consortium for Political and Social Research (ICPSR). Data from the Wave 2 interviews in 2010 and 2011 will be available in the summer of 2012. * Dates of Study: 2005-2006, 2010-2011 * Study Features: Biospecimens, Anthropometric Measures * Sample Size: ** Wave 1: 3,005 ** Wave 2: 3,377 Links: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/20541 | social life, health, man, woman, late adult human, middle adult human, longitudinal, social support, personal relationship, social, physical health, illness, cognitive function, emotional health, sensory function, social connectedness, sexuality, relationship quality, intimate relationship, biospecimen, anthropometric measure, interview, biomeasure, questionnaire, african-american, hispanic, minority, marriage, anxiety, attitude, body height, body weight, doctor visit, drug, ethnicity, family size, health attitude, health problem, health services utilization, health status, intimate partner, life satisfaction, medical evaluation, medical procedure, medication, menopause, mental health, morbidity, nutrition, quality of life, sexual activity, cohabitation, social network, demographic, prevention, cognition, well-being, survey, sleep, actigraphy, healthy aging, vaginal swab, blood spot, saliva, blood, urine |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: Biomarker Network has parent organization: University of Chicago; Illinois; USA has parent organization: National Archive of Computerized Data on Aging (NACDA) |
Aging | Office of Research on Women's Health ; Office of AIDS Research ; National Opinion Research Center ; NIA R01-AG021487; NIA R37-AG030481; NIA R01-AG033903 |
PMID:19837963 | Public: Users must request and complete the NSHAP Restricted Data Use Agreement form. | nlx_151867 | http://gero.usc.edu/CBPH/network/resources/studies/nshap.shtml | SCR_008950 | National Social Life Health and Aging Project | 2026-02-17 10:01:20 | 4 | |||
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Religion Aging and Health Survey Resource Report Resource Website |
Religion Aging and Health Survey (RRID:SCR_003625) | Religion Aging and Health Survey | data or information resource, data set | Data set that looked at religion, self-rated health, depression, and psychological well-being in a sample of older Blacks and older Whites (aged 65 and over) within the United States. Questions were asked regarding religious status, activities, and beliefs among those who currently practice the Christian faith, those who used to be Christian but are not now, and those who have never been associated with any religion during their lifetimes. Demographic variables include age, race, sex, education, and income. Wave II was collected in 2004 and reinterviewed 1,024 respondents. There were 75 respondents who refused to participate, 112 who could not be located, 70 that were too ill for participation, 11 who had moved to nursing homes and 208 were deceased. * Dates of Study: 2001- 2004 * Study Features: Longitudinal, Minority Oversample * Sample Size: 1,500 | late adult human, religion, christianity, church membership, depression, health attitude, health problem, prayer, psychological wellbeing, religious behavior, religious belief, religious denomination, worship, caucasian, african american, interview, longitudinal, minority |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: University of Michigan; Ann Arbor; USA |
Aging, Depressive Disorder | NIA 5 R01 AG014749 | nlx_157777 | SCR_003625 | 2026-02-17 10:00:14 | 0 | |||||||
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Seattle Longitudinal Study Resource Report Resource Website |
Seattle Longitudinal Study (RRID:SCR_003654) | SLS | data or information resource, data set | Data set from an ongoing, longitudinal-sequential study of adult-cognitive development, which began in 1956, that focuses on individual differences in age-related changes and differences across cohorts. The general purpose of the study is to examine the changes in intelligence and various abilities throughout adulthood. The data provide a normative base to determine the ages of detectable decrements in ability and the magnitudes of the decrements. The study also seeks to examine patterns of generational differences and age-related differences and to determine the effects of educational intervention on intellectual decline. This study is a mixed cross-sectional, longitudinal, and time-lag design. Included are family studies of cognitive similarity, prospective studies of early signs of dementia via psychological and genetic markers, as well as the investigation of personality and demographic variables that affect cognitive change in adults from young adulthood to advanced old age. Questionnaire topics include health behavior, behavioral rigidity, family environment, Life Complexity Inventory, CES-D Depression, and cognitive and neuropsychology batteries. Group Health Cooperative of Puget Sound Medical Records and Pharmacy Records. * Dates of Study: 1956-Present * Study Features: Longitudinal * Sample Size: 6,000+ | late adult human, blood pressure, cognition, cohort study, exercise, female, leisure activity, likelihood function, linear model, male, memory, middle adult human, multivariate analysis, professional autonomy, risk factor, washington, longitudinal, psychological development, personality, demographic, cognitive ability, cognitive functioning, cognitive impairment, cognitive processes, intelligence, questionnaire, health behavior, behavioral rigidity, family environment, life complexity inventory, ces-d depression, cognitive battery, neuropsychology battery, behavior |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Pennsylvania State University |
Aging, Dementia, Cognition disorder | NIA | PMID:19606423 | Must consult data owners directly | nlx_157807 | http://geron.psu.edu/sls/ | SCR_003654 | Seattle Longitudinal Study (SLS) of Adult Cognitive Development, Seattle Longitudinal Study of Adult Cognitive Development | 2026-02-17 10:00:24 | 0 | |||
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Aged Rodent Tissue Bank Resource Report Resource Website 1+ mentions |
Aged Rodent Tissue Bank (RRID:SCR_010607) | NIA Tissue Bank | biomaterial supply resource, tissue bank, material resource | A repository of tissue collected from the NIA Aged Rodent Colonies under contractual arrangement with BioReliance. The NIA colonies are barrier maintained and Specific Pathogen Free. Tissues are fresh frozen and stored at -80 degrees Celsius. Tissue from the NIA Aged Rodent Tissue Bank is available to investigators at academic and nonprofit research institutions who are engaged in funded research on aging. The project name and source of funding must accompany all orders. It may not be possible to ship tissue to foreign countries that have restrictions on the import of animal tissues or products. Please Note: Incomplete order forms will be returned. We can only offer following week delivery for those orders for which completed order forms are received by the deadline of Tuesday noon, Eastern time. Starting April 1, 2012, a copy (.pdf) of the purchase order must be emailed along with the order form. | tissue, rodent, fresh frozen, frozen, male, wild type, caloric restricted, ad lib control, control, dwarf, ames dwarf, b6d2f1, f344bn f1 hybrid rat, f344 rat, balb/c, c57bl/6, cb6f1, f344xbn f1, fisher 344, rat, :category:embryonic mouse |
is listed by: One Mind Biospecimen Bank Listing is related to: BioReliance is related to: NIA Aged Rodent Colonies has parent organization: NIA Scientific Resources is parent organization of: Aged Rodent Tissue Arrays |
Aging, Control | NIA | Available to projects directly related to aging and funded by the NIH, Other U.S. Federal government agencies (ex., VA, CDC) or U.S. private, Non-profit research foundations (ex. AHA, AFAR). Not available for commercial projects. | nlx_51483 | http://www.nia.nih.gov/ResearchInformation/ScientificResources/AgedRodentTissueBankHandbook/ | SCR_010607 | NIA Aged Rodent Tissue Bank, NIA Aged Rodent Tissue Bank Handbook | 2026-02-17 10:01:50 | 1 | ||||
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Inside NIA: A Blog for Researchers Resource Report Resource Website |
Inside NIA: A Blog for Researchers (RRID:SCR_012812) | data or information resource, narrative resource, blog | Blog intended for grantees of the National Institute on Aging (NIA) at the NIH, as well as applicants for funding, those with an application in mind, application reviewers, and students pursuing careers in research on aging and Alzheimer's disease. | funding policy, research priority, new program, alzheimer, blog |
is used by: NIF Data Federation is used by: Integrated Blogs has parent organization: National Institute on Aging |
Aging, Alzheimer's disease | NIA | Public, Except where subject to copyright restrictions, Acknowledgement required | nlx_152701 | SCR_012812 | Inside NIA | 2026-02-17 10:01:55 | 0 |
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