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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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CERAD - Consortium to Establish a Registry for Alzheimer's Disease Resource Report Resource Website 1000+ mentions |
CERAD - Consortium to Establish a Registry for Alzheimer's Disease (RRID:SCR_003016) | CERAD | assessment test provider, material resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 4, 2023.Consortium that developed brief, standardized and reliable procedures for the evaluation and diagnosis of patients with Alzheimer's disease (AD) and other dementias of the elderly. These procedures included data forms, flipbooks, guidebooks, brochures, instruction manuals and demonstration tapes, which are now available for purchase. The CERAD assessment material can be used for research purposes as well as for patient care. CERAD has developed several basic standardized instruments, each consisting of brief forms designed to gather data on normal persons as well as on cognitively impaired or behaviorally disturbed individuals. Such data permit the identification of dementia based on clinical, neuropsychological, behavioral or neuropathological criteria. Staff at participating CERAD sites were trained and certified to administer the assessment instruments and to evaluate the subjects enrolled in the study. Cases and controls were evaluated at entry and annually thereafter including (when possible) autopsy examination of the brain to track the natural progression of AD and to obtain neuropathological confirmation of the clinical diagnosis. The CERAD database has become a major resource for research in Alzheimer's disease. It contains longitudinal data for periods as long as seven years on the natural progression of the disorder as well as information on clinical and neuropsychological changes and neuropathological manifestations., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | clinical, behavior, late adult human, male, female, caucasian, african-american, autopsy, longitudinal, neuropsychology, neuropathology, FASEB list | has parent organization: Duke University; North Carolina; USA | Aging, Alzheimer's disease, Dementia, Cognitive impairment, Neurodegenerative disorder, Systemic illness, Cerebrovascular disease, Parkinson's disease, Depressive Disorder | NIA | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-00523 | SCR_003016 | Consortium to Establish a Registry for Alzheimer's Disease | 2026-02-07 02:13:55 | 2336 | |||||
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MITOMAP - A human mitochondrial genome database Resource Report Resource Website 100+ mentions |
MITOMAP - A human mitochondrial genome database (RRID:SCR_002996) | MITOMAP | data or information resource, database | Database of polymorphisms and mutations of the human mitochondrial DNA. It reports published and unpublished data on human mitochondrial DNA variation. All data is curated by hand. If you would like to submit published articles to be included in mitomap, please send them the citation and a pdf. | gene, genome, diabetes, disease, disease-association, high resolution screening, human, inversion, metabolism, mitochondrial dna, mutation, phenotype, polymorphism, polypeptide assignment, pseudogene, restriction site, rna, sequence, trna, unpublished, variation, mitochondria, dna, insertion, deletion, FASEB list |
is used by: HmtVar is listed by: OMICtools is related to: Hereditary Hearing Loss Homepage has parent organization: Childrens Hospital of Philadelphia - Research Institute; Pennsylvania; USA has parent organization: Emory University School of Medicine; Atlanta; Georgia; USA |
NIH ; Muscular Dystrophy Foundation ; Ellison Foundation ; Diputacion General de Aragon Grupos consolidados B33 ; NIGMS GM46915; NINDS NS21328; NHLBI HL30164; NIA AG10130; NIA AG13154; NINDS NS213L8; NHLBI HL64017; NIH Biomedical Informatics Training Grant T15 LM007443; NSF EIA-0321390; Spanish Fondo de Investigacion Sanitaria PI050647; Ciber Enfermedades raras CB06/07/0043 |
PMID:17178747 PMID:15608272 PMID:9399813 PMID:9016535 PMID:8594574 |
Except where otherwise noted, Creative Commons Attribution License, The community can contribute to this resource | nif-0000-00511, OMICS_01641 | SCR_002996 | 2026-02-11 10:56:36 | 368 | ||||||
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UniProt Resource Report Resource Website 10000+ mentions |
UniProt (RRID:SCR_002380) | UniProt | data or information resource, database | Collection of data of protein sequence and functional information. Resource for protein sequence and annotation data. Consortium for preservation of the UniProt databases: UniProt Knowledgebase (UniProtKB), UniProt Reference Clusters (UniRef), and UniProt Archive (UniParc), UniProt Proteomes. Collaboration between European Bioinformatics Institute (EMBL-EBI), SIB Swiss Institute of Bioinformatics and Protein Information Resource. Swiss-Prot is a curated subset of UniProtKB. | collection, protein, sequence, annotation, data, functional, information |
is used by: LIPID MAPS Proteome Database is used by: ChannelPedia is used by: Open PHACTS is used by: DisGeNET is used by: Smart Dictionary Lookup is used by: MitoMiner is used by: Cytokine Registry is used by: MobiDB is used by: Pathway Analysis Tool for Integration and Knowledge Acquisition is used by: Phospho.ELM is used by: GEROprotectors is used by: SwissLipids is recommended by: NIDDK Information Network (dkNET) is recommended by: National Library of Medicine is recommended by: NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases is listed by: re3data.org is listed by: LabWorm is related to: Clustal W2 is related to: UniProt DAS is related to: UniParc at the EBI is related to: ProDom is related to: LegumeIP is related to: Pathway Commons is related to: NIH Data Sharing Repositories is related to: FlyMine is related to: IMEx - The International Molecular Exchange Consortium is related to: 3D-Interologs is related to: Biomine is related to: EBIMed is related to: STOP is related to: Coremine Medical is related to: BioExtract is related to: STRAP is related to: GOTaxExplorer is related to: GoAnnotator is related to: IT-GOM: Integrated Tool for IC-based GO Semantic Similarity Measures is related to: Whatizit is related to: MOPED - Model Organism Protein Expression Database is related to: Polbase is related to: PredictSNP is related to: PSICQUIC Registry is related to: IntAct is related to: p300db is related to: UniProt Proteomes is related to: SARS-CoV-2 mutation effects and 3D structure prediction from sequence covariation has parent organization: European Bioinformatics Institute has parent organization: SIB Swiss Institute of Bioinformatics has parent organization: Protein Information Resource is parent organization of: UniProtKB is parent organization of: NEWT is parent organization of: UniParc is parent organization of: UniProt Chordata protein annotation program is parent organization of: UniRef works with: Genotate works with: CellPhoneDB works with: MOLEonline works with: MiMeDB |
NHGRI U41 HG006104; NHGRI P41 HG02273; NIGMS 5R01GM080646; NIGMS R01 GM080646; NLM G08 LM010720; NCRR P20 RR016472; NSF DBI-0850319; British Heart Foundation ; NEI ; NHLBI ; NIA ; NIAID ; NIDDK ; NIMH ; NCI ; EMBL ; PDUK ; ARUK ; NHGRI U24 HG007722 |
PMID:19843607 PMID:18836194 PMID:18045787 PMID:17142230 PMID:16381842 PMID:15608167 PMID:14681372 |
nif-0000-00377, SCR_018750, r3d100010357 | http://www.ebi.uniprot.org http://www.uniprot.org/uniprot/ http://www.pir.uniprot.org ftp://ftp.uniprot.org https://doi.org/10.17616/R3BW2M |
SCR_002380 | , The Universal Protein Resource, Universal Protein Resource, UNIPROT Universal Protein Resource | 2026-02-11 10:56:28 | 17565 | |||||
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Open Access Series of Imaging Studies Resource Report Resource Website 100+ mentions |
Open Access Series of Imaging Studies (RRID:SCR_007385) | OASIS | data or information resource, database | Project aimed at making neuroimaging data sets of brain freely available to scientific community. By compiling and freely distributing neuroimaging data sets, future discoveries in basic and clinical neuroscience are facilitated. | early, stage, alzheimer, disease, mri, fmri, image, brain, dicom, magnetic, resonance, collection, data, FASEB list |
is used by: NIF Data Federation is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) is related to: Automatic Registration Toolbox is related to: 2012 MICCAI Multi-Atlas Labeling Challenge Data has parent organization: Howard Hughes Medical Institute has parent organization: Washington University School of Medicine in St. Louis; Missouri; USA has parent organization: Biomedical Informatics Research Network is parent organization of: Cover Pages |
Alzheimer's disease, Dementia, Normal, Nondemented, Aging | NIA P50 AG05681; NIA P01 AG03991; NIA R01 AG021910; NIMH P50 MH071616; NCRR U24 RR021382; NIMH R01 MH56584 |
Free, Acknowledgement required | r3d100012182, nif-0000-00387 | http://www.nitrc.org/projects/oasis https://doi.org/10.17616/R3RS8K |
SCR_007385 | The Open Access Series of Imaging Studies, Open Access Series of Imaging Studies, OASIS | 2026-02-11 10:57:34 | 299 | ||||
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Taub Institute for Research on Alzheimers Disease and the Aging Brain Resource Report Resource Website |
Taub Institute for Research on Alzheimers Disease and the Aging Brain (RRID:SCR_008802) | biomaterial supply resource, tissue bank, material resource, brain bank | An institute which conducts research of Alzheimer's, Parkinson's and other age-related brain diseases. This organization also provides clinical evaluations to patients with memory problems, Alzheimer's disease or other types of dementia. Furthermore, the institute leads multi-center clinical trials for the treatment and prevention of Alzheimer's, Parkinson's and other age-related brain diseases. There is a brain donation program for enrolled/examined patients. The Education Core of the Taub Institute sponsors community events and Continuing Medical Education programs, as well as the distribution of periodic newsletters and brochures highlighting research developments and other Alzheimer's topics. | alzheimer's disease, parkinson's disease, age-related brain disease, neurodegenerative disease, late adult human, frontotemporal lobar degeneration, lewy body dementia, vascular disease, metabolic disease, geriatric psychiatry, normal aging, autopsy, brain tissue, brain, tissue, imaging, clinical trial, cell biology, neuroscience, cognitive neuroscience |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Columbia University; New York; USA |
Alzheimer's disease, Parkinson's disease, Age-related brain disease, Neurodegenerative disease, Frontotemporal lobar degeneration, Lewy body dementia, Vascular disease, Metabolic disease, Aging | NIA ; Taub Family Foundation |
nlx_144343 | SCR_008802 | Taub Institute ADRC, Taub Center for Alzheimer's Disease Research, Taub Institute Alzheimer's Disease Research Center, Taub Institute for Research on Alzheimer’s Disease | 2026-02-11 10:58:02 | 0 | |||||||
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Massachusetts Alzheimer's Disease Research Center Resource Report Resource Website 1+ mentions |
Massachusetts Alzheimer's Disease Research Center (RRID:SCR_008764) | MADRC, ADRC | biomaterial supply resource, tissue bank, material resource, brain bank | An Alzheimer's disease research center which supports new research and enhances ongoing research by providing core support to bringing together behavioral, biomedical, and clinical scientists. The Center conducts multidisciplinary research, trains scientists, and spreads information about Alzheimer's disease and related disorders to the general public. The principal goal of the Massachusetts ADRC is to support research in aging, Alzheimer's Disease and other related disorders. Researchers work with national and international multi-disciplinary teams to understand: normal aging, the transition from normal aging to mild forms of memory problems, and the later stages of dementia. The Massachusetts ADRC has an active brain donation program at the Massachusetts General Hospital (MGH) for patients as well as subjects enrolled in research studies. | brain, tissue, healthy control, alzheimer's disease, neurological disease, parkinson's disease, frontotemporal dementia, dementia with lewy bodies, dementia, neurodegenerative disease |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Harvard Medical School; Massachusetts; USA |
Aging, Alzheimer's disease, Neurological disease, Parkinson's disease, Frontotemporal dementia, Pick's disease, Primary Progressive Aphasia, Dementia with Lewy bodies, Dementia, Progressive Supranuclear Palsy, Corticobasal Degeneration, Vascular dementia, Cerebral Amyloid Angiopathy, Dementia pugilistica, Boxer's Syndrome, Neurodegenerative disease | U.S. Department of Health and Human Services ; NIA |
Public, Available to the research community | nlx_144104 | SCR_008764 | Massachusetts ADRC, Massachusetts Alzheimer's Disease Research Center | 2026-02-11 10:57:54 | 1 | |||||
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Rush Alzheimer's Disease Center Resource Report Resource Website 1+ mentions |
Rush Alzheimer's Disease Center (RRID:SCR_008763) | RADC | biomaterial supply resource, tissue bank, material resource, brain bank | An Alzheimer's disease center which researches the cause, treatment and prevention of Alzheimer's disease with a focus on four main areas of research: risk factors for Alzheimer's and related disorders, the neurological basis of the disease, diagnosis, and treatment. Data includes a number of computed variables that are available for ROS, MAP and MARS cohorts. These variables are under categories such as affect and personality, chronic medical conditions, and clinical diagnosis. Specimens include ante-mortem and post-mortem samples obtained from subjects evaluated by ROS, MAP and clinical study cores. Specimen categories include: Brain tissue (Fixed and frozen), Spinal cord, Muscles (Post-mortem), and Nerve (Post-mortem), among other types of specimens. Data sharing policies and procedures apply to obtaining ante-mortem and post-mortem specimens from participants evaluated by the selected cohorts of the RADC. | clinical, post mortem, ante mortem, late adult human, brain, tissue, spinal cord, muscle, nerve, dna, lymphocyte, serum, plasma, urine, fixed, frozen, cryopreserved, alzheimer's disease, memory | is listed by: One Mind Biospecimen Bank Listing | Alzheimer's disease, Alzheimer's-related disorder, Aging | NIA | Available to the research community, Data sharing policies apply to both data and specimens | nlx_144050 | SCR_008763 | Rush ADC, Rush Alzheimer's Disease Center | 2026-02-11 10:57:51 | 3 | |||||
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NYU Alzheimer's Disease Center Resource Report Resource Website |
NYU Alzheimer's Disease Center (RRID:SCR_008754) | NYU ADC | biomaterial supply resource, tissue bank, material resource, brain bank | The NYU Alzheimer's Disease Center is part of the Department of Psychiatry at New York University School of Medicine. The center's goals are to advance current knowledge and understanding of brain aging and Alzheimer's disease, to expand the numbers of scientists working in the field of aging and Alzheimer's research, to work toward better treatment options and care for patients, and to apply and share its findings with healthcare providers, researchers, and the general public. The ADC's programs and services extend to other research facilities and to healthcare professionals through the use of its core facilities. The NYU ADC is made up of seven core facilities: Administrative Core, Clinical Core, Neuropathology Core, Education Core, Data Management and Biostatistics Core, Neuroimaging Core, and Psychosocial Core. | brain, tissue, alzheimer's disease, dementia, meeting resource, clinical, imaging, neuroimaging, psychosocial, post-mortem, autopsy, vaccination, treatment |
is listed by: One Mind Biospecimen Bank Listing has parent organization: New York University School of Medicine; New York; USA |
Alzheimer's disease, Dementia, Aging | NIA | Available to collaborators | nlx_144383 | http://www.med.nyu.edu/adc/ | SCR_008754 | NYU Alzheimer's Disease Center, New York University Alzheimer's Disease Center | 2026-02-11 10:57:54 | 0 | ||||
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Stanford/VA Aging Clinical Research Center Resource Report Resource Website 1+ mentions |
Stanford/VA Aging Clinical Research Center (RRID:SCR_008678) | ACRC | biomaterial supply resource, tissue bank, material resource, brain bank | Portal for gerontology research with a variety of clinical, research and educational programs, with the aim of improving the lives of those affected by Alzheimer's Disease and memory losses associated with normal aging. The Center investigates the nature of Alzheimer's Disease, its progression over time, its response to treatments, and problems patients and caregivers experience in dealing with the changes that occur. It also conducts studies that look at changes that occur over the course of normal aging and have a Normal Aging Brain Donor Program. The Aging Clinical Research Center puts out a newsletter that showcases various projects and includes informative articles on dementia. | gerontology, alzheimer's disease, memory loss, normal aging, dementia, late adult human, post-traumatic stress disorder, sleep disorder, brain tissue, tissue, brain, depressive disorder, late adult human, clinical data |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Stanford University School of Medicine; California; USA is parent organization of: Geriatric Depression Scale is parent organization of: Signal Detection Software for Receiver Operator Characteristics is parent organization of: Geriatric Psychiatry Knowledge Test |
Aging, Alzheimer's disease, Memory loss, Dementia | NIA ; United States Department of Veterans Affairs |
Public, Available to the research community | nlx_143944 | http://alzheimer.stanford.edu | SCR_008678 | Stanford/VA ACRC | 2026-02-11 10:57:53 | 1 | ||||
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Duke University Kathleen Price Bryan Brain Bank Resource Report Resource Website |
Duke University Kathleen Price Bryan Brain Bank (RRID:SCR_005022) | biomaterial supply resource, tissue bank, material resource, brain bank | A research repository of human brains with neurological disorders and normal controls, recruited through the Autopsy and Brain Donation Program coordinator. The Kathleen Price Bryan Brain Bank contains brains from patients with Alzheimer's disease, Parkinson's disease, Amyotrophic Lateral Sclerosis, Huntington's disease, Muscular Dystrophy, and other neurological and dementing disorders. The brain tissue is subjected to a detailed neuropathological evaluation and then stored as fixed and frozen hemispheres, paraffin blocks and histological slides. After receipt of an IRB approved request, tissue is supplied to investigators at Duke University, major medical centers and pharmaceutical companies across the United States and worldwide. | brain, tissue, brain bank, biospecimen repository, spinal cord, cerebral spinal fluid, dna, fixed hemisphere, frozen hemispheres, paraffin block, histological slide, neurological disorder, alzheimer's disease, parkinson's disease, huntington's disease, dementing disorder, muscular dystrophy |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Joseph and Kathleen Bryan Alzheimer's Disease Research Center |
Neurological disorder, Normal control, Alzheimers disease, Dementing disorder, Parkinsons disease, Amyotrophic Lateral Sclerosis, Huntingtons disease, Muscular Dystrophy | NIA P30 AG028377 | Public, Tissue must be requested, Available to the research community | nlx_144011 | SCR_005022 | Bryan Brain Bank, Kathleen Price Bryan Brain Bank, DU Brain Bank | 2026-02-11 10:57:01 | 0 | ||||||
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New Beneficiary Data System Resource Report Resource Website |
New Beneficiary Data System (RRID:SCR_013320) | NBDS | data or information resource, data set | Data set of extensive information on the changing circumstances of aged and disabled beneficiaries - Living, noninstitutionalized population of the continental United States from the Social Security Administration''''s Master Benefit Record who were new recipients of Social Security benefits (first payment in mid-1980 through mid-1981) or who had established entitlement to Medicare and were eligible for, but had not received, Social Security benefits as of July 1982. Based initially on a national cross-sectional survey of new beneficiaries in 1982, the original data base was expanded with information from administrative records and a second round of interviews in 1991. Variables measured in the original New Beneficiary Survey (NBS) include demographic characteristics; employment, marital, and childbearing histories; household composition; health; income and assets; program knowledge; and information about the spouses of married respondents. The 1991 New Beneficiary Follow-up (NBF) updated marital status, household composition, and the economic profile and contains additional sections on family contacts, postretirement employment, effects of widowhood and divorce, major reasons for changes in economic status, a more extensive section on health, and information on household moves and reasons for moving. Disabled-worker beneficiaries were also asked about their efforts to return to work, experiences with rehabilitation services, and knowledge of SSA work incentive provisions. The NBDS also links to administrative files of yearly covered earnings from 1951 to 1992, Medicare expenditures from 1984 to 1999, whether an SSI application has ever been made and payment status at five points in time, and dates of death as of spring 2001. For studies of health, the Medicare expenditure variables include inpatient hospital costs, outpatient hospital costs, home health care costs, and physicians'''' charges. The survey data cover functional capacity including ADLs and IADLs. For studies of work in retirement, the survey includes yearly information on extent of work, characteristics of the current or last job, and reasons for working or not working. No other data set has such detailed baseline survey data of a population immediately after retirement or disability, enhanced with subsequent measures over an extended period of time. The data are publicly available through NACDA and the Social Security Administration Website. * Dates of Study: 1982-1991 * Study Features: Longitudinal * Sample Size: ** 18,136 (NBS 1981) ** 12,677 (NBF 1991) Links: * 1982 (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/08510 * 1991 (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06118 | late adult human, employment, marital status, childbearing, household composition, health, income, asset, program knowledge, spouse, survey, demographic, government service, job history, occupation, public program, social security, welfare service, longitudinal, health care, interview, questionnaire, insurance coverage, financial resource, family support, non-institutionalized, beneficiary, death, economic, health care access, health care service, health expenditure, health insurance, health services utilization, health status, medical care, medicare, social support |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: National Archive of Computerized Data on Aging (NACDA) has parent organization: U.S. Social Security Administration |
Aging, Disabled | NIA ; U.S. Social Security Administration ; HCFA ; ASPE ; OASH ; AHCPR |
Public | nlx_152057 | SCR_013320 | New Beneficiary Data System (NBDS) | 2026-02-11 10:58:43 | 0 | |||||
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International Data Base Resource Report Resource Website 10+ mentions |
International Data Base (RRID:SCR_013139) | IDB | data or information resource, data set | A computerized data set of demographic, economic and social data for 227 countries of the world. Information presented includes population, health, nutrition, mortality, fertility, family planning and contraceptive use, literacy, housing, and economic activity data. Tabular data are broken down by such variables as age, sex, and urban/rural residence. Data are organized as a series of statistical tables identified by country and table number. Each record consists of the data values associated with a single row of a given table. There are 105 tables with data for 208 countries. The second file is a note file, containing text of notes associated with various tables. These notes provide information such as definitions of categories (i.e. urban/rural) and how various values were calculated. The IDB was created in the U.S. Census Bureau''s International Programs Center (IPC) to help IPC staff meet the needs of organizations that sponsor IPC research. The IDB provides quick access to specialized information, with emphasis on demographic measures, for individual countries or groups of countries. The IDB combines data from country sources (typically censuses and surveys) with IPC estimates and projections to provide information dating back as far as 1950 and as far ahead as 2050. Because the IDB is maintained as a research tool for IPC sponsor requirements, the amount of information available may vary by country. As funding and research activity permit, the IPC updates and expands the data base content. Types of data include: * Population by age and sex * Vital rates, infant mortality, and life tables * Fertility and child survivorship * Migration * Marital status * Family planning Data characteristics: * Temporal: Selected years, 1950present, projected demographic data to 2050. * Spatial: 227 countries and areas. * Resolution: National population, selected data by urban/rural * residence, selected data by age and sex. Sources of data include: * U.S. Census Bureau * International projects (e.g., the Demographic and Health Survey) * United Nations agencies Links: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/08490 | demographics, economic, social, population, health, nutrition, mortality, fertility, family planning, contraceptive use, literacy, housing, agriculture, birth control, birth rate, education, employment, ethnicity, fertility rate, gross national product, health care facility, household, housing, immigration, income, labor force, literacy, nutrition, occupation, migration, religion, unemployment, vital statistic, child, international |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: U.S. Census Bureau |
Aging, All | NIA | PMID:12267286 | Public | nlx_151837 | SCR_013139 | International Database | 2026-02-11 10:58:41 | 10 | ||||
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Stark Cross-Sectional Aging Resource Report Resource Website |
Stark Cross-Sectional Aging (RRID:SCR_014171) | data or information resource, data set | Behavioral and imaging data from about 120 participants aged 18-89. Data were collected as part of a grant to use high-resolution imaging and advanced behavioral tasks to understand how aging affects the hippocampus and how this is related to age-related cognitive decline. The full dataset includes traditional neuropsycholgical measures, hippocampal-specific behavioral measures, whole-brain DTI, high-resolution DTI of the medial temporal lobes, and structural MRI including segmentation of grey/white/CSF, of cortical regions and of hippocampal subfields. | data set, aging, hippocampus, behavioral, dti, mri, image |
uses: Neuroimaging Informatics Technology Initiative is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) has parent organization: University of California at Irvine; California; USA |
NIA R01 AG034613 | Available to the research community | SCR_014171 | 2026-02-11 10:58:52 | 0 | |||||||||
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Aging Status and Sense of Control (ASOC) Resource Report Resource Website |
Aging Status and Sense of Control (ASOC) (RRID:SCR_013500) | ASOC | data or information resource, data set | A dataset generated longitudinal study that aims to explain the relationship between age and changes in the sense of control over one''''s life, over two follow-up periods. The main hypotheses are (a) over a period of time, the sense of control declines by an amount that increases with age; (b) the change in sense of control reflects an underlying change in biosocial function, which accelerates with age; (c) higher social status slows the decline in the sense of control, possibly by preserving biosocial function; and (d) changes in biosocial function and in the sense of control have deviation-amplifying reciprocal effects that accelerate age-dependent changes in the sense of control. This was a three-wave panel survey with fixed 3-year intervals and repeated assessments of the same variables. Questionnaire topics focused on: physical health (subjective health; activities of daily living; height and weight; health conditions; expected personal longevity); health behavior (exercise, smoking, diet, alcohol use); use of medical services (medical insurance coverage, prescription drug use); work status (current employment status; title of current job or occupation and job description; types of work, tasks, or activities; description of work or daily activity and interactions; supervisory status; management position and level; work history); sense of controlextent of agreement or disagreement with planning and responsibility versus luck and bad breaks; sense of victimhood versus control; social support and participation; personal and household demographics; marital and family relations; socioeconomic status; history of adversity. * Dates of Study: 1994-2001 * Sample Size: 2,593 (Waves 1-2); 1.144 (Wave 3) * Study Features: Longitudinal Data Archives: http://www.sscnet.ucla.edu/issr/da/da_catalog/da_catalog_titleRecord.php?studynumber=I3334V1 | longitudinal, control, physical health, health behavior, late adult human, activities of daily living, disease, health services utilization, health status, life event, life satisfaction, mental health, physical fitness, self concept, social network, social status, survey data, telephone interview |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: National Archive of Computerized Data on Aging (NACDA) has parent organization: University of Texas at Austin; Texas; USA |
Aging | NIA RO1-AG12393 | Public: The first three waves of data are available at ICPSR. | nlx_151355 | SCR_013500 | Aging Status and Sense of Control, Aging Status Sense of Control (ASOC) | 2026-02-11 10:58:46 | 0 | |||||
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Longitudinal Studies of Aging Resource Report Resource Website |
Longitudinal Studies of Aging (RRID:SCR_013355) | LSOA, LSOAs | data or information resource, data set | A data set of a multicohort study of persons 70 years of age and over designed primarily to measure changes in the health, functional status, living arrangements, and health services utilization of two cohorts of Americans as they move into and through the oldest ages. The project is comprised of four surveys: * The 1984 Supplement on Aging (SOA) * The 1984-1990 Longitudinal Study of Aging (LSOA) * The 1994 Second Supplement on Aging (SOA II) * The 1994-2000 Second Longitudinal Study of Aging (LSOA II) The surveys, administered by the U.S. Census Bureau, provide a mechanism for monitoring the impact of proposed changes in Medicare and Medicaid and the accelerating shift toward managed care on the health status of the elderly and their patterns of health care utilization. SOA and SOA II were conducted as part of the in-person National Health Interview Survey (NHIS) of noninstitutionalized elderly people aged 55 years and over living in the United States in 1984, and at least 70 years of age in 1994, respectively. The 1984 SOA served as the baseline for the LSOA, which followed all persons who were 70 years of age and over in 1984 through three follow-up waves, conducted by telephone in 1986, 1988, and 1990. The SOA covered housing characteristics, family structure and living arrangements, relationships and social contracts, use of community services, occupation and retirement (income sources), health conditions and impairments, functional status, assistance with basic activities, utilization of health services, nursing home stays, and health opinions. Most of the questions from the SOA were repeated in the SOA II. Topics new to the SOA II included use of assistive devices and medical implants; health conditions and impairments; health behaviors; transportation; functional status, assistance with basic activities, unmet needs; utilization of health services; and nursing home stays. The major focus of the LSOA follow-up interviews was on functional status and changes that had occurred between interviews. Information was also collected on housing and living arrangements, contact with children, utilization of health services and nursing home stays, health insurance coverage, and income. LSOA II also included items on cognitive functioning, income and assets, family and childhood health, and more extensive health insurance information. The interview data are augmented by linkage to Medicare enrollment and utilization records, the National Death Index, and multiple cause-of-death records. Data Availability: Copies of the LSOA CD-ROMs are available through the NCHS or through ICPSR as Study number 8719. * Dates of Study: 1984-2000 * Study Features: Longitudinal * Sample Size: ** 1984: 16,148 (55+, SOA) ** 1984: 7,541(70+, LSOA) ** 1986: 5,151 (LSOA followup 1) ** 1988: 6,921 (LSOA followup 2) ** 1990: 5,978 (LSOA followup 3) ** 1994-6: 9,447 (LSOA II baseline) ** 1997-8: 7,998 (LSOA II wave 2) ** 1999-0: 6,465 (LSOA II wave 3) Link: * LSOA 1984-1990 ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/08719 | health, functional status, living arrangement, health services utilization, late adult human, american, longitudinal, assisted living, chronic disability, chronic illness, disability, health care, health care service, illness, independent living, medicare, mortality rate, supportive services, mortality, survey, behavior, interview, housing, demographic, social, economic, middle adult human |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: Nihon University Japanese Longitudinal Study of Aging has parent organization: Centers for Disease Control and Prevention |
Aging | National Center for Health Statistics ; NIA |
Public | nlx_151843 | SCR_013355 | LSOA - Longitudinal Studies of Aging, Longitudinal Studies of Aging (LSOAs) | 2026-02-11 10:58:45 | 0 | |||||
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Human Mortality Database Resource Report Resource Website 100+ mentions |
Human Mortality Database (RRID:SCR_002370) | HMD | data or information resource, data set | A database providing detailed mortality and population data to those interested in the history of human longevity. For each country, the database includes calculated death rates and life tables by age, time, and sex, along with all of the raw data (vital statistics, census counts, population estimates) used in computing these quantities. Data are presented in a variety of formats with regard to age groups and time periods. The main goal of the database is to document the longevity revolution of the modern era and to facilitate research into its causes and consequences. New data series is continually added to this collection. However, the database is limited by design to populations where death registration and census data are virtually complete, since this type of information is required for the uniform method used to reconstruct historical data series. As a result, the countries and areas included are relatively wealthy and for the most part highly industrialized. The database replaces an earlier NIA-funded project, known as the Berkeley Mortality Database. * Dates of Study: 1751-present * Study Features: Longitudinal, International * Sample Size: 37 countries or areas | age, birth, country, demography, health, public health, longevity, longitudinal, international, census data, vital statistics, mortality, population, census, death, FASEB list |
is listed by: re3data.org is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: Human Life-Table Database has parent organization: University of California at Berkeley; Berkeley; USA has parent organization: Max Planck Institute for Demographic Research; Mecklenburg-Vorpommern; Germany |
Aging | NIA R01 AG11552 | Free, Registration required, User agreement, Acknowledgement required | nif-0000-21197 | http://www.humanmortality.de/ | SCR_002370 | The Human Mortality Database | 2026-02-11 10:56:28 | 208 | ||||
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Longitudinal Employer-Household Dynamics Resource Report Resource Website |
Longitudinal Employer-Household Dynamics (RRID:SCR_000817) | LEHD | data or information resource, data set | A dataset that combines federal and state administrative data on employers and employees with core Census Bureau censuses and surveys, while protecting the confidentiality of people and firms that provide the data. This data infrastructure facilitates longitudinal research applications in both the household / individual and firm / establishment dimensions. The specific research is targeted at filling an important gap in the available data on older workers by providing information on the demand side of the labor market. These datasets comprise Title 13 protected data from the Current Population Surveys, Surveys of Income and Program Participation, Surveys of Program Dynamics, American Community Surveys, the Business Register, and Economic Censuses and Surveys. With few exceptions, states have partnered with the Census Bureau to share data. As of December 2008, Connecticut, Massachusetts, New Hampshire and Puerto Rico have not signed a partnership agreement, while a partnership with the Virgin Islands is pending. LEHD's second method of developing employer-employee data relations through the use of federal tax data has been completed. LEHD has produced summary tables on accessions, separation, job creation, destruction and earnings by age and sex of worker by industry and geographic area. The data files consist of longitudinal datasets on all firms in each participating state (quarterly data, 1991- 2003), with information on age, sex, turnover, and skill level of the workforce as well as standard information on employment, payroll, sales and location. These data can be accessed for all available states from the Project Website. Data Availability: Research conducted on the LEHD data and other products developed under this proposal at the Census Bureau takes place under a set of rules and limitations that are considerably more constraining than those prevailing in typical research environments. If state data are requested, the successful peer-reviewed proposals must also be approved by the participating state. If federal tax data are requested, the successful peer-reviewed proposals must also be approved by the Internal Revenue Service. Researchers using the LEHD data will be required to obtain Special Sworn Status from the Census Bureau and be subject to the same legal penalties as regular Census Bureau employees for disclosure of confidential information. Basic instructions on how to download the data files and restrictions can be found on the Project Website. * Dates of Study: 1991-present * Study Features: Longitudinal * Sample Size: 48 States or U.S. territories | longitudinal, late adult human, employee, employer, household, employment, survey, census | has parent organization: U.S. Census Bureau | Aging, All | NIA | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_151841 | SCR_000817 | Longitudinal Employer-Household Dynamics (LEHD) | 2026-02-11 10:56:07 | 0 | |||||
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Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE) Resource Report Resource Website |
Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE) (RRID:SCR_000813) | ACTIVE | data or information resource, data set | Data set from a randomized controlled trial of cognitive interventions designed to maintain functional independence in elders by improving basic mental abilities. Several features made ACTIVE unique in the field of cognitive interventions: (a) use of a multi-site, randomized, controlled, single-blind design; (b) intervention on a large, diverse sample; (c) use of common multi-site intervention protocols, (d) primary outcomes focused on long-term, cognitively demanding functioning as measured by performance-based tests of daily activities; and (e) an intent-to-treat analytical approach. The clinical trial ended with the second annual post-test in January 2002. A third annual post-test was completed in December 2003. The area population and recruitment strategies at the six field sites provided a study sample varying in racial, ethnic, gender, socioeconomic, and cognitive characteristics. At baseline, data were collected by telephone for eligibility screening, followed by three in-person assessment sessions, including two individual sessions and one group session, and a self-administered questionnaire. At post-tests, data were collected in-person in one individual session and one group session as well as by self-administered questionnaire. There were four major categories of measures: proximal outcomes (measures of cognitive abilities that were direct targets of training), primary outcomes (measures of everyday functioning, both self-report and performance), secondary outcomes (measures of health, mobility, quality of life, and service utilization), and covariates (chronic disease, physical characteristics, depressive symptoms, cognitive impairment, psychosocial variables, and demographics). Phase I of ACTIVE was a randomized controlled, single-blind trial utilizing a four-group design, including three treatment arms and a no-contact control group. Each treatment arm consisted of a 10-session intervention for one of three cognitive abilities memory, reasoning, and speed of processing. Testers were blind to participant treatment assignment. The design allowed for testing of both social contact effects (via the contact control group) and retest effects (via the no-contact control group) on outcomes. Booster training was provided in each treatment arm to a 60% random subsample prior to first annual post-test. Phase II of ACTIVE started in July, 2003 as a follow-up study focused on measuring the long-term impact of training effects on cognitive function and cognitively demanding everyday activities. The follow-up consisted of one assessment to include the Phase I post-test battery. This was completed in late 2004. | cognitive function, cognition, longitudinal, mental ability, reasoning, memory, speed of processing |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is listed by: National Archive of Computerized Data on Aging (NACDA) has parent organization: University of Alabama at Birmingham; Alabama; USA |
Late adult human, Aging | NIA AG014289; NIA AG023078 |
Public: Phase I data are available through ICPSR | nlx_149439 | SCR_000813 | ACTIVE Study, Advanced Cognitive Training for Independent and Vital Elderly | 2026-02-11 10:56:08 | 0 | |||||
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Resources for Enhancing Alzheimers Caregiver Health Resource Report Resource Website |
Resources for Enhancing Alzheimers Caregiver Health (RRID:SCR_003638) | REACH | data or information resource, data set | Data set from six research sites that examined the feasibility and outcomes of the most promising home and community-based intervention approaches for enhancing family caregiving for Alzheimers Disease (AD) and related disorders (ADRD). A unique feature is the examination of AD burdens and interventions in three ethnic groups (Caucasians, Hispanics, and African Americans). Caregiver/care recipient dyads are entered into the study using standardized eligibility criteria. The dyads are randomized at each intervention site using site-specific procedures. Standardized assessment batteries are administered at baseline, 6, 12, and 18 months. The five general types of REACH interventions are: Individual Information and Support strategies that increase caregivers' understanding of dementia and their particular caregiving situation; Group Support and Family Systems efforts that provide caregivers with multiple forms of social support; Psychoeducational and Skill-Based Training approaches that teach caregivers coping and behavioral management strategies; Home-Based Environmental interventions that modify the home environment's effect on the care recipient and support the caregiver; and Enhanced Technology Systems such as home-centered computer/telephone networks that are designed to reduce caregiver distress and isolation. REACH II was funded in 2001 to test a single multi-component intervention among family caregivers of persons with ADRD, building upon the findings of REACH. Recruitment for REACH II was completed in January 2004 with 642 participants entering the study across 5 participating sites. | longitudinal, minority, caucasian, hispanic, african american, intervention, caregiver, caregiver burden, emotional state, family, health services utilization, health status, home health care, mental disorder, mental health, late adult human, outreach program, psychological wellbeing, questionnaire, anxiety, caregiver health, health behavior, sociodemographic, medication |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: University of Pittsburgh; Pennsylvania; USA |
Aging, Alzheimer's disease, Alzheimer's related disorder, Dementia, Stress | NIA ; NINR |
nlx_157789 | http://www.edc.pitt/REACH | SCR_003638 | Resources for Enhancing Alzheimer's Caregiver Health (REACH), Resources for Enhancing Alzheimer's Caregiver Health | 2026-02-11 10:56:46 | 0 | |||||
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Piedmont Health Survey of the Elderly Resource Report Resource Website |
Piedmont Health Survey of the Elderly (RRID:SCR_006349) | PHSE | data or information resource, data set | Data set of a follow-up study (one of four Established Populations for Epidemiologic Studies of the Elderly - EPESE) that obtains information on four primary outcome variables (cognitive status, depression, functional status, and mortality) and four primary independent variables (social support, social class, social location, and chronic illness); and examines the relationships between social factors and chronic disease on the one hand and health outcomes on the other. This data set complements the other three sites providing a population which is both urban and rural and contains approximately equal numbers of black and white participants across a broad socioeconomic base. The Duke site was originally funded by the NIA Epidemiology, Demography and Biometry Program (EDBP) to complete seven waves of data collection (three in-person and four telephone interviews) in order to examine the health of a sample of 4,162 persons aged 65+, and factors that influence their health and use of health services. The cohort was originally interviewed in 1986/87 and followed annually for 6 years thereafter. The study design consisted of a random stratified household sample with an over-sampling of blacks. Questionnaire topics include the following: Demographics, Alcohol Use, Independence, Health condition, Cognition, Personal mastery, Health Service Utilization, Activity of daily living, Social Support, Hearing and Vision, Incontinence, Social Interaction, Weight and Height, Smoking, Religion, Nutrition, Life Satisfaction, Self Esteem, Sleep, Medications, Economic Status, Depression, Life Changes, Blood pressure. National Death Index files have been searched and death certificates obtained for the members of this study. Sample members have been matched with Medicare Part A files to obtain information on hospitalizations, and will be matched on Medicare Part B (outpatient) files. Data from the first wave of the survey is in the public domain and can be obtained from NACDA or from the National Archives, Center for Electronic Records in Washington, DC. * Dates of Study: 1996-1997 * Study Features: Longitudinal, Oversampling * Sample Size: 1986-1988: 4,162 Links: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/02744 * National Archives: http://www.archives.gov/research/electronic-records/ | late adult human, african-american, caucasian, interview, questionnaire, health, health service utilization, cognitive status, functional status, mortality, social support, social class, social location, chronic illness, social factor, chronic disease, health outcome, questionnaire, demographics, alcohol use, independence, health condition, cognition, personal mastery, activity of daily living, social support, hearing, vision, incontinence, social interaction, weight, height, smoking, religion, nutrition, life satisfaction, self esteem, sleep, medication, economic status, depression, life change, blood pressure, survey, chronic illness, disease, epidemiology, hospitalization, long term care, mortality rate, risk factor, death, clinical |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: Established Populations for Epidemiologic Studies of the Elderly has parent organization: Duke University School of Medicine; North Carolina; USA has parent organization: National Archive of Computerized Data on Aging (NACDA) |
Aging, All noninstitutionalized persons 65 years of age and older (at baseline, 1986-1987) in Durham, Warren, Vance, Granville, And Franklin counties in north central North Carolina | NIA 1-R01 AG12765 | Public: This product is distributed as a CD-ROM. | nlx_152068 | SCR_006349 | Piedmont Health Survey of the Elderly (PHSE) Ten-Year Follow-up of the North Carolina EPESE | 2026-02-11 10:57:18 | 0 |
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