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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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Resources for Enhancing Alzheimers Caregiver Health Resource Report Resource Website |
Resources for Enhancing Alzheimers Caregiver Health (RRID:SCR_003638) | REACH | data or information resource, data set | Data set from six research sites that examined the feasibility and outcomes of the most promising home and community-based intervention approaches for enhancing family caregiving for Alzheimers Disease (AD) and related disorders (ADRD). A unique feature is the examination of AD burdens and interventions in three ethnic groups (Caucasians, Hispanics, and African Americans). Caregiver/care recipient dyads are entered into the study using standardized eligibility criteria. The dyads are randomized at each intervention site using site-specific procedures. Standardized assessment batteries are administered at baseline, 6, 12, and 18 months. The five general types of REACH interventions are: Individual Information and Support strategies that increase caregivers' understanding of dementia and their particular caregiving situation; Group Support and Family Systems efforts that provide caregivers with multiple forms of social support; Psychoeducational and Skill-Based Training approaches that teach caregivers coping and behavioral management strategies; Home-Based Environmental interventions that modify the home environment's effect on the care recipient and support the caregiver; and Enhanced Technology Systems such as home-centered computer/telephone networks that are designed to reduce caregiver distress and isolation. REACH II was funded in 2001 to test a single multi-component intervention among family caregivers of persons with ADRD, building upon the findings of REACH. Recruitment for REACH II was completed in January 2004 with 642 participants entering the study across 5 participating sites. | longitudinal, minority, caucasian, hispanic, african american, intervention, caregiver, caregiver burden, emotional state, family, health services utilization, health status, home health care, mental disorder, mental health, late adult human, outreach program, psychological wellbeing, questionnaire, anxiety, caregiver health, health behavior, sociodemographic, medication |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: University of Pittsburgh; Pennsylvania; USA |
Aging, Alzheimer's disease, Alzheimer's related disorder, Dementia, Stress | NIA ; NINR |
nlx_157789 | http://www.edc.pitt/REACH | SCR_003638 | Resources for Enhancing Alzheimer's Caregiver Health (REACH), Resources for Enhancing Alzheimer's Caregiver Health | 2026-02-14 02:07:49 | 0 | |||||
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Piedmont Health Survey of the Elderly Resource Report Resource Website |
Piedmont Health Survey of the Elderly (RRID:SCR_006349) | PHSE | data or information resource, data set | Data set of a follow-up study (one of four Established Populations for Epidemiologic Studies of the Elderly - EPESE) that obtains information on four primary outcome variables (cognitive status, depression, functional status, and mortality) and four primary independent variables (social support, social class, social location, and chronic illness); and examines the relationships between social factors and chronic disease on the one hand and health outcomes on the other. This data set complements the other three sites providing a population which is both urban and rural and contains approximately equal numbers of black and white participants across a broad socioeconomic base. The Duke site was originally funded by the NIA Epidemiology, Demography and Biometry Program (EDBP) to complete seven waves of data collection (three in-person and four telephone interviews) in order to examine the health of a sample of 4,162 persons aged 65+, and factors that influence their health and use of health services. The cohort was originally interviewed in 1986/87 and followed annually for 6 years thereafter. The study design consisted of a random stratified household sample with an over-sampling of blacks. Questionnaire topics include the following: Demographics, Alcohol Use, Independence, Health condition, Cognition, Personal mastery, Health Service Utilization, Activity of daily living, Social Support, Hearing and Vision, Incontinence, Social Interaction, Weight and Height, Smoking, Religion, Nutrition, Life Satisfaction, Self Esteem, Sleep, Medications, Economic Status, Depression, Life Changes, Blood pressure. National Death Index files have been searched and death certificates obtained for the members of this study. Sample members have been matched with Medicare Part A files to obtain information on hospitalizations, and will be matched on Medicare Part B (outpatient) files. Data from the first wave of the survey is in the public domain and can be obtained from NACDA or from the National Archives, Center for Electronic Records in Washington, DC. * Dates of Study: 1996-1997 * Study Features: Longitudinal, Oversampling * Sample Size: 1986-1988: 4,162 Links: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/02744 * National Archives: http://www.archives.gov/research/electronic-records/ | late adult human, african-american, caucasian, interview, questionnaire, health, health service utilization, cognitive status, functional status, mortality, social support, social class, social location, chronic illness, social factor, chronic disease, health outcome, questionnaire, demographics, alcohol use, independence, health condition, cognition, personal mastery, activity of daily living, social support, hearing, vision, incontinence, social interaction, weight, height, smoking, religion, nutrition, life satisfaction, self esteem, sleep, medication, economic status, depression, life change, blood pressure, survey, chronic illness, disease, epidemiology, hospitalization, long term care, mortality rate, risk factor, death, clinical |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: Established Populations for Epidemiologic Studies of the Elderly has parent organization: Duke University School of Medicine; North Carolina; USA has parent organization: National Archive of Computerized Data on Aging (NACDA) |
Aging, All noninstitutionalized persons 65 years of age and older (at baseline, 1986-1987) in Durham, Warren, Vance, Granville, And Franklin counties in north central North Carolina | NIA 1-R01 AG12765 | Public: This product is distributed as a CD-ROM. | nlx_152068 | SCR_006349 | Piedmont Health Survey of the Elderly (PHSE) Ten-Year Follow-up of the North Carolina EPESE | 2026-02-14 02:07:22 | 0 | |||||
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English Longitudinal Study of Ageing Resource Report Resource Website 10+ mentions |
English Longitudinal Study of Ageing (RRID:SCR_006727) | ELSA | data or information resource, data set | An interdisciplinary data resource on health, economic position and quality of life as people age. Longitudinal multidisciplinary data from a representative sample of the English population aged 50 and older have been collected. Both objective and subjective data are collected relating to health and disability, biological markers of disease, economic circumstance, social participation, networks and well-being. Participants are surveyed every two years to see how people''s health, economic and social circumstances may change over time. One of the study''s aims is to determine the relationships between functioning and health, social networks, resources and economic position as people plan for, move into and progress beyond retirement. It is patterned after the Health and Retirement Study, a similar study based in the United States. ELSA''s method of data collection includes face-to-face interview with respondents aged 50+; self-completion; and clinical, physical, and performance measurements (e.g., timed walk). Wave 2 added questions about quality of health care, literacy, and household consumption, and a visit by a nurse to obtain anthropometric, blood pressure, and lung function measurements, as well as saliva and blood samples, and to record results from tests of balance and muscle strength. Another new aspect of Wave 2 is the ''Exit Interview'' carried out with proxy informants to collect data about respondents who have died since Wave 1. This interview includes questions about the respondents'' physical and psychological health, the care and support they received, their memory and mood in the last year of their life, and details of what has happened to their finances after their death. Wave 3 data added questions related to mortgages and pensions. The intention is to conduct interviews every 2 years, and to have a nurse visit every 4 years. It also is envisioned that the ELSA data will ultimately be linked to available administrative data, such as death registry data, a cancer register, NHS hospital episodes data, National Insurance contributions, benefits, and tax credit records. The survey data are designed to be used for the investigation of a broad set of topics relevant to understanding the aging process. These include: * health trajectories, disability and healthy life expectancy; * the determinants of economic position in older age; * the links between economic position, physical health, cognition and mental health; * the nature and timing of retirement and post-retirement labour market activity; * household and family structure, social networks and social supports; * patterns, determinants and consequences of social, civic and cultural participation; * predictors of well-being. Current funding for ELSA will extend the panel to 12 years of study, giving significant potential for longitudinal analyses to examine causal processes. * Dates of Study: 2002-2007 * Study Features: Longitudinal, International, Anthropometric Measures * Sample Size: ** 2000-2003 (Wave 1): 12,100 ** 2004-2005 (Wave 2): 9,433 ** 2006-2007 (Wave 3): 9,771 ** 2008-2009 (Wave 4): underway Links * Economic and Social Data Service (ESDS): http://www.esds.ac.uk/longitudinal/about/overview.asp * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/00139#scope-of-study | middle adult human, late adult human, adult human, biological marker, direct assessment, physical impairment, interview, clinical, physical, performance, health care, literacy, household consumption, anthropometric, blood pressure, lung function, measurement, saliva, blood, balance, muscle strength, psychological health, care, support, memory, mood, longitudinal, international, health, disability, economic circumstance, social participation, well-being, behavior, family life, health care, health status, household income, income, marriage, retirement, social network |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: University College London; London; United Kingdom |
Aging | NIA ; UK Department of Health ; UK Department of Social Security ; other UK government departments |
Public for the first 3 waves through the University of Essex Economic and Social Data Service (ESDS) website. Greater restrictions may apply for researchers seeking to access more sensitive data (e.g., Geographical classificatory variables and DNA). | nlx_151823 | SCR_006727 | English Longitudinal Study of Ageing (ELSA), ELSA - English Longitudinal Study of Ageing, English Longitudinal Study of Aging | 2026-02-14 02:07:23 | 16 | |||||
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NYU Institute for Pediatric Neuroscience Sample Resource Report Resource Website |
NYU Institute for Pediatric Neuroscience Sample (RRID:SCR_010458) | NYU IPN Sample, NYUIQ | data or information resource, data set | Datasets including a collection of scans from 49 psychiatrically evaluated neurotypical adults, ranging in age from 6 to 55 years old, with age, gender and intelligence quotient (IQ) information provided. Future releases will include more comprehensive phenotypic information, and child and adolescent datasets, as well as individuals from clinical populations. The following data are released for every participant: * At least one 6-minute resting state fMRI scan (R-fMRI) * * One high-resolution T1-weighted mprage, defaced to protect patient confidentiality * Two 64-direction diffusion tensor imaging scans * Demographic information (age, gender) and IQ-measures (Verbal, Performance, and Composite; Weschler Abbreviated Scale of Intelligence - WASI) * Most participants have 2 R-fMRI scans, collected less than 1 hour apart in the same scanning session. Rest_1 is always collected first. | adult human, young human, intelligence quotient, child, adolescent, clinical, resting state fmri, t1-weighted, mprage, diffusion tensor imaging, fsiq, viq, piq, neuroimaging, brain, image collection |
has parent organization: 1000 Functional Connectomes Project has parent organization: New York University; New York; USA |
Neurotypical, Aging | Autism Speaks ; Stavros Niarchos Foundation ; Leon Levy Foundation ; Phyllis Green and Randolph Cwen ; NIMH R01MH083246 |
Creative Commons Attribution-NonCommercial License | nlx_157644 | SCR_010458 | NYU Phyllis Green and Randolph Cwen Institute for Pediatric Neuroscience Sample | 2026-02-14 02:08:15 | 0 | |||||
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Public Use Microdata Sample for the Older Population Resource Report Resource Website |
Public Use Microdata Sample for the Older Population (RRID:SCR_010487) | PUMS-O | data or information resource, data set | A public-use microdata sample focusing on the older population created from the 1990 census. This sample consists of 3 percent of households with at least one member aged 60 or older. Although, the highest age presented is age 90, this allows analysis of data on the very old for most states with a reasonable degree of reliability. Since data for all members in households containing a person 60 years and over will be on the file, users will be able to analyze patterns such as living arrangements and sources of household income from which older members may benefit. Additionally, users will be able to augment the PUMS-O sample with a PUMS file. The Census Bureau has issued two regular PUMS files for the entire population. One PUMS file will contain 1 percent of all households; the other PUMS file will contain 5 percent of all households. Both files have most sample data items, and differ only in geographical composition. The 1-percent file contains geographic areas that reflect metropolitan vs. non-metropolitan areas. The 5-percent file shows counties or groups of counties as well as large sub-county areas such as places of 100,000 or more. The geography on the 5-percent PUMS file matches that of the PUMS-O file. Since data for different households are present on the two files, users can merge the PUMS-O file with the 5-percent PUMS to construct an 8-percent sample. However, weighted averages must be constructed for any estimates created because each sample yields state-level estimates. Thus, it is possible to analyze substate areas even for the very old. In states where the geographic areas identified on the PUMS-O and the 5-percent PUMS are coterminous with State Planning and Service Areas (used by service providers in relation to the Older Americans Act), the Planning and Service Areas are identified. * Dates of Study: 1990-2000 Links: 1980: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/08101 2000: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/04204 | late adult human |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: U.S. Census Bureau |
Aging | U.S. Census Bureau ; Administration on Aging |
Public, Computer tape, CD-ROM, Customer Services, Bureau of the Census, (301) 457-4100 | nlx_157768 | SCR_010487 | Public Use Microdata Sample: 3-Percent Elderly Sample, Public Use Microdata Sample: Elderly Households Extract | 2026-02-14 02:07:36 | 0 | |||||
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Scripps Wellderly Genome Reference Resource Report Resource Website |
Scripps Wellderly Genome Reference (RRID:SCR_010250) | SWGR | data or information resource, data set | Whole genome sequencing data for 454 unrelated Scripps Wellderly Study participants with European ancestry from a project that is studying the genetic architecture of exceptional healthspan from a cohort comprised of more than 1300 healthy individuals over the age of 80 years. SWGR_v1.0 includes chromosome-specific VCF4.1 bgzipped and tabix indexed files. Annotations for each variant can be found at Scripps Genome ADVISER (SG-ADVISER, http://genomics.scripps.edu/) Additional data releases are expected. | genomics, genomic sequence, genome, female, male, late adult human | has parent organization: Scripps Translational Science Institute | Healthy aging, Aging, Healthy | Scripps Health; California; USA ; NCATS ScienceUL1 TR00114 |
Free, Public, Acknowledgement required | nlx_156888 | SCR_010250 | 2026-02-14 02:08:15 | 0 | ||||||
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COBRE Resource Report Resource Website 100+ mentions |
COBRE (RRID:SCR_010482) | COBRE | data or information resource, data set | Data set of raw anatomical and functional MR data from 72 patients with Schizophrenia and 75 healthy controls (ages ranging from 18 to 65 in each group). All subjects were screened and excluded if they had: history of neurological disorder, history of mental retardation, history of severe head trauma with more than 5 minutes loss of consciousness, history of substance abuse or dependence within the last 12 months. Diagnostic information was collected using the Structured Clinical Interview used for DSM Disorders (SCID). A multi-echo MPRAGE (MEMPR) sequence was used with the following parameters: TR/TE/TI = 2530/(1.64, 3.5, 5.36, 7.22, 9.08)/900 ms, flip angle = 7��, FOV = 256x256 mm, Slab thickness = 176 mm, Matrix = 256x256x176, Voxel size =1x1x1 mm, Number of echos = 5, Pixel bandwidth =650 Hz, Total scan time = 6 min. With 5 echoes, the TR, TI and time to encode partitions for the MEMPR are similar to that of a conventional MPRAGE, resulting in similar GM/WM/CSF contrast. Rest data was collected with single-shot full k-space echo-planar imaging (EPI) with ramp sampling correction using the intercomissural line (AC-PC) as a reference (TR: 2 s, TE: 29 ms, matrix size: 64x64, 32 slices, voxel size: 3x3x4 mm3). Slice Acquisition Order: Rest scan - collected in the Axial plane - series ascending - multi slice mode - interleaved MPRAGE - collected in the Sag plane - series interleaved - multi slice mode - single shot The following data are released for every participant: * Resting fMRI * Anatomical MRI * Phenotypic data for every participant including: gender, age, handedness and diagnostic information. | resting fmri, anatomical mri, phenotype, gender, age, handedness, diagnosis, adult human, fmri, mri, neuroimaging, mental state assessment, clinical |
is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) has parent organization: Mind Research Network has parent organization: 1000 Functional Connectomes Project has parent organization: NeuroImaging Tools and Resources Collaboratory (NITRC) |
Schizophrenia, Normal control, Aging | NCRR 1P20RR021938-01A2 | Creative Commons Attribution-NonCommercial License, Account required | nlx_157762 | SCR_010482 | Center for Biomedical Research Excellence, Center for Biomedical Research Excellence (COBRE) | 2026-02-14 02:07:42 | 108 | |||||
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Precursors of Premature Disease and Death Resource Report Resource Website |
Precursors of Premature Disease and Death (RRID:SCR_010483) | Precursors of Premature Disease and Death | data or information resource, data set | Data set of annual questionnaires of a long-term prospective study of 1,337 former Johns Hopkins University medical students to identify precursors of premature cardiovascular disease and hypertension. The purpose of the study has broadened, however, as the cohort has aged. The study has been funded for 15 years. Participants were an average of 22 years of age at entry and have been followed to an average age of 69 years. Data are collected through annual questionnaires, supplemented with phone calls and substudies. Self-reports of diseases and risk factors have been validated. Every year from 1988 to 2003, anywhere from 2 to 6 questionnaires have been administered, in categories such as the following, which repeat periodically: Morbidity, Supplemental Illness, Health Behavior, Family and Career, Retirement, Job Satisfaction, Blood Pressure and Weight, Medications, Work Environment, Social Network, Diabetes, Osteoarthritis, Health Locus of Control, Preventive Health Services, General Health, Functional Limitations, Memory Functioning, Smoking, Religious Beliefs and Practices, Links with Administrative Data, National Death Index searches for all nonrespondents * Dates of Study: 1946-2003 * Study Features: Longitudinal * Sample Size: 1,337 (1946) | questionnaire, longitudinal, precursor, morbidity, illness, health, behavior, family, career, retirement, job satisfaction, blood pressure, weight, medication, work environment, social network, preventive health services, functional limitation, memory, smoking, religion, death, adult human, early adult human, middle adult human, late adult human |
is related to: National Archive of Computerized Data on Aging (NACDA) has parent organization: Johns Hopkins University School of Medicine; Baltimore, Maryland; USA |
Aging, Cardiovascular disease, Hypertension, Diabetes, Osteoarthritis | NIA | nlx_157767 | SCR_010483 | 2026-02-14 02:08:19 | 0 | |||||||
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Mayo Clinic Biobank Resource Report Resource Website |
Mayo Clinic Biobank (RRID:SCR_010723) | Mayo Clinic Biobank | biomaterial supply resource, material resource | A collection of blood samples and health information donated by volunteers, not focusing on any specific disease. Unlike many biobanks already in existence at Mayo Clinic and elsewhere, the Mayo Clinic Biobank is NOT focused on any particular disease. Rather, this biobank will collect samples and health information on patients and volunteers regardless of their health history. The only requirement is that they be 18 years of age or older, have a Mayo Clinic number, and be able to give informed consent. Once a participant becomes a part of the Biobank, they will be a part of ongoing health research conducted at Mayo Clinic indefinitely. The Biobank was established at Mayo Clinic, Rochester, and recruitment began in April of 2009. The goal of this project is to enroll 20,000 Mayo Clinic patients over the course of a three-year period in an effort to support a wide array of health-related research studies throughout the Institution. | blood, clinical data |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Mayo Clinic Minnesota; Minnesota; USA |
All 18 years of age or older, Aging | nlx_91152 | SCR_010723 | 2026-02-14 02:07:10 | 0 | ||||||||
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Lifelines Biobank Resource Report Resource Website 10+ mentions |
Lifelines Biobank (RRID:SCR_010730) | Lifelines Biobank | biomaterial supply resource, material resource | Overall aim of the LifeLines Study is to unravel the interaction between genetic and environmental factors in the development of multifactorial diseases, their concurrent development in individuals and their complications as a complex trait. The LifeLines database contains questionnaire data, physical measurements and biological samples from different health examinations. Collaboration is encouraged as it helps to maximize the scientific value of the wealth of epidemiologic data made possible by the participation of more than 165,000 individuals in the LifeLines Cohort Study. Primary objectives of the LifeLines Cohort Study are: a. Which are the disease overriding risk factors which predict the development of a multifactorial disease during lifetime? b. How are these universal risk factors modified, or what determines the effect of a universal risk factor in an individual? Specific research questions will focus on risk factors and modifiers (genetic, environmental and combined or complex factors) for single and multiple diseases. In addition to co-morbidity, LifeLines focuses on co-determinants. The primary endpoints include measures of aging, metabolic and endocrine diseases, cardiovascular and renal diseases, pulmonary and musculoskeletal diseases, and psychopathology. Secondary aims include the assessment of the prevalence and incidence of multifactorial diseases, their risk factors and their treatment in individuals as well as in families. The burden of disease for the society will be quantified in terms of care needed, and total costs of care. Until November 3, 2011, almost 68,000 subjects have been included in the study. The 60,000th participant was screened in the beginning of September 2011. Recruitment rate at present is between 700 and 800 subjects per week. The laboratory measurements which are performed has changed. As of October 2011, LifeLines will continue to measure: hematologic parameters, including hemoglobin, white blood cells, platelets, WBC differentiation, blood glucose, cholesterol, HDL-cholesterol, triglycerides, serum creatinin and sodium/potassium. Liver enzymes, thyroid hormones, calcium, phosphate, albumin, uric acid and microalbuminuria will not be measured routinely. The samples that are available for almost all participants, are: # serum (taken either with or without gel separator) # EDTA plasma # citrate plasma # DNA # early morning urine sample # urine samples of 24-hour urine collection Any researcher who is member of an internationally recognized academic institution and who is interested in utilizing the research possibilities, data and materials of LifeLines may apply for access. The applicant who is acting as Principal Investigator must be connected to a department or institution with the competence to carry out the research project to term. A contract will give the right to use the data for a pre-determined period of time. This contract also comprises the costs for the LifeLines Biobank which the investigator needs to reimburse. To apply for access, refer to the electronic application process. | blood, urine, plasma, serum, dna, edta plasma, citrate plasma, general population, clinical data, epidemiologic data, genetic factor, environmental factor, complex factor, multifactorial disease, risk factor, metabolic disease, endocrine disease, cardiovascular disease, renal disease, pulmonary disease, musculoskeletal disease, psychopathology, disease, nutrition, lifestyle, genetic epidemiology | is listed by: One Mind Biospecimen Bank Listing | General population, Aging | Public: Any researcher who is member of an internationally recognized academic institution and who is interested in utilizing the research possibilities, Data and materials of LifeLines may apply for access. A LifeLines Scientific Project is a project which uses data or results of biological examinations and measurements in materials from LifeLines (when both are used, The term LifeLines materials will be used). | nlx_93394 | SCR_010730 | LifeLines Cohort and Biobank, LifeLines Cohort Biobank, LifeLines Cohort & Biobank | 2026-02-14 02:07:21 | 29 | ||||||
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Oregon Brain Bank Resource Report Resource Website |
Oregon Brain Bank (RRID:SCR_013085) | biomaterial supply resource, material resource | Brain bank that harvests, banks and disperses postmortem tissue for use in brain and medical research. It also provides neuropathologic diagnoses of organic dementia in a cohort of NIH sponsored research subjects. The bank includes tissue primarily from patients with Alzheimer's but also includes Huntington's, Parkinson's, and other disorders. | neurodegenerative research, postmortem, tissue, neurodegenerative, neurodegenerative disease, alzheimer's disease, huntington's disease, parkinson's disease, amyotrophic lateral sclerosis, multiple sclerosis, control, tissue, brain tissue, left hemisphere, right hemisphere, white matter, deep gray structure, brainstem, cerebellum, spinal cord, late adult human, flash frozen, formalin-fixed, stained, brain bank, research, medical |
is listed by: One Mind Biospecimen Bank Listing is related to: Layton Center Clinical Data Resources has parent organization: Oregon Health and Science University; Oregon; USA |
Alzheimer's disease, Huntington's disease, Parkinson's disease, Amyotrophic Lateral Sclerosis, Multiple Sclerosis, Dementia, Neurodegenerative disease, Aging | According to established protocols, For use in neurodegenerative research | nlx_35532 | SCR_013085 | Oregon Brain Bank: Human tissue repository for neurodegenerative research studies | 2026-02-14 02:06:54 | 0 | |||||||
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Brain Health Registry Resource Report Resource Website 10+ mentions |
Brain Health Registry (RRID:SCR_010230) | Brain Health Registry | patient registry, people resource | A website aimed at recruiting and assessing subjects for all types of neuroscience studies with the internet. The hope is to accelerate various types of observational studies and clinical trials, and also reduce costs. They are interested in having people, including healthy subjects of all ages, join the registry. Joining only takes a few minutes. The web-based project is designed to speed up cures for Alzheimer's, Parkinson's and other brain disorders. It uses online questionnaires and online neuropsychological tests (which are very much like online brain games). | questionnaire, brain test, brain, health, neuropsycholgoical test, game, clinical trial | has parent organization: University of California at San Francisco; California; USA | Alzheimer's disease, Parkinson's disease, Depressive Disorder, Traumatic brain injury, Brain disorder, Post-Traumatic Stress Disorder, Aging | Free, The community can contribute to this resource | nlx_156798 | SCR_010230 | 2026-02-14 02:06:52 | 11 | |||||||
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ALSA - The Australian Longitudinal Study of Ageing Resource Report Resource Website |
ALSA - The Australian Longitudinal Study of Ageing (RRID:SCR_013146) | ALSA | biomaterial supply resource, material resource | The general purpose of ALSA is to examine how social, biomedical, psychological, economic, and environmental factors are associated with age-related changes in the health and wellbeing of persons aged 70 years and older. The aim is to analyze the complex relationships between individual and social factors and changes in health status, health care needs and service utilization dimensions, with emphasis given to the effects of social and economic factors on morbidity, disability, acute and long-term care service use, and mortality. The study was designed to have common instrumentation with US studies. ALSA collected data from a random, stratified sample of all persons (both community and institution-dwelling) aged 70 years and older living in the metropolitan area of Adelaide, South Australia, using the State Electoral Database as the sampling frame. Spouses aged 65 and older and other household members aged 70 years and older also were invited to participate. The initial baseline data collection for ALSA began in September 1992 and was completed in March 1993. In the first wave, personal interviews were carried out for 2,087 participants, including 566 couples (that is, persons 70 years of age and over and their spouse, if 65 and over). Clinical assessments were obtained for 1,620 of the participants. Respondents were recontacted by telephone a year after initial interview (wave 2). The third wave of the study began in September 1994 and involved a complete reassessment, with a total of 1,679 interviews and 1,423 clinical assessments. To date, eleven waves of data have been collected, with the latest collection in May 2010, from 168 participants. Six of these waves were conducted via face-to-face interviews and clinical assessments, and five were telephone interviews. Future waves are planned, however are dependent on grant funding. Ancillary data collection has been ongoing since the initiation of the study, e.g., from secondary providers. Lists of ALSA participants are compared biannually with the agencies'' lists to determine the prevalence and incidence of receipt of services from these organizations. Another source of information has been the collection of data from the participants'' general practitioners about the respondent''s health status, history of services received, medication use, referrals to specialists, and current services provided. Baseline Sample Size: 2087 Dates of Study: 1992����������2010 (potentially ongoing) Study Features: * Longitudinal * International * Anthropometric Measures * Biospecimens Waves 1-5 (ICPSR), http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06707 Wave 6 (ICPSR), http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/03679 | has parent organization: Flinders University; Adelaide; Australia | Aging | Office for the Ageing ; ECH Inc ; Premier Science Research Fund ; National Health and Medical Research Council Australia ID22922; Australian Research Council Discovery Projects DP0879152; NIA AG08523 |
Public: The ALSA study welcomes requests from people for access to the data. Requests for data must be in writing, Using the ALSA Study Data Request Form (DOC 56KB). Data are archived at ICPSR. | nlx_149436 | SCR_013146 | Australian Longitudinal Study of Ageing, Australian Longitudinal Study of Aging (ALSA), Australian Longitudinal Study of Aging, ALSA - The Australian Longitudinal Study of Aging, Australian Longitudinal Study of Ageing (ALSA) | 2026-02-14 02:06:54 | 0 | ||||||
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Tubingen Ageing and Tumour Immunology Group Resource Report Resource Website |
Tubingen Ageing and Tumour Immunology Group (RRID:SCR_012627) | TATI | access service resource, service resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on April 19,2024. TATI is located at the Center for Medical Research (Zentrum fuer Medizinische Forschung, ZMF) within the University of Tuebingen Clinical School (Universitaetsklinikum Tuebingen) . We are engaged in immune monitoring (cancer immunotherapy, vaccination of elderly, Alzheimer) using 14-colour flow cytometry. |
is listed by: ScienceExchange has parent organization: University of Tubingen; Tubingen; Germany |
Aging | THIS RESOURCE IS NO LONGER IN SERVICE | SciEx_576 | SCR_012627 | , Tubingen Ageing and Tumour Immunology Group (TATI) | 2026-02-14 02:07:48 | 0 | |||||||
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Babraham Institute Enterprise Limited Resource Report Resource Website 1+ mentions |
Babraham Institute Enterprise Limited (RRID:SCR_012566) | BIE, BCS | core facility, access service resource, service resource | Babraham Institute Enterprise Limited (BIE) is the wholly-owned trading arm of the Babraham Institute. The Babraham Institute undertakes innovative life-sciences research to discover the molecular mechanisms that underlie normal cellular processes and functions, with the aim of improving lifelong wellbeing and healthy ageing. | bioinformatics, flow cytometry, lipidomics |
is listed by: ScienceExchange is related to: Babraham Institute Labs and Facilities has parent organization: Babraham Institute has parent organization: University of Cambridge; Cambridge; United Kingdom |
Aging | Available to external user | SciEx_4848 | https://www.babraham.ac.uk/ | SCR_012566 | Babraham Commercialisation Services Limited, Babraham Institute Enterprise Ltd | 2026-02-14 02:07:47 | 2 | |||||
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New Beneficiary Data System Resource Report Resource Website |
New Beneficiary Data System (RRID:SCR_013320) | NBDS | data or information resource, data set | Data set of extensive information on the changing circumstances of aged and disabled beneficiaries - Living, noninstitutionalized population of the continental United States from the Social Security Administration''''s Master Benefit Record who were new recipients of Social Security benefits (first payment in mid-1980 through mid-1981) or who had established entitlement to Medicare and were eligible for, but had not received, Social Security benefits as of July 1982. Based initially on a national cross-sectional survey of new beneficiaries in 1982, the original data base was expanded with information from administrative records and a second round of interviews in 1991. Variables measured in the original New Beneficiary Survey (NBS) include demographic characteristics; employment, marital, and childbearing histories; household composition; health; income and assets; program knowledge; and information about the spouses of married respondents. The 1991 New Beneficiary Follow-up (NBF) updated marital status, household composition, and the economic profile and contains additional sections on family contacts, postretirement employment, effects of widowhood and divorce, major reasons for changes in economic status, a more extensive section on health, and information on household moves and reasons for moving. Disabled-worker beneficiaries were also asked about their efforts to return to work, experiences with rehabilitation services, and knowledge of SSA work incentive provisions. The NBDS also links to administrative files of yearly covered earnings from 1951 to 1992, Medicare expenditures from 1984 to 1999, whether an SSI application has ever been made and payment status at five points in time, and dates of death as of spring 2001. For studies of health, the Medicare expenditure variables include inpatient hospital costs, outpatient hospital costs, home health care costs, and physicians'''' charges. The survey data cover functional capacity including ADLs and IADLs. For studies of work in retirement, the survey includes yearly information on extent of work, characteristics of the current or last job, and reasons for working or not working. No other data set has such detailed baseline survey data of a population immediately after retirement or disability, enhanced with subsequent measures over an extended period of time. The data are publicly available through NACDA and the Social Security Administration Website. * Dates of Study: 1982-1991 * Study Features: Longitudinal * Sample Size: ** 18,136 (NBS 1981) ** 12,677 (NBF 1991) Links: * 1982 (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/08510 * 1991 (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06118 | late adult human, employment, marital status, childbearing, household composition, health, income, asset, program knowledge, spouse, survey, demographic, government service, job history, occupation, public program, social security, welfare service, longitudinal, health care, interview, questionnaire, insurance coverage, financial resource, family support, non-institutionalized, beneficiary, death, economic, health care access, health care service, health expenditure, health insurance, health services utilization, health status, medical care, medicare, social support |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: National Archive of Computerized Data on Aging (NACDA) has parent organization: U.S. Social Security Administration |
Aging, Disabled | NIA ; U.S. Social Security Administration ; HCFA ; ASPE ; OASH ; AHCPR |
Public | nlx_152057 | SCR_013320 | New Beneficiary Data System (NBDS) | 2026-02-14 02:07:50 | 0 | |||||
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International Data Base Resource Report Resource Website 10+ mentions |
International Data Base (RRID:SCR_013139) | IDB | data or information resource, data set | A computerized data set of demographic, economic and social data for 227 countries of the world. Information presented includes population, health, nutrition, mortality, fertility, family planning and contraceptive use, literacy, housing, and economic activity data. Tabular data are broken down by such variables as age, sex, and urban/rural residence. Data are organized as a series of statistical tables identified by country and table number. Each record consists of the data values associated with a single row of a given table. There are 105 tables with data for 208 countries. The second file is a note file, containing text of notes associated with various tables. These notes provide information such as definitions of categories (i.e. urban/rural) and how various values were calculated. The IDB was created in the U.S. Census Bureau''s International Programs Center (IPC) to help IPC staff meet the needs of organizations that sponsor IPC research. The IDB provides quick access to specialized information, with emphasis on demographic measures, for individual countries or groups of countries. The IDB combines data from country sources (typically censuses and surveys) with IPC estimates and projections to provide information dating back as far as 1950 and as far ahead as 2050. Because the IDB is maintained as a research tool for IPC sponsor requirements, the amount of information available may vary by country. As funding and research activity permit, the IPC updates and expands the data base content. Types of data include: * Population by age and sex * Vital rates, infant mortality, and life tables * Fertility and child survivorship * Migration * Marital status * Family planning Data characteristics: * Temporal: Selected years, 1950present, projected demographic data to 2050. * Spatial: 227 countries and areas. * Resolution: National population, selected data by urban/rural * residence, selected data by age and sex. Sources of data include: * U.S. Census Bureau * International projects (e.g., the Demographic and Health Survey) * United Nations agencies Links: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/08490 | demographics, economic, social, population, health, nutrition, mortality, fertility, family planning, contraceptive use, literacy, housing, agriculture, birth control, birth rate, education, employment, ethnicity, fertility rate, gross national product, health care facility, household, housing, immigration, income, labor force, literacy, nutrition, occupation, migration, religion, unemployment, vital statistic, child, international |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: U.S. Census Bureau |
Aging, All | NIA | PMID:12267286 | Public | nlx_151837 | SCR_013139 | International Database | 2026-02-14 02:08:23 | 10 | ||||
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Aging Status and Sense of Control (ASOC) Resource Report Resource Website |
Aging Status and Sense of Control (ASOC) (RRID:SCR_013500) | ASOC | data or information resource, data set | A dataset generated longitudinal study that aims to explain the relationship between age and changes in the sense of control over one''''s life, over two follow-up periods. The main hypotheses are (a) over a period of time, the sense of control declines by an amount that increases with age; (b) the change in sense of control reflects an underlying change in biosocial function, which accelerates with age; (c) higher social status slows the decline in the sense of control, possibly by preserving biosocial function; and (d) changes in biosocial function and in the sense of control have deviation-amplifying reciprocal effects that accelerate age-dependent changes in the sense of control. This was a three-wave panel survey with fixed 3-year intervals and repeated assessments of the same variables. Questionnaire topics focused on: physical health (subjective health; activities of daily living; height and weight; health conditions; expected personal longevity); health behavior (exercise, smoking, diet, alcohol use); use of medical services (medical insurance coverage, prescription drug use); work status (current employment status; title of current job or occupation and job description; types of work, tasks, or activities; description of work or daily activity and interactions; supervisory status; management position and level; work history); sense of controlextent of agreement or disagreement with planning and responsibility versus luck and bad breaks; sense of victimhood versus control; social support and participation; personal and household demographics; marital and family relations; socioeconomic status; history of adversity. * Dates of Study: 1994-2001 * Sample Size: 2,593 (Waves 1-2); 1.144 (Wave 3) * Study Features: Longitudinal Data Archives: http://www.sscnet.ucla.edu/issr/da/da_catalog/da_catalog_titleRecord.php?studynumber=I3334V1 | longitudinal, control, physical health, health behavior, late adult human, activities of daily living, disease, health services utilization, health status, life event, life satisfaction, mental health, physical fitness, self concept, social network, social status, survey data, telephone interview |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: National Archive of Computerized Data on Aging (NACDA) has parent organization: University of Texas at Austin; Texas; USA |
Aging | NIA RO1-AG12393 | Public: The first three waves of data are available at ICPSR. | nlx_151355 | SCR_013500 | Aging Status and Sense of Control, Aging Status Sense of Control (ASOC) | 2026-02-14 02:07:56 | 0 | |||||
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Longitudinal Studies of Aging Resource Report Resource Website |
Longitudinal Studies of Aging (RRID:SCR_013355) | LSOA, LSOAs | data or information resource, data set | A data set of a multicohort study of persons 70 years of age and over designed primarily to measure changes in the health, functional status, living arrangements, and health services utilization of two cohorts of Americans as they move into and through the oldest ages. The project is comprised of four surveys: * The 1984 Supplement on Aging (SOA) * The 1984-1990 Longitudinal Study of Aging (LSOA) * The 1994 Second Supplement on Aging (SOA II) * The 1994-2000 Second Longitudinal Study of Aging (LSOA II) The surveys, administered by the U.S. Census Bureau, provide a mechanism for monitoring the impact of proposed changes in Medicare and Medicaid and the accelerating shift toward managed care on the health status of the elderly and their patterns of health care utilization. SOA and SOA II were conducted as part of the in-person National Health Interview Survey (NHIS) of noninstitutionalized elderly people aged 55 years and over living in the United States in 1984, and at least 70 years of age in 1994, respectively. The 1984 SOA served as the baseline for the LSOA, which followed all persons who were 70 years of age and over in 1984 through three follow-up waves, conducted by telephone in 1986, 1988, and 1990. The SOA covered housing characteristics, family structure and living arrangements, relationships and social contracts, use of community services, occupation and retirement (income sources), health conditions and impairments, functional status, assistance with basic activities, utilization of health services, nursing home stays, and health opinions. Most of the questions from the SOA were repeated in the SOA II. Topics new to the SOA II included use of assistive devices and medical implants; health conditions and impairments; health behaviors; transportation; functional status, assistance with basic activities, unmet needs; utilization of health services; and nursing home stays. The major focus of the LSOA follow-up interviews was on functional status and changes that had occurred between interviews. Information was also collected on housing and living arrangements, contact with children, utilization of health services and nursing home stays, health insurance coverage, and income. LSOA II also included items on cognitive functioning, income and assets, family and childhood health, and more extensive health insurance information. The interview data are augmented by linkage to Medicare enrollment and utilization records, the National Death Index, and multiple cause-of-death records. Data Availability: Copies of the LSOA CD-ROMs are available through the NCHS or through ICPSR as Study number 8719. * Dates of Study: 1984-2000 * Study Features: Longitudinal * Sample Size: ** 1984: 16,148 (55+, SOA) ** 1984: 7,541(70+, LSOA) ** 1986: 5,151 (LSOA followup 1) ** 1988: 6,921 (LSOA followup 2) ** 1990: 5,978 (LSOA followup 3) ** 1994-6: 9,447 (LSOA II baseline) ** 1997-8: 7,998 (LSOA II wave 2) ** 1999-0: 6,465 (LSOA II wave 3) Link: * LSOA 1984-1990 ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/08719 | health, functional status, living arrangement, health services utilization, late adult human, american, longitudinal, assisted living, chronic disability, chronic illness, disability, health care, health care service, illness, independent living, medicare, mortality rate, supportive services, mortality, survey, behavior, interview, housing, demographic, social, economic, middle adult human |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: Nihon University Japanese Longitudinal Study of Aging has parent organization: Centers for Disease Control and Prevention |
Aging | National Center for Health Statistics ; NIA |
Public | nlx_151843 | SCR_013355 | LSOA - Longitudinal Studies of Aging, Longitudinal Studies of Aging (LSOAs) | 2026-02-14 02:08:23 | 0 | |||||
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SenseLab Resource Report Resource Website 10+ mentions |
SenseLab (RRID:SCR_007276) | SenseLab | data or information resource, organization portal, portal, database | The SenseLab Project is a long-term effort to build integrated, multidisciplinary models of neurons and neural systems. It was founded in 1993 as part of the original Human Brain Project, which began the development of neuroinformatics tools in support of neuroscience research. It is now part of the Neuroscience Information Framework (NIF) and the International Neuroinformatics Coordinating Facility (INCF). The SenseLab project involves novel informatics approaches to constructing databases and database tools for collecting and analyzing neuroscience information, using the olfactory system as a model, with extension to other brain systems. SenseLab contains seven related databases that support experimental and theoretical research on the membrane properties: CellPropDB, NeuronDB, ModelDB, ORDB, OdorDB, OdorMapDB, BrainPharmA pilot Web portal that successfully integrates multidisciplinary neurocience data. | neuron, model, olfactory system, brain, disease, neuronal, olfactory |
is related to: Neuroscience Information Framework is related to: International Neuroinformatics Coordinating Facility has parent organization: Yale University; Connecticut; USA is parent organization of: SimToolDB |
Aging | Human Brain Project ; Multidisciplinary University Research Initiative ; NIMH ; NIA ; NICD ; NINDS ; NIDCD RO1 DC 009977 |
nif-0000-00017 | SCR_007276 | SenseLab Project, The SenseLab Project | 2026-02-14 02:05:23 | 41 |
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