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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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Vivli Resource Report Resource Website 1000+ mentions |
Vivli (RRID:SCR_018080) | nonprofit organization, service resource, data or information resource | Independent, non-profit organization that has developed global data-sharing and analytics platform to promote, coordinate, and facilitate scientific sharing and reuse of clinical research data through creation and implementation of sustainable global data-sharing enterprise. Our focus is on sharing individual participant-level data from completed clinical trials. Users can search listed studies, request data sets from data contributors, aggregate data, or share data of their own. Vivli (Center for Clinical Research Data) is launching a portal to share participant-level data from COVID trials. | Global data sharing, clinical research data, data, sharing, analytical platform, clinical trial, COVID-19-related trials |
is used by: NIH Heal Project is recommended by: NIDDK Information Network (dkNET) is listed by: Data and Computational Resources to Address COVID-19 is listed by: re3data.org is listed by: DataCite is listed by: FAIRsharing |
COVID-19 | Doris Duke Charitable Foundation ; Leona M. and Harry B. Helmsley Charitable Trust ; Lyda Hill Philanthropies ; Phrma |
Restricted | DOI:10.17616/R3SB9S, DOI:10.25504/FAIRsharing.uovQrT, DOI:10.25934, r3d100012823 | https://vivli.org/vivli-covid-19-portal-2/ https://doi.org/10.17616/R3SB9S https://doi.org/10.17616/r3sb9s https://doi.org/10.25934/ https://dx.doi.org/10.25934/ https://fairsharing.org/10.25504/FAIRsharing.uovQrT https://doi.org/10.17616/R3SB9S |
SCR_018080 | 2026-02-16 09:49:25 | 1532 | ||||||
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Common Metabolic Diseases Knowledge Portal Resource Report Resource Website 10+ mentions |
Common Metabolic Diseases Knowledge Portal (RRID:SCR_020937) | CMDKP | data repository, database, storage service resource, topical portal, portal, service resource, data or information resource, disease-related portal | Portal enables browsing, searching, and analysis of human genetic information linked to common metabolic diseases and traits, while protecting integrity and confidentiality of underlying data. Aggregates and analyzes genetic association results, epigenomic annotations, and results of computational prediction methods to provide data, visualizations, and tools in open access portal. | Analyzes genetic association results, aggregates genetic association results, epigenomic annotations, genetic data, epigenomic data |
is listed by: NIDDK Information Network (dkNET) is related to: Accelerating Medicines Partnership Type 2 Diabetes Knowledge Portal (AMP-T2D) is related to: Type 1 Diabetes Knowledge Portal is related to: Human Genetics Amplifier is related to: Common Metabolic Disease Genome Atlas |
Metabolic diseases, Type 1 diabetes, Type 2 diabetes, Cardiovascular disease, Cerebrovascular disease, Sleep disorder, Circadian disorder, Diabetes | Accelerating Medicines Partnership | Free, Available for download, Freely available | SCR_020937 | 2026-02-16 09:49:54 | 49 | |||||||
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PANC-DB Resource Report Resource Website 1+ mentions |
PANC-DB (RRID:SCR_021860) | database, data or information resource, topical portal, portal | Portal to make all Human Pancreas Analysis Program data available to anyone in research community and to interact with and connect scientific community. Stores clinical, molecular, cellular, immunology, imaging, and pathology data from pancreatic tissue and cell samples from organ donors with and without type 1 or type 2 diabetes. | HIRN, HPAP, Human Pancreas Analysis Program, |
is listed by: NIDDK Information Network (dkNET) is related to: Human Islet Research Network (HIRN) |
Free, Freely available | SCR_021860 | 2026-02-16 09:50:07 | 1 | ||||||||||
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Type 1 Diabetes Genetics Consortium Resource Report Resource Website 1+ mentions |
Type 1 Diabetes Genetics Consortium (RRID:SCR_001557) | T1DGC | research forum portal, resource, topical portal, portal, data or information resource, disease-related portal | Data and biological samples were collected by this consortium organizing international efforts to identify genes that determine an individual risk of type 1 diabetes. It originally focused on recruiting families with at least two siblings (brothers and/or sisters) who have type 1 diabetes (affected sibling pair or ASP families). The T1DGC completed enrollment for these families in August 2009. They completed enrollment of trios (father, mother, and a child with type 1 diabetes), as well as cases (people with type 1 diabetes) and controls (people with no history of type 1 diabetes) from populations with a low prevalence of this disease in January 2010. T1DGC Data and Samples: Phenotypic and genotypic data as well as biological samples (DNA, serum and plasma) for T1DGC participants have been deposited in the NIDDKCentral Repositories for future research. | gene, genetics, genotyping, analytic, dna, serum, plasma, data set, biomaterial supply resource, phenotypic, genotypic, autoantibody, hla, phenotype, genotype |
is listed by: One Mind Biospecimen Bank Listing is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Central Repository |
Type 1 diabetes, Diabetes | NIDDK ; NIAID ; NHGRI ; JDRF |
PMID:17130525 | Free, Freely available | nlx_152867 | SCR_001557 | Type 1 Diabetes Genetics Consortium (T1DGC) | 2026-02-16 09:45:31 | 2 | ||||
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Intestinal Stem Cell Consortium Resource Report Resource Website 10+ mentions |
Intestinal Stem Cell Consortium (RRID:SCR_001555) | ISCC | organization portal, data or information resource, consortium, portal | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 23,2022. Consortium to advance the understanding of intestinal epithelial stem cell biology during development, homeostasis, regeneration and disease. Its immediate goals are to isolate, characterize, culture and validate populations of intestinal stem cells; answer major questions in stem cell biology of the intestinal epithelium; and accelerate research by making information and resources available to the research community. Resources include data sets, protocols, and a resource catalog. Long-term goals include: 1) laying the ground work for therapeutic manipulation of the intestinal epithelium 2) contributing to the greater understanding of stem cell biology through knowledge of the intestine as a model stem cell-driven system. Research Projects are housed at 8 institutions across the nation: Oregon Health & Science University, Stanford University, Stowers Institute for Medical Research, University of California, Los Angeles School of Medicine (UCLA) (partnered with the VA Greater Los Angeles), University of North Carolina, Chapel Hill (UNC), University of Oklahoma, University of Pennsylvania, and University of Pittsburgh. | intestinal, epithelial stem cell, development, homeostasis, regeneration, disease, intestine, stem cell, intestinal stem cell, intestinal epithelium, stem cell, antibody, epithelium, data set |
is used by: NIF Data Federation is used by: NIDDK Information Network (dkNET) is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Research Resources |
NIDDK U01DK085532 | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_152862 | SCR_001555 | ISCC - Intestinal Stem Cell Consortium | 2026-02-16 09:45:31 | 19 | ||||||
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Nonalcoholic Steatohepatitis Clinical Research Network Resource Report Resource Website 10+ mentions |
Nonalcoholic Steatohepatitis Clinical Research Network (RRID:SCR_001519) | NASH CRN | research forum portal, clinical trial, resource, topical portal, portal, data or information resource, disease-related portal | Clinical research network to focus on the etiology, contributing factors, natural history, complications, and therapy of nonalcoholic steatohepatitis. They research the nature and underlying cause of Nonalcoholic Steatohepatitis (NASH) and conduct clinical studies on prevention and treatment. Approximately 1,500 pediatric and adult participants throughout the United States and Canada with nonalcoholic fatty liver disease (NAFLD) have enrolled into a database. The NASH CRN has recently reopened the database to enroll additional pediatric and adult participants with NAFLD. Serum, liver tissue, and genomic DNA samples are being collected and stored in the NIDDKrepository for ongoing as well as future studies. A three-arm randomized, placebo-controlled clinical trial of pioglitazone versus vitamin E completed enrollment in 2009. In addition to this adult trial, a similar trial in pediatric NASH patients randomized 180 children to receive treatment with vitamin E, metformin, or placebo. | prevention, treatment, pediatric, child, adult human, serum, liver tissue, dna, placebo, pioglitazone, vitamin e, metformin, etiology, contributing factor, natural history, complication, therapy, young human, database, clinical trial, bibliography, patient registry |
is listed by: One Mind Biospecimen Bank Listing is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Central Repository has parent organization: Johns Hopkins University; Maryland; USA |
Nonalcoholic steatohepatitis, Nonalcoholic fatty liver disease | NIDDK 1ZIADK075013 | Free, Freely available | nlx_152845 | https://www.nashcrn.com | SCR_001519 | Nonalcoholic Steatohepatitis Clinical Research Network (NASH CRN), Clinical Research Network in Nonalcoholic Steatohepatitis | 2026-02-16 09:45:30 | 21 | ||||
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TOMUS Resource Report Resource Website |
TOMUS (RRID:SCR_001549) | TOMUS | data or information resource, clinical trial, resource, bibliography | Study that compared the outcomes of two minimally invasive surgical procedures to treat stress urinary incontinence in women. These procedures are called mid-urethral slings. The procedures insert a mesh sling or hammock to support the bladder neck so that urine does not leak. Both procedures have been approved by the FDA and have been shown to be safe and successful in treating stress urinary incontinence. However, it is not known if one is better than the other. This study answers that question. The secondary aims of the trial are to compare other outcomes for the two surgical procedures, including quality of life, sexual function, satisfaction with treatment outcomes, complications, and the need for other treatments(s) after surgery. Follow-up will be a minimum of two years. Stress urinary incontinence is the accidental leakage of urine during activities such as coughing, laughing, sneezing, or lifting heavy objects. | surgical procedure, female, mid-urethral sling, treatment, outcome, quality of life, sexual function, complication, retropubic mid-urethral sling, transobturator mid-urethral sling, adult human |
is listed by: ClinicalTrials.gov is listed by: NIDDK Information Network (dkNET) has parent organization: Urinary Incontinence Treatment Network |
Stress urinary incontinence, Urinary incontinence | NIDDK U01DK060401; NIDDK U01DK060379; NIDDK U01DK060397; NIDDK U01DK058234; NIDDK U01DK060393; NIDDK U01DK058229; NIDDK U01DK058225 |
PMID:20479459 PMID:22378483 PMID:21422865 PMID:21925636 PMID:23635737 |
Free, Freely available | nlx_152859 | SCR_001549 | Trial Of Mid-Urethral Slings, TOMUS-Trial Of Mid-Urethral Slings | 2026-02-16 09:45:30 | 0 | ||||
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SISTEr Resource Report Resource Website 100+ mentions |
SISTEr (RRID:SCR_001542) | SISTEr | data set, data or information resource, clinical trial, resource | Clinical trial under the Urinary Incontinence Treatment Network to compare the treatment success for two surgical procedures that are frequently used and have similar cure rates, yet have not been compared directly to each other in a large, rigorously conducted randomized trial. The secondary aims of the trial are to compare other outcomes for the two surgical procedures, including quality of life, sexual function, satisfaction with treatment outcomes, complications, and need for other treatment(s) after surgery. Follow-up will be a minimum of two years and up to four years. | urinary, incontinence, dataset, surgical procedure, outcome, quality of life, sexual function, satisfaction, treatment, complication, burch procedure, sling procedure, female, surgery |
is listed by: NIDDK Information Network (dkNET) has parent organization: Urinary Incontinence Treatment Network |
Urinary incontinence, Stress, Stress urinary incontinence | NIDDK ; NICHD |
Free, Freely available | nlx_152852 | http://www.uitn.net/sister.asp | SCR_001542 | Stress Incontinence Surgical Treatment Efficacy Trial | 2026-02-16 09:45:30 | 151 | ||||
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Immune Tolerance Network (ITN) Resource Report Resource Website 10+ mentions |
Immune Tolerance Network (ITN) (RRID:SCR_001535) | ITN | funding resource, clinical trial, topical portal, portal, data or information resource | International clinical research consortium dedicated to the clinical evaluation of novel tolerogenic approaches for the treatment of autoimmune diseases, asthma and allergic diseases, and the prevention of graft rejection. They aim to advance the clinical application of immune tolerance by performing high quality clinical trials of emerging therapeutics integrated with mechanism-based research. In particular, they aim to: * Establish new tolerance therapeutics * Develop a better understanding of the mechanisms of immune function and disease pathogenesis * Identify new biomarkers of tolerance and disease Their goals are to identify and develop treatment game changers for tolerance modulating therapies for the treatment of immune mediated diseases and disabling conditions, and to conduct high quality, innovative clinical trials and mechanistic studies not likely to be funded by other sources or to be conducted by private industry that advance our understanding of immunological disorders. In the Immune Tolerance Network's (ITN) unique hybrid academic/industry model, the areas of academia, government and industry are integral to planning and conducting clinical studies. They develop and fund clinical trials and mechanistic studies in partnership. Their development model is a unique, interactive process. It capitalizes on their wide-ranging, multidisciplinary expertise provided by an advisory board of highly respected faculty from institutions worldwide. This model gives investigators special insight into developing high quality research studies. The ITN is comprised of leading scientific and medical faculty from more than 50 institutions in nine countries worldwide and employs over 80 full-time staff at the University of California San Francisco (UCSF), Bethesda, Maryland and Benaroya Research Institute in Seattle, Washington. | immune tolerance, prevent, cure, disease, multiple sclerosis, therapy, biomarker, transplant |
is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Research Resources is related to: Immune Tolerance Network TrialShare has parent organization: Benaroya Research Institute |
Type 1 diabetes, Diabetes, Allergy, Asthma, Autoimmune disease, Transplantation, Immunological disorder | NIAID N01AI15416 | nlx_152838 | SCR_001535 | 2026-02-16 09:45:30 | 14 | |||||||
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HALT-C Trial Resource Report Resource Website |
HALT-C Trial (RRID:SCR_001534) | HALT-C Trial, HALT-C | data or information resource, clinical trial, resource, bibliography | Multi-center, randomized controlled study designed to determine if continuing interferon long term over several years will suppress the Hepatitis C virus, prevent progression to cirrhosis, prevent liver cancer and reduce the need for liver transplantation. Patient enrollment began in 2000 and was completed in 2003 at 10 clinical centers, which were supported by a data coordinating center, virological testing center, and central sample repository. Patients with chronic hepatitis C and advanced fibrosis or cirrhosis on liver biopsy who failed to respond to a previous course of interferon alfa were enrolled in this study. Patients were initially treated with a 24-week course of peginterferon alfa-2a and ribavirin. Patients who remained hepatitis C virus RNA positive were then randomized to receive maintenance, low-dose peginterferon or to be followed on no treatment. Liver biopsies were done before enrollment and after 2 and 4 years of treatment or follow-up. The endpoints were development of cirrhosis, hepatic decompensation, hepatocellular carcinoma, death, or liver transplantation. 1050 patients were randomized and followed through the 4 year randomized phase of the trial and as long as 4 years off treatment. Serum samples collected at multiple time points, DNA and liver tissue are available for scientific investigation. | interferon, progression, cirrhosis, prevention, liver cancer, liver transplantation, liver, pegylated interferon, clinical, outcome, adult human, dna, liver tissue, serum, blood, b lymphoblastoid cell-line, epstein-barr virus infection in peripheral blood mononuclear cell, peripheral blood mononuclear cell, biomaterial supply resource, formalin fixed, histology, frozen, stained liver slide, unstained liver slide, advanced fibrosis, liver biopsy, peginterferon alfa-2a, ribavirin |
is listed by: One Mind Biospecimen Bank Listing is listed by: ClinicalTrials.gov is listed by: NIDDK Central Repository is listed by: NIDDK Research Resources is listed by: NIDDK Information Network (dkNET) |
Hepatitis C virus, Chronic hepatitis C | NIDDK | Free, Freely available | nlx_152835 | http://archives.niddk.nih.gov/haltctrial/displaypage.aspx?pagename=haltctrial/index.htm | http://www.haltctrial.org/ | SCR_001534 | Hepatitis C Antiviral Long-term Treatment against Cirrhosis, Hepatitis C Antiviral Long-term Treatment against Cirrhosis (HALT-C) Trial, Hepatitis C Antiviral Long-term Treatment against Cirrhosis Trial | 2026-02-16 09:45:31 | 0 | |||
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Biological Magnetic Resonance Data Bank (BMRB) Resource Report Resource Website 500+ mentions |
Biological Magnetic Resonance Data Bank (BMRB) (RRID:SCR_002296) | BioMagResBank, BMRB | data repository, database, storage service resource, service resource, data or information resource | Public depository that collects, annotates, archives, and disseminates important spectral and quantitative data derived from nuclear magnetic resonance spectroscopic investigations of biological macromolecules and metabolites. Provides reference information and maintains a collection of NMR pulse sequences and computer software for biomolecular NMR. | magnetic resonance, data bank, depository, database, data repository, spectral data, quantitative data, nmr, spectroscopy, macromolecule, metabolite, metabolomics, FASEB list |
is recommended by: NIDDK Information Network (dkNET) is recommended by: NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases is listed by: DataCite is listed by: 3DVC is listed by: re3data.org is related to: Worldwide Protein Data Bank (wwPDB) is related to: Research Collaboratory for Structural Bioinformatics Protein Data Bank (RCSB PDB) is related to: Nucleic Acid Database is related to: DNA DataBank of Japan (DDBJ) is related to: PDBe - Protein Data Bank in Europe is related to: NRG-CING is related to: Worldwide Protein Data Bank (wwPDB) is related to: PDBj - Protein Data Bank Japan is related to: CCPN Data Model has parent organization: University of Wisconsin-Madison; Wisconsin; USA is parent organization of: NMR Restraints Grid |
NLM LM05799 | PMID:18288446 PMID:17984079 PMID:12766409 PMID:36478084 |
Free, Freely available | nif-0000-21058 | SCR_002296 | BMRB, BioMagResBank, Biological Magnetic Resonance DataBank, BioMag Res Bank | 2026-02-16 09:45:47 | 752 | |||||
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Dataverse Network Project Resource Report Resource Website 10+ mentions |
Dataverse Network Project (RRID:SCR_001997) | Dataverse | project portal, data repository, database, storage service resource, catalog, portal, service resource, data or information resource | Project portal for publishing, citing, sharing and discovering research data. Software, protocols, and community connections for creating research data repositories that automate professional archival practices, guarantee long term preservation, and enable researchers to share, retain control of, and receive web visibility and formal academic citations for their data contributions. Researchers, data authors, publishers, data distributors, and affiliated institutions all receive appropriate credit. Hosts multiple dataverses. Each dataverse contains studies or collections of studies, and each study contains cataloging information that describes the data plus the actual data files and complementary files. Data related to social sciences, health, medicine, humanities or other sciences with an emphasis in human behavior are uploaded to the IQSS Dataverse Network (Harvard). You can create your own dataverse for free and start adding studies for your data files and complementary material (documents, software, etc). You may install your own Dataverse Network for your University or organization. | data, repository, collection, publishing, citing, sharing, discovering, research, community, connection |
is used by: UCSF DataShare is used by: Agri-environmental Research Data Repository is used by: NIH Heal Project is recommended by: NIDDK Information Network (dkNET) is recommended by: NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases is listed by: 3DVC is listed by: re3data.org is related to: PROMIS 2 MY Health has parent organization: Harvard University; Cambridge; United States is parent organization of: Universal Numerical Fingerprint is parent organization of: Agri-environmental Research Data Repository |
Alfred P. Sloan Foundation ; NSF ; Microsoft Research |
Free, Available for download, Freely available | r3d100010051, nif-0000-00316 | https://doi.org/10.17616/R3C880 | http://thedata.org/ | SCR_001997 | Harvard Dataverse, The Dataverse Project, Dataverse, Dataverse Network, Dataverse Network Project, Dataverse Project | 2026-02-16 09:45:38 | 12 | ||||
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TEDDY Resource Report Resource Website 1+ mentions |
TEDDY (RRID:SCR_000383) | TEDDY | organization portal, clinical trial, database, consortium, portal, data or information resource | International consortium of six centers assembled to participate in the development and implementation of studies to identify infectious agents, dietary factors, or other environmental agents, including psychosocial factors, that trigger type 1 diabetes in genetically susceptible people. The coordinating centers recruit and enroll subjects, obtaining informed consent from parents prior to or shortly after birth, genetic and other types of samples from neonates and parents, and prospectively following selected neonates throughout childhood or until development of islet autoimmunity or T1DM. The study tracks child diet, illnesses, allergies and other life experiences. A blood sample is taken from children every 3 months for 4 years. After 4 years, children will be seen every 6 months until the age of 15 years. Children are tested for 3 different autoantibodies. The study will compare the life experiences and blood and stool tests of the children who get autoantibodies and diabetes with some of those children who do not get autoantibodies or diabetes. In this way the study hopes to find the triggers of T1DM in children with higher risk genes. | consortium, gene, infectious agent, dietary factor, environmental factor, young human, insulin, child, pediatric, autoantibody, blood, stool, biomaterial supply resource, longitudinal, neonate, parent, genetic risk, genetic factor, observation, prospective, serum, plasma, peripheral blood mononuclear cell, saliva, nasal swab, nail clipping, water, dna, virus, nutrition, toxic agent, socioeconomic, psychosocial, male, female, environment, exposure, diet, toxin, infectious agent, bacterial, viral, immunization |
is listed by: One Mind Biospecimen Bank Listing is listed by: ClinicalTrials.gov is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Central Repository is related to: Teddy study IA prediction has parent organization: University of South Florida; Florida; USA |
Type 1 diabetes, Diabetes | NIDDK 2UC4DK063829 | PMID:21564455 | nlx_152857 | SCR_000383 | The Environmental Determinants of Diabetes in the Young, TEDDY study | 2026-02-16 09:45:15 | 3 | |||||
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Trans-Institute Angiogenesis Research Program Resource Report Resource Website |
Trans-Institute Angiogenesis Research Program (RRID:SCR_000384) | TARP | data or information resource, topical portal, resource, portal | Trans-NIH program encouraging and facilitating the study of the underlying mechanisms controlling blood vessel growth and development. Other aims include: to identify specific targets and to develop therapeutics against pathologic angiogenesis in order to reduce the morbidity due to abnormal blood vessel proliferation in a variety of disease states; to better understand the process of angiogenesis and vascularization to improve states of decreased vascularization; to encourage and facilitate the study of the processes of lymphangiogenesis; and to achieve these goals through a multidisciplinary approach, bringing together investigators with varied backgrounds and varied interests. | blood vessel, growth, development, target, therapeutic, vascularization, angiogenesis, lymphangiogenesis |
is listed by: NIDDK Information Network (dkNET) has parent organization: National Institutes of Health |
Angiogenesis, Lymphangiogenesis | JDRF ; NEI ; NHLBI ; NCI ; NICHD ; NIDDK ; NINDS |
THIS RESOURCE IS NO LONGER IN SERVICE | nlx_152866 | SCR_000384 | Trans-Institute Angiogenesis Research Program (TARP) | 2026-02-16 09:45:15 | 0 | |||||
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National Addiction and HIV Data Archive Program (NAHDAP) Resource Report Resource Website |
National Addiction and HIV Data Archive Program (NAHDAP) (RRID:SCR_000636) | NAHDAP | data repository, topical portal, storage service resource, portal, service resource, data or information resource, disease-related portal | Archive that acquires, preserves and disseminates data relevant to drug addiction and HIV research. Collection of data on drug addiction and HIV infection in United States. Most of datasets are raw data from surveys, interviews, and administrative records. They were originally gathered in research projects and for administrative purposes. Some datasets have been used in published studies. Bibliographies of these studies are available . Provides access to research data and technical assistance for data depositors. Provides e-workshops on data preparation and data systems. | drug addiction data, HIV infection data, |
uses: DataCite is used by: NIH Heal Project is recommended by: National Library of Medicine is recommended by: NIDDK Information Network (dkNET) is recommended by: NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases is listed by: re3data.org has parent organization: Inter-university Consortium for Political and Social Research (ICPSR) |
Addiction, Human immunodeficiency virus, HIV | NIDA ; Office of Behavioral and Social Sciences Research |
Restricted | nif-0000-06713, r3d100010261, DOI:10.3886 | https://doi.org/10.3886/ https://dx.doi.org/10.3886/ https://doi.org/10.17616/R3PK64 |
SCR_000636 | , National Addiction & HIV DATA Archive Program, National Addiction HIV Data Archive Program, National Addiction and HIV DATA Archive Program, NAHDAP, National Addiction and HIV DATA Archive Program (NAHDAP), National Addiction & HIV DATA Archive Program (NAHDAP), ICPSR/NAHDP | 2026-02-16 09:45:18 | 0 | ||||
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Type 1 Diabetes TrialNet Resource Report Resource Website 10+ mentions |
Type 1 Diabetes TrialNet (RRID:SCR_001508) | TrialNet | clinical trial, resource, database, topical portal, portal, data or information resource, disease-related portal | International network of researchers who are exploring ways to prevent, delay and reverse the progression of type 1 diabetes. It is conducting clinical trials with researchers from 18 Clinical Centers in the United States, Canada, Finland, United Kingdom, Italy, Germany, Australia and New Zealand. In addition, more than 150 medical centers and physician offices are participating in the TrialNet network. Studies are available for people newly diagnosed with type 1 diabetes, as well as for relatives of people with type 1 diabetes who are at greater risk of developing the disease. This NIH-sponsored clinical trials network conducts studies designed to evaluate new approaches to prevent or ameliorate type 1 diabetes specifically by interdicting the type 1 diabetes disease process. These include interventions designed to decrease beta-cell destruction and/or enhance beta-cell survival. Studies are conducted in non-diabetic persons at risk of type 1 diabetes in an effort to delay the development of type 1 diabetes as a clinical disease; or (if initiated prior to appearance of autoimmunity) in an effort to delay the appearance of autoimmunity; or in individuals with type 1 diabetes who are either newly diagnosed or have evidence of sustained beta cell function. Studies include long-term follow-up of subjects developing type 1 diabetes. The TrialNet network also supports natural history and genetics studies in populations screened for or enrolled in studies conducted by the TrialNet study group. In addition, TrialNet will evaluate methodologies that enhance the conduct of clinical trials interdicting the type 1 diabetes disease process. | intervention, beta-cell, clinical, child, young human, natural history, genetics, prevention, delay |
is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Central Repository has parent organization: University of South Florida; Florida; USA is parent organization of: Living Biobank |
Diabetes, Type 1 diabetes | NIDDK U01DK061058 | Available to the research community | nlx_152812 | SCR_001508 | 2026-02-16 09:45:30 | 22 | ||||||
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CKID A Prospective Cohort Study of Kidney Disease in Children Resource Report Resource Website 10+ mentions |
CKID A Prospective Cohort Study of Kidney Disease in Children (RRID:SCR_001500) | CKID | research forum portal, resource, topical portal, portal, data or information resource, bibliography, disease-related portal | Prospective, observational cohort study of children with mild to moderate chronic kidney disease (CKD) to: (1) determine risk factors for progression of pediatric chronic kidney disease (CKD); (2) examine the impact of CKD on neurocognitive development; (3) examine the impact of CKD on risk factors for cardiovascular disease, and; (4) examine the impact of CKD on growth. The CKiD study population will include a cohort of 540 children, age 1 16 years, expected to be enrolled over a 24-month period. | child, young human, pediatric, risk factor, kidney function, neurodevelopment, cognitive ability, behavior, kidney, urologic problem, glomerular disease, adverse effect, cognition, growth, adolescent, infant, clinical |
is listed by: NIDDK Information Network (dkNET) has parent organization: Johns Hopkins University; Maryland; USA |
Chronic kidney disease, Renal disease, Cardiovascular disease | NIDDK U01DK066174; NCRR M01RR000052 |
Free, Freely available | nlx_152790 | SCR_001500 | CKID: A Prospective Cohort Study of Kidney Disease in Children, Chronic Kidney Disease in Children | 2026-02-16 09:45:30 | 10 | |||||
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Collaborative Islet Transplant Registry Resource Report Resource Website 1+ mentions |
Collaborative Islet Transplant Registry (RRID:SCR_001466) | CITR | narrative resource, resource, data repository, database, storage service resource, service resource, data or information resource, report | Collect, analyze, and communicate on comprehensive and current data on all islet/beta cell transplants in human recipients performed in North America, as well as some European and Australian centers to expedite progress and promote safety in islet/beta cell transplantation. This site serves as a repository for general information concerning protocols, clinical transplantation sites, publications, and other information of interest to the general community. Annual Reports are available. Islet/beta cell transplantation is a complex procedure with many factors contributing to the outcome. Compiling and analyzing data from all transplant centers in the US, Canada, as well as some European and Australian centers will accelerate the identification of both critical risk factors and key determinants of success and thereby guide transplant centers in developing and refining islet/beta cell transplant protocols. The inclusion of the term collaborative in the name of the Registry emphasizes the importance of collaboration in fulfilling the CITR mission and goals. Close collaboration with the transplant centers will ensure that relevant questions are addressed, that data submitted are accurate and complete, and that the needs of the transplant community are served. Information on how to participate as a CITR Transplant Center and to receive a transplant center application is available through the website. Progress in islet transplantation depends entirely on complete, high-quality medical data, including the information patients consented to report to the Collaborative Islet Transplant Registry. To make it as easy as possible to provide updated information about patient's health, an on-line questionnaire is available or patients can mail it to their transplant center. This information is very important in the continuing search for a cure for Type 1 diabetes. | transplant center, transplant, islet, beta cell, clinical, islet transplantation, beta cell transplantation, outcome, metadata standard, adverse event report, diabetes, data element, bibliography, questionnaire, protocol, risk factor, case report form, allograft, pancreatectomy, autograft, islet processing | is listed by: NIDDK Information Network (dkNET) | Type 1 diabetes, Diabetes | NIDDK N01-DK6-2868; NIDDK N01-DK1-2472 |
PMID:15387102 | Free, Freely Available | nlx_152693 | SCR_001466 | 2026-02-16 09:45:29 | 9 | |||||
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Teen-Longitudinal Assessment of Bariatric Surgery Resource Report Resource Website |
Teen-Longitudinal Assessment of Bariatric Surgery (RRID:SCR_001492) | data or information resource, organization portal, consortium, portal | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on June 29,2023. Consortium made up of five clinical centers and a data coordinating center. The goal of Teen-LABS is to conduct clinical, epidemiological, and behavioral research in adolescent bariatric surgery, through an observational prospective study protocol. Teen-LABS is an ancillary study to LABS, an observational study of adult bariatric surgery. Research staff, certified in standardized uniform data collection according to the protocol, collect data at pre-operative research visits, at surgery, 30 days and six months post-operative, and annual post-operative research visits at the five participating centers. | adolescent human, bariatrics, pre-operative, at surgery, post-operative, clinical, epidemiology, behavior, surgical outcome, metadata standard, observational study, clinical, experimental protocol, evidence-based recommendation, patient evaluation, follow-up care | is listed by: NIDDK Information Network (dkNET) | Bariatric surgery, Obesity | NIDDK R01DK080020 | THIS RESOURCE IS NO LONGER IN SERVICE | SCR_014388, nlx_152747 | SCR_001492 | Teen-LABS, Adolescent Bariatrics: Assessing Health Benefits and Risks, Teen-Longitudinal Assessment of Bariatric Surgery, Adolescent Bariatrics: Assessing Health Benefits and Risks (Teen-LABS) | 2026-02-16 09:45:29 | 0 | ||||||
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Globin Gene Server Resource Report Resource Website 10+ mentions |
Globin Gene Server (RRID:SCR_001480) | Globin Gene Server | narrative resource, training material, data analysis service, analysis service resource, resource, database, software resource, source code, production service resource, service resource, data or information resource | Data and tools for studying the function of DNA sequences, with an emphasis on those involved in the production of hemoglobin. It includes information about naturally-occurring human hemoglobin mutations and their effects, experimental data related to the regulation of the beta-like globin gene cluster, and software tools for comparing sequences with one another to discover regions that are likely to play significant roles. | dna sequence, hemoglobin, mutation, globin gene cluster, sequence comparison, functional genomics, gene, alignment, genetic analysis, variant, gene expression, protein, thalassemia, globin gene, genome, pairwise alignment, multiple alignment, annotation, sequence analysis, dna |
is listed by: NIDDK Information Network (dkNET) has parent organization: Pennsylvania State University |
NLM R01LM05773; NLM R01LM05110; NIDDK DK27635 |
PMID:11857738 PMID:11480780 PMID:9799599 PMID:9576329 PMID:8088828 |
Free, Freely available | nlx_152723 | SCR_001480 | 2026-02-16 09:45:29 | 27 |
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