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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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Northwestern University Feinberg School of Medicine; Illinois; USA Resource Report Resource Website |
Northwestern University Feinberg School of Medicine; Illinois; USA (RRID:SCR_001058) | FSM | university | Medical school of Northwestern University which focuses on research initiatives, clinical affiliates, and global outlook. | University, medical school, med school, northwestern, research, clinical, residency |
is related to: Alzheimers Disease Genetics Consortium has parent organization: Northwestern University; Illinois; USA is parent organization of: Northwestern University Cognitive Neurology and Alzheimers Disease Center is parent organization of: Northwestern University Feinberg School of Medicine Center for Advanced Microscopy Nikon Imaging Center Core Facility is parent organization of: GuPPy is parent organization of: Northwestern University School of Medicine SBDRC Translating Experimental Skin Testing with Immune Tracing, Informatics, and Technology Core Facility is parent organization of: Northwestern University School of Medicine SBDRC Gene Editing, Transduction and Nanotechnology Core Facility is parent organization of: Northwestern University School of Medicine SBDRC Skin Tissue Engineering and Morphology Core Facility |
nlx_41572 | SCR_001058 | Northwestern University Feinberg School of Medicine, Northwestern University FSM, Northwestern University Medical School | 2026-02-14 01:59:54 | 0 | ||||||||
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University of Florida College of Medicine Neuroscience Resource Report Resource Website |
University of Florida College of Medicine Neuroscience (RRID:SCR_001081) | data or information resource, organization portal, portal, department portal | A department at the University of Florida's College of Medicine that offers programs of study on neural function and how it changes with injury and disease. The institution's research ranges from fundamental discovery to clinical application. These neuroscience programs are offered at the undergraduate, graduate, postdoctoral and resident level. | neuroscience, neural function, undergraduate, graduate, postdoctoral, resident, clinical, injury, disease | nif-0000-02172 | SCR_001081 | UFL | 2026-02-14 01:59:53 | 0 | ||||||||||
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NIH Common Data Element Repository Resource Report Resource Website 1+ mentions |
NIH Common Data Element Repository (RRID:SCR_001390) | NIH CDE Resource Portal, CDE Resource Portal | data or information resource, narrative resource, common data element, standard specification | A repository of Common Data Elements (CDE). The CDE is a standardized, precisely defined question, paired with a set of allowable responses, used systematically across different sites, studies, or clinical trials to ensure consistent data collection. Multiple CDEs (from one or more Collections) can be curated into Forms. Forms in the Repository might be original, or might recreate the format of real-world data collection instruments or case report forms. NIH has endorsed collections of CDEs that meet established criteria. NIH-endorsed CDEs are designated with a gold ribbon. Users can Browse NIH-Endorsed CDEs, Browse All CDEs, or Browse Forms. | clinical research, clinical, patient registry, human subject research, human subject, data element, case report form, interoperability, data sharing | has parent organization: National Library of Medicine | Free, Freely Available | nlx_152564 | https://cde.nlm.nih.gov/home, http://www.nlm.nih.gov/cde/ | SCR_001390 | NIH Common Data Element (CDE) Resource Portal, Common Data Element (CDE) Resource Portal | 2026-02-14 02:00:03 | 7 | ||||||
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Center for Gamma Ray Imaging Resource Report Resource Website |
Center for Gamma Ray Imaging (RRID:SCR_001384) | Center for Gamma-Ray Imaging | material service resource, instrument manufacture, service resource, production service resource | Biomedical technology resource center that develops new gamma-ray imaging instruments and techniques that yield substantially improved spatial and temporal resolutions. The Center makes its imagers and expertise available to a wide community of biomedical and clinical researchers through collaborative and service-oriented interactions. The collaborative research applies these new imaging tools to basic research in functional genomics, proteomics, cancer, cardiovascular disease and cognitive neuroscience, and to clinical research in tumor detection and other selected topics. There are five core research projects: * Detector technology research and development * Reconstruction algorithms and system modeling * Data acquisition, signal processing, and system development * Image-quality assessment and system optimization * Techniques for molecular imaging | spect, ct, imaging, clinical, gamma-ray, imaging instrument, basic research, functional genomics, cardiovascular disease, cognitive neuroscience, breast cancer, tumor detection, proteomics, cancer | has parent organization: University of Arizona; Arizona; USA | NIBIB EB002035-14 | nlx_152567 | SCR_001384 | 2026-02-14 02:00:03 | 0 | ||||||||
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CAMD Resource Report Resource Website 1+ mentions |
CAMD (RRID:SCR_001389) | CAMD | data or information resource, organization portal, portal, consortium | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on July 8, 2022. Consortium developing new technologies and methods to accelerate the development and review of medical products for neurodegenerative diseases. It is focused on accelerating drug development for patients with chronic neurodegenerative disease, namely, Alzheimer's disease (AD) and Parkinson's disease (PD), by advancing drug development tools for evaluating drug efficacy, conducting clinical trials, and streamlining the process of regulatory review. The consortium focuses on sharing precompetitive patient-level data from the control arms of legacy clinical trials, developing new tools to be submitted to the regulatory agencies, and developing consensus data standards. CAMD has the following areas of focus: (1) qualification of biomarkers, (2) development of common data standards, (3) creation of integrated databases for clinical trials data, and (4) development of quantitative model-based tools for drug development. Regulatory milestones include a qualification opinion with EMA for the use of low baseline hippocampal volume for patient enrichment in pre-dementia trials, and most recently, positive regulatory decisions from the FDA and EMA for the use of a clinical trial simulation tool to aid in trials for mild to moderate stages of AD., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | data set, clinical trial, mild cognitive impairment, clinical, biomarker, metadata standard, disease progression model, consortium, drug, data sharing, disease modeling, drug development, disease model, imaging, cerebral spinal fluid |
is listed by: Consortia-pedia has parent organization: Critical Path Institute; Arizona; USA is parent organization of: CODR: C PATH On Line Data Repository |
Publicly funded | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_152563 | SCR_001389 | Coalition Against Major Diseases | 2026-02-14 02:00:00 | 6 | ||||||
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National Institutes of Neurological Disorders and Stroke: Research Funding Resource Report Resource Website |
National Institutes of Neurological Disorders and Stroke: Research Funding (RRID:SCR_012874) | funding resource | Research funding for basic and clinical neuroscience trials to help train investigators and better understand diagnosis, treatment, and prevention of neurological disorders. Funds are allocated by Congress on a yearly basis. | epilepsy, epileptic seizure, funding resource, craniocervical injury, grant, grants, nervous system injury, nervous system trauma, neural stem cell, paralysis agitans, parkinson's, parkinson's disease, parkinson syndrome, seizure disorder, traumatic brain injury, research, funding, clinical, neuroscience, basic, trials | Available to the research community | nif-0000-01869 | SCR_012874 | NINDS Research Funding | 2026-02-14 02:02:24 | 0 | |||||||||
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Traumatic Brain Injury Clinical Trials Network Resource Report Resource Website |
Traumatic Brain Injury Clinical Trials Network (RRID:SCR_013165) | TBI Clinical Trials Network | portal, knowledge environment, data or information resource, research forum portal, disease-related portal, topical portal | The National Center for Medical Rehabilitation Research (NCMRR) established a multi-center network of sites that are working together to design clinical intervention protocols and measures of outcome for TBI. Through rigorous patient evaluation, using common protocols and interventions designed for multiple points of care����??including the accident scene, emergency room, intensive care unit, rehabilitation and long-term follow-up����??the NCMRR TBI Clinical Trials Network can study the required numbers of patients to provide answers more rapidly than individual centers acting alone. This interdisciplinary research Network is designed to evaluate the relationship among acute care practice, rehabilitation strategies, and the long-term functional outcome of TBI patients����??that is, to identify which intervention variables result in improvements in long-term outcomes. Taking advantage of the network model structure has allowed TBI research to progress toward a number of clinical research goals. Specifically, the NCMRR wants to highlight two major achievements to date. First, the TBI Network created a profile of its typical patient to determine the number of patients with different clinical features who might be eligible for future studies and to help estimate recruitment times necessary. Second, Network researchers are developing clinical treatment guidelines and procedures for all points in the continuum of care, including TBI Clinical Trials Network Guidelines for surgical care, systems-based protocol for severe and moderate TBI patients, deep-vein thrombosis prophylaxis procedures, and rehabilitation guidelines for physical therapy, speech-language pathology, occupational therapy, and neuropsychology. | traumatic brain injury, clinical, research, clinical trial, outcome, intervention, one mind tbi | has parent organization: National Institute of Child Health and Human Development | Traumatic Brain Injury | NCMRR | nlx_143904 | http://www.nichd.nih.gov/research/supported/TBI.cfm | SCR_013165 | NCMRR TBI Clinical Trials Network, Traumatic Brain Injury (TBI) Clinical Trials Network | 2026-02-14 02:02:50 | 0 | |||||
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Kennedy Krieger Institute: Diagnoses/Disorders Resource Report Resource Website |
Kennedy Krieger Institute: Diagnoses/Disorders (RRID:SCR_013260) | data or information resource, organization portal, portal, training resource | Kennedy Krieger Institute is an institution dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research, and professional training. Kennedy Kriegers clinical programs offer an interdisciplinary approach in treatment tailored to the individual needs of each child. Services include over 40 outpatient clinics; neurobehavioral, rehabilitation, and pediatric feeding disorders inpatient units; plus several home and community programs providing services to assist families. At Kennedy Krieger, there is no shortage of clinical programs to meet the specialized needs of children and adolescents with developmental disabilities. More than 35 different outpatient clinics, three inpatient units, several home and community programs and clinical laboratories all address the specific conditions of children with a wide range of disorders. Kennedy Krieger is recognized for its range of services in areas including autism, cerebral palsy, spina bifida, neurorehabilitation and feeding disorders. Kennedy Krieger school, is a nationally recognized Blue Ribbon School of Excellence, and is a leader in providing model programs of innovative education for children, adolescents and young adults with a wide range of learning, emotional, physical, neurological, and developmental disabilities. Faculty at Kennedy Krieger are among some of the worlds leading experts in this field and are attuned to the special needs of this population. These faculty have made crucial medical discoveries leading to innovative treatments and have improved the lives of individuals with disabilities. In addition to providing evaluation, rehabilitation, educational services and cutting edge research on behalf of children with brain related disabilities, Kennedy Krieger also provides professional training by renowned experts dedicated to increasing the number of qualified specialists in the United States and abroad. Children treated at Kennedy Krieger are seen by a variety of health care professionals working together in one or more of the Institutes clinical disciplines or departments. These highly trained professionals work directly with the Institutes medical staff to provide coordinated, interdisciplinary care tailored to the special needs of each child. This interdisciplinary approach puts Kennedy Krieger at the forefront in providing patient care for individuals with multiple developmental disabilities. Additionally, Kennedy Krieger Institutes Department of Special Education includes a number of programs that offer service to children with disabilities in a variety of settings. Kennedy Krieger School programs offer special education and related services to students aged 3-21 in three day-school settings and in partnership settings within public schools. For your convenience, a list of diagnoses/disorders treated at Kennedy Krieger Institute has been compiled to provide helpful related information for each diagnosis/disorder and include definitions, symptoms, treatment programs available at Kennedy Krieger, research being conducted at Kennedy Krieger, press releases, Potential articles and links to other helpful additional resources and websites outside the Institute. | emotional, adolescent, care, clinical, developmental disorder, disability, disorder, neurobehavioral, neurological, neurorehabitlitation, outpatient, patient, pediatric, pervasive, physical, prematurity, psychiatric, rehabilitation, research, self-injurious behavior, special education, paralysis, adrenoleukodystrophy, ald, ataxia telangiectasia, at, attention deficit disorder, add, autism spectrum disorder, asd, pervasive developmental disorder, pdd, barth syndrome, behavioral disorder, self-injurious behavior, brachial plexus injury, bpi, birth defect, brain injury, brain malformation, brain tumor, cerebral palsy, cp, communication disorder, speech disorder, language disorder, developmental disability, down syndrome, encephalitis, epilepsy, seizure disorder, feeding disorder, fetal alcohol syndrome, fas, fragile x syndrome, genetic disorder, hearing impairment, holoprosencephaly, hpe, lead poisoning, learning disorder, intellectual disability, metabolic disorder, mitochondrial disorder, movement disorder, neurodegenerative disorder, neurological disorder, osteogenesis imperfecta, psychiatric disorder, rett syndrome, skeletal disorder, sleep disorder, smith-lemli-opitz syndrome, spina bifida, sturge-weber syndrome | has parent organization: Kennedy Krieger Institute | nif-0000-10275 | SCR_013260 | KKI Diagnoses/Disorders | 2026-02-14 02:02:47 | 0 | |||||||||
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NINDS Common Data Elements Resource Report Resource Website 10+ mentions |
NINDS Common Data Elements (RRID:SCR_006577) | NINDS CDEs | data or information resource, narrative resource, database, standard specification | The purpose of the NINDS Common Data Elements (CDEs) Project is to standardize the collection of investigational data in order to facilitate comparison of results across studies and more effectively aggregate information into significant metadata results. The goal of the National Institute of Neurological Disorders and Stroke (NINDS) CDE Project specifically is to develop data standards for clinical research within the neurological community. Central to this Project is the creation of common definitions and data sets so that information (data) is consistently captured and recorded across studies. To harmonize data collected from clinical studies, the NINDS Office of Clinical Research is spearheading the effort to develop CDEs in neuroscience. This Web site outlines these data standards and provides accompanying tools to help investigators and research teams collect and record standardized clinical data. The Institute still encourages creativity and uniqueness by allowing investigators to independently identify and add their own critical variables. The CDEs have been identified through review of the documentation of numerous studies funded by NINDS, review of the literature and regulatory requirements, and review of other Institute''s common data efforts. Other data standards such as those of the Clinical Data Interchange Standards Consortium (CDISC), the Clinical Data Acquisition Standards Harmonization (CDASH) Initiative, ClinicalTrials.gov, the NINDS Genetics Repository, and the NIH Roadmap efforts have also been followed to ensure that the NINDS CDEs are comprehensive and as compatible as possible with those standards. CDEs now available: * General (CDEs that cross diseases) Updated Feb. 2011! * Congenital Muscular Dystrophy * Epilepsy (Updated Sept 2011) * Friedreich''s Ataxia * Parkinson''s Disease * Spinal Cord Injury * Stroke * Traumatic Brain Injury CDEs in development: * Amyotrophic Lateral Sclerosis (Public review Sept 15 through Nov 15) * Frontotemporal Dementia * Headache * Huntington''s Disease * Multiple Sclerosis * Neuromuscular Diseases ** Adult and pediatric working groups are being finalized and these groups will focus on: Duchenne Muscular Dystrophy, Facioscapulohumeral Muscular Dystrophy, Myasthenia Gravis, Myotonic Dystrophy, and Spinal Muscular Atrophy The following tools are available through this portal: * CDE Catalog - includes the universe of all CDEs. Users are able to search the full universe to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, all pediatric epilepsy CDEs, etc.) and download details about those CDEs. * CRF Library - (a.k.a., Library of Case Report Form Modules and Guidelines) contains all the CRF Modules that have been created through the NINDS CDE Project as well as various guideline documents. Users are able to search the library to find CRF Modules and Guidelines of interest. * Form Builder - enables users to start the process of assembling a CRF or form by allowing them to choose the CDEs they would like to include on the form. This tool is intended to assist data managers and database developers to create data dictionaries for their study forms. | common data element, neuroscience, clinical, human, adult, pediatric, disease, disorder, data standard | has parent organization: National Institute of Neurological Disorders and Stroke | NINDS contract N01-NS-7-2372 | PMID:20583225 | nif-0000-10000 | SCR_006577 | National Institute of Neurological Disorders and Stroke CDEs, NINDS NINDS Common Data Elements: Harmonizing information. Streamlining research. | 2026-02-14 02:01:20 | 27 | ||||||
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Autoimmunity Centers of Excellence Resource Report Resource Website |
Autoimmunity Centers of Excellence (RRID:SCR_006510) | ACE | portal, resource, data or information resource, research forum portal, disease-related portal, topical portal | Nine centers that conduct clinical trials and basic research on new immune-based therapies for autoimmune diseases. This program enhances interactions between scientists and clinicians in order to accelerate the translation of research findings into medical applications. By promoting better coordination and communication, and enabling limited resources to be pooled, ACEs is one of NIAID''''s primary vehicles for both expanding our knowledge and improving our ability to effectively prevent and treat autoimmune diseases. This coordinated approach incorporates key recommendations of the NIH Autoimmune Diseases Research Plan and will ensure progress in identifying new and highly effective therapies for autoimmune diseases. ACEs is advancing the search for effective treatments through: * Diverse Autoimmunity Expertise Medical researchers at ACEs include rheumatologists, neurologists, gastroenterologists, and endocrinologists who are among the elite in their respective fields. * Strong Mechanistic Foundation ACEs augment each clinical trial with extensive basic studies designed to enhance understanding of the mechanisms responsible for tolerance initiation, maintenance, or loss, including the role of cytokines, regulatory T cells, and accessory cells, to name a few. * Streamlined Patient Recruitment The cooperative nature of ACEs helps scientists recruit patients from distinct geographical areas. The rigorous clinical and basic science approach of ACEs helps maintain a high level of treatment and analysis, enabling informative comparisons between patient groups. | immune system, infection, clinical trial, clinical, basic research |
is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Research Resources |
Type 1 diabetes, Diabetes, Autoimmune disease, Systematic lupus erythematosus, Rheumatoid arthritis, Sjogren's syndrome, Multiple sclerosis, Chronic inflammatory bowel disease, Pemphigus vulgaris, Scleroderma | NIAID ; NIDDK ; NIH Office of Research on Womens Health |
nlx_152751 | SCR_006510 | 2026-02-14 02:01:19 | 0 | |||||||
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NIDDK Central Repository Resource Report Resource Website 50+ mentions |
NIDDK Central Repository (RRID:SCR_006542) | CDR, NIDDKCDR | material storage repository, data repository, storage service resource, biospecimen repository, data or information resource, service resource, database | NIDDK Central Repositories are two separate contract funded components that work together to store data and samples from significant, NIDDK funded studies. First component is Biorepository that gathers, stores, and distributes biological samples from studies. Biorepository works with investigators in new and ongoing studies as realtime storage facility for archival samples.Second component is Data Repository that gathers, stores and distributes incremental or finished datasets from NIDDK funded studies Data Repository helps active data coordinating centers prepare databases and incremental datasets for archiving and for carrying out restricted queries of stored databases. Data Repository serves as Data Coordinating Center and website manager for NIDDK Central Repositories website. | clinical supply resource, data, clinical, sample sharing, genotyping, genotype, phenotype, genetic analysis, data sharing, genetics, serum, plasma, stool, urine, dna, red blood cell, buffy coat, tissue, immortalized cell line, cell line, data set, digestive organ, kidney, diabetes, kidney disease, digestive disease, genome-wide association study, sequencing, FASEB list |
uses: DataCite is used by: NIDDK Information Network (dkNET) is used by: NIF Data Federation is used by: NIH Heal Project is recommended by: National Library of Medicine is recommended by: NIDDK Information Network (dkNET) is recommended by: NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases lists: HEALTHY study lists: Nonalcoholic Steatohepatitis Clinical Research Network lists: HALT-C Trial lists: Type 1 Diabetes Genetics Consortium lists: TEDDY lists: Type 1 Diabetes TrialNet lists: Rare and Atypical Diabetes Network lists: Diabetes Prevention Program lists: Diabetes Prevention Program Outcomes Study lists: Restoring Insulin Secretion Consortium (RISE) lists: Epidemiology of Diabetes Interventions and Complications lists: Diabetes Control and Complications Trial lists: Treatment Options for type 2 Diabetes in Adolescents and Youth is listed by: One Mind Biospecimen Bank Listing is listed by: re3data.org is listed by: Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB) is listed by: NIDDK Information Network (dkNET) is related to: NCBI database of Genotypes and Phenotypes (dbGap) is related to: Peginterferon and Ribavirin for Pediatric Patients with Chronic Hepatitis C is related to: Chronic Renal Insufficiency Cohort Study has parent organization: RTI International |
NIDDK | PMID:23396299 PMID:21959867 PMID:16595012 |
Restricted | nlx_152673, r3d100010377 | https://doi.org/10.17616/R3WP48 | https://www.niddkrepository.org, | SCR_006542 | NIDDK Central Repository, National Institute of Diabetes and Digestive and Kidney Diseases Central Repository, NIDDKCentral Repositories | 2026-02-14 02:01:11 | 85 | |||
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CTE and Post-traumatic Neurodegeneration: Neuropathology and Ex Vivo Imaging Resource Report Resource Website 1+ mentions |
CTE and Post-traumatic Neurodegeneration: Neuropathology and Ex Vivo Imaging (RRID:SCR_006543) | CTE and Post-traumatic Neurodegeneration: Neuropathology and Ex Vivo Imaging | portal, data or information resource, research forum portal, disease-related portal, topical portal | Initiative to assemble a multicenter team of expert neuroscientists to evaluate the late effects of Traumatic brain injury (TBI), including single and repetitive TBI of varying severity, and Chronic Traumatic Encephalopathy (CTE), using histological examination of postmortem bio specimens and neuroimaging tools as a foundation to develop in vivo diagnostics. As a first aim, this proposal will bring together a team of 5 accomplished neuropathologists in neurodegenerative disease to establish consensus criteria for the post-mortem diagnosis of CTE. This team will also define the stages of CTE pathology, the features that differentiate CTE from other neurodegenerations and the effects of substance abuse, and the characteristics of posttraumatic neurodegeneration after single TBI. As a second aim, this proposal will establish a national bio specimen and data bank for TBI (Understanding Neurological Injury and Traumatic Encephalopathy (UNITE) bio bank) by developing a nationwide brain donor registry and hotline to acquire high quality bio specimens and data. The UNITE bank will use strictly standardized protocols and a web-based interface to ensure that tissue and data are readily available to qualified investigators. Comprehensive retrospective clinical data including clinical symptoms, brain trauma and substance abuse history, and medical records (including common data elements) will be entered into a secure database. Behavioral/ mood dysfunction, cognitive changes, substance abuse and traumatic exposure will be correlated with quantitative assessment of the multifocal tauopathy, Ass deposition and axonal injury. As a third aim, neuroimaging signatures of the neuropathology will be determined in post-mortem tissue using high spatial resolution diffusion tensor imaging (DTI) and autoradiography using a highly selective PET ligand for tau. Quantitative assessment of axonal injury, tau, and Ass will be correlated with ex vivo DTI abnormalities and tau ligand autoradiography. Pilot neuroimaging studies of individuals at high risk for the development of CTE will also be conducted in the final 2 years of the proposal. This proposal will determine the clinical and neuroimaging correlates of CTE and posttraumatic neurodegeneration and create the groundwork for establishing their incidence and prevalence. This study will have a tremendous impact on public health of millions of Americans and greatly increase our understanding of the latent effects of brain trauma. | brain bank, biospecimen repository, neuroimaging, brain, neuropathology, dti, pet, clinical, cognitive decline, dementia, axonal injury, aggregated protein, neurodegeneration, post-mortem, incidence, prevalence, risk factor, clinical course, treatment, diagnosis, biomarker | has parent organization: Boston University School of Medicine; Massachusetts; USA | Traumatic brain injury, Chronic traumatic encephalopathy | nlx_156786 | SCR_006543 | Chronic Traumatic Encephalopathy and Post-traumatic Neurodegeneration: Neuropathology and Ex Vivo Imaging | 2026-02-14 02:01:20 | 1 | |||||||
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F1000: Faculty of 1000 Post-Publication Peer Review Resource Report Resource Website 10+ mentions |
F1000: Faculty of 1000 Post-Publication Peer Review (RRID:SCR_006537) | F1000 | commercial organization | Service that identifies and evaluates the most important articles in biology and medical research publications. The selection process comprises a peer-nominated global ''Faculty'' of the world''s leading scientists and clinicians who rate the best of the articles they read and explain their importance. Faculty Members and their evaluations are organized into over 40 Faculties (subjects), which are further subdivided into over 300 Sections. On average, 1500 new evaluations are published each month; this corresponds to approximately the top 2% of all published articles in the biological and medical sciences. F1000 is a subscription service paid for by academic and corporate institutions. Users at subscribing institutions automatically receive full access to the F1000 service when using internet facilities provided by their institution. | biology, medicine, biomedical science, clinical, database, peer review, medical research |
is used by: PrePubMed is listed by: FORCE11 is related to: Overleaf has parent organization: Science Navigation Group is parent organization of: F1000 Reports is parent organization of: Faculty of 1000 - YouTube is parent organization of: F1000 Posters is parent organization of: Naturally Selected |
Subscription | nlx_71290, Wikidata: Q5428884, grid.466681.b, ISNI: 0000 0000 8758 3069 | https://ror.org/019tc7185 | http://www.facultyof1000.com/ | SCR_006537 | F1000 Evaluations, Faculty of 1000, F1000 Evaluated Articles | 2026-02-14 02:01:11 | 14 | |||||
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Leiden Open Variation Database Resource Report Resource Website 100+ mentions |
Leiden Open Variation Database (RRID:SCR_006566) | LOVD | data repository, storage service resource, data processing software, data storage software, data or information resource, service resource, software application, software resource, database | Freely available tool for Gene-centered collection and display of DNA variations. It also provides patient-centered data storage and storage of Next Generation Sequencing (NGS) data, even of variants outside of genes. Please note that LOVD provides a system for storage of information on genes and allelic variants. To obtain information about any genes or variants, do not download the LOVD package. This information should be obtained from the respective databases, http://www.lovd.nl/2.0/index_list.php In total: 2,507,027 variants (2,208,937 unique) in 170,935 individuals in 62619 genes in 88 LOVD installations. (Aug. 2013) LOVD 3.0 shared installation, http://databases.lovd.nl/shared/genes To maintain a high quality of the data stored, LOVD connects with various resources, like HGNC, NCBI, EBI and Mutalyzer. You can download LOVD in ZIP and GZIPped TARball formats. | genetic variation, genomic variant, gene, transcript, disease, next generation sequencing, dna variation, variant, clinical, screening, locus, phenotype, sequence variation, allelic variant, data sharing, FASEB list |
is listed by: OMICtools has parent organization: Leiden University; Leiden; Netherlands |
European Union FP7 GEN2PHEN 200754 | PMID:21520333 PMID:15977173 |
The community can contribute to this resource, Clearance to contribute required, GNU General Public License, Acknowledgement requested | nif-0000-02998, OMICS_00275, r3d100011905 | https://doi.org/10.17616/R3993T | SCR_006566 | Leiden Open Variation Database (LOVD) | 2026-02-14 02:01:09 | 238 | ||||
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Creatinine Standardization Program Resource Report Resource Website 1+ mentions |
Creatinine Standardization Program (RRID:SCR_006441) | Creatinine Standardization Program | international standard specification, experimental protocol, resource, data or information resource, narrative resource, standard specification | Standard specification to reduce inter-laboratory variation in creatinine assay calibration and therefore enable more accurate estimates of glomerular filtration rate (eGFR). Created by NKDEP''''s Laboratory Working Group in collaboration with the International Federation of Clinical Chemistry and Laboratory Medicine (IFCC) and the European Communities Confederation of Clinical Chemistry (now called the European Federation of Clinical Chemistry and Laboratory Medicine), the effort is part of a larger NKDEP initiative to help health care providers better identify and treat chronic kidney disease in order to prevent or delay kidney failure and improve patient outcomes. Recommendations are intended for the USA and other countries or regions that have largely completed standardization of creatinine calibration to be traceable to an isotope dilution mass spectrometry (IDMS) reference measurement procedure. The program''''s focus is to facilitate the sharing of information to assist in vitro diagnostic manufacturers, clinical laboratories, and others in the laboratory community with calibrating their serum creatinine measurement procedures to be traceable to isotope dilution mass spectrometry (IDMS). The program also supports manufacturers'''' efforts to encourage their customers in the laboratory to coordinate use of standardized creatinine methods with implementation of a revised GFR estimating equation appropriate for use with standardized creatinine methods. Communication resources and other information for various segments of the laboratory community are available in the Creatinine Standardization Recommendations section of the website. Also available is a protocol for calibrating creatinine measurements using whole blood devices. The National Institute for Standards and Technology (NIST) released a standard reference material (SRM 967 Creatinine in Frozen Human Serum) for use in establishing calibrations for routine creatinine measurement procedures. SRM 967 was validated to be commutable with native serum samples for many routine creatinine procedures and is useful to establish or verify traceability to an IDMS reference measurement procedure. Establishing calibrations for serum creatinine methods using SRM 967 not only provides a mechanism for ensuring more accurate measurement of serum creatinine, but also enables more accurate estimates of GFR. For clinical laboratories interested in independently checking the calibration supplied by their creatinine reagent suppliers/manufacturers, periodic measurement of NIST SRM 967 should be considered for inclusion in the lab''''s internal quality assurance program. To learn more about SRM 967, including how to purchase it, visit the NIST website, https://www-s.nist.gov/srmors/quickSearch.cfm | creatinine, estimate, glomerular filtration rate, kidney, isotope dilution mass spectrometry, whole blood, calibration, serum, serum creatinine, clinical |
is related to: Glomerular Filtration Rate Calculators is related to: NIDDK Information Network (dkNET) is related to: NIST - National Institute of Standards and Technology has parent organization: National Kidney Disease Education Program |
Chronic kidney disease | NIDDK | nlx_152736 | SCR_006441 | 2026-02-14 02:01:17 | 2 | |||||||
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OMIM Resource Report Resource Website 5000+ mentions |
OMIM (RRID:SCR_006437) | OMIM, MIM | data or information resource, database, catalog | Online catalog of human genes and genetic disorders, for clinical features, phenotypes and genes. Collection of human genes and genetic phenotypes, focusing on relationship between phenotype and genotype. Referenced overviews in OMIM contain information on all known mendelian disorders and variety of related genes. It is updated daily, and entries contain copious links to other genetics resources. | gene, genetics, phenotype, genotype, genetic loci, mutation, clinical, trait, disorder, umls, ontology, gold standard, FASEB list |
is used by: Human Phenotype Ontology is used by: NIF Data Federation is used by: MitoMiner is used by: Schizo-Pi is used by: GEMINI is used by: MARRVEL is used by: HmtPhenome is listed by: BioPortal is listed by: OMICtools is related to: HomoloGene is related to: TopoSNP is related to: phenomeNET is related to: Integrated Gene-Disease Interaction is related to: OMIA - Online Mendelian Inheritance in Animals is related to: Europhenome Mouse Phenotyping Resource is related to: Homophila is related to: Biomine is related to: MalaCards is related to: PhenoTips is related to: KOBAS is related to: Integrated Manually Extracted Annotation is related to: aGEM is related to: biomaRt has parent organization: Johns Hopkins University School of Medicine; Baltimore, Maryland; USA has parent organization: NCBI works with: Human Mouse Disease Connection works with: Database of genes related to Repeat Expansion Diseases |
Genetic disorder, Mendelian disorder, Developmental disorder | PMID:22477700 PMID:22470145 PMID:21472891 PMID:19728286 PMID:18842627 PMID:18428346 PMID:17642958 PMID:17357067 PMID:15608251 PMID:15360913 PMID:11752252 PMID:10845565 PMID:10612823 PMID:9805561 PMID:7937048 PMID:1867277 |
Restricted | nif-0000-03216, r3d100010416, OMICS_00278 | http://www.ncbi.nlm.nih.gov/sites/entrez?db=omim http://www.ncbi.nlm.nih.gov/Omim/ http://purl.bioontology.org/ontology/OMIM https://doi.org/10.17616/R3188W |
SCR_006437 | Online Mendelian Inheritance in Man, OMIM - Online Mendelian Inheritance in Man, MIM, The Online Mendelian Inheritance in Man Morbid Map | 2026-02-14 02:01:17 | 5456 | ||||
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NIMH Repository and Genomics Resources Resource Report Resource Website 50+ mentions |
NIMH Repository and Genomics Resources (RRID:SCR_006698) | NRGR, RGR | institution | Collaborative venture between the National Institute of Mental Health (NIMH) and several academic institutions. Repository facilitates psychiatric genetic research by providing patient and control samples and phenotypic data for wide-range of mental disorders and Stem Cells.Stores biosamples, genetic, pedigree and clinical data collected in designated NIMH-funded human subject studies. RGR database likewise links to other repositories holding data from same subjects, including dbGAP, GEO and NDAR. Allows to access these data and biospecimens (e.g., lymphoblastoid cell lines, induced pluripotent cell lines, fibroblasts) and further expand genetic and molecular characterization of patient populations with severe mental illness. | biosamples, genetic, pedigree, clinical, data |
is listed by: One Mind Biospecimen Bank Listing is related to: NIMH Stem Cell Center is related to: Rutgers Cell and DNA Repository is related to: Sequenced Treatment Alternatives to Relieve Depression Study is related to: CATIE - Clinical Antipsychotic Trials in Intervention Effectiveness is related to: Systematic Treatment Enhancement Program for Bipolar Disorder (STEP-BD) is related to: NKI-RS Enhanced Sample has parent organization: Rutgers University; New Jersey; USA has parent organization: Washington University in St. Louis; Missouri; USA has parent organization: University of Southern California; Los Angeles; USA |
Bipolar Disorder, Schizophrenia, Alzheimer's disease, Autism, Attention deficit-hyperactivity disorder, Depression, Control, Obsessive-Compulsive Disorder, Anorexia Nervosa, Relative, Mental disorder, Brain disorder, Relative | NIH Blueprint for Neuroscience Research ; National Institute for Mental Health |
Restricted | grid.482687.7, nif-0000-00186, SCR_016318 | https://ror.org/026dax180 | SCR_006698 | NIMH: Center for Collaborative Genetic Studies, NIMH Human Genetics Initiative, NIMH Center for Genetic Studies, NIMH Genetics, Center for Collaborative Genomic Studies on Mental Disorders, NIMH Repository and Genomics Resources (NRGR) | 2026-02-14 02:01:14 | 66 | ||||
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RxNorm Resource Report Resource Website 500+ mentions |
RxNorm (RRID:SCR_006645) | RxNorm | data or information resource, ontology, controlled vocabulary | Ontology that provides a normalized naming system for generic and branded drugs and a tool for supporting semantic interoperation between drug terminologies and pharmacy knowledge base systems. It contains the names of prescription and many over-the-counter drugs available in the United States and links its names to many of the drug vocabularies commonly used in pharmacy management and drug interaction software. It can mediate messages between systems not using the same software and vocabulary. * RxNorm Download Files - contain data consistent with the 2013AB UMLS Metathesaurus Release Files. * RxNorm API - web service for accessing the current RxNorm data set. * RxNorm Browser (RxNav) - a browser for several drug information sources, including RxNorm, RxTerms and National Drug File - Reference Terminology (NDF-RT) . * Current Prescribable Content - subset of currently prescribable drugs found in RxNorm. * RxTerms Drug Interface Terminology - a drug interface terminology derived from RxNorm for prescription writing or medication history recording | umls, drug, pharmacy, clinical, drug pack, medicine, unique identifier, prescribable drug, web service, metathesaurus, generic drug, branded drug, data set, web service, database |
is listed by: BioPortal has parent organization: National Library of Medicine |
PMID:22426081 | Account required, (UMLS Terminology Services (UTS)) | nif-0000-02575 | SCR_006645 | Rx Norm | 2026-02-14 02:01:13 | 612 | ||||||
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Influenza Research Database (IRD) Resource Report Resource Website 10+ mentions |
Influenza Research Database (IRD) (RRID:SCR_006641) | IRD | data repository, storage service resource, data analysis service, analysis service resource, data or information resource, production service resource, service resource, database | The Influenza Research Database (IRD) serves as a public repository and analysis platform for flu sequence, experiment, surveillance and related data. | avian, clinical, genomic, host, influenza, isolate, mammalian, nonhuman, phenotypic, preventive, proteomic, repository, strain, epitope, surveillance, treatment, virus, protein sequence, immune, 3d protein structure, align, blast, short peptide, flu protein, sequence variation, snp, phylogenetic tree, human, 3d spacial image, image, clinical data, clinical, genomic, proteomic, phenotype |
is recommended by: NIDDK Information Network (dkNET) is listed by: DataCite is listed by: re3data.org is listed by: FAIRsharing is related to: Los Alamos National Laboratory is related to: University of California at Davis; California; USA is related to: Sage Analytica is related to: J. Craig Venter Institute has parent organization: University of Texas Southwestern Medical Center; Texas; USA has parent organization: Los Alamos National Laboratory has parent organization: Sage Analytica |
Influenza virus, Influenza | NIAID | PMID:17965094 | Acknowledgement requested, The community can contribute to this resource | DOI:10.25504/FAIRsharing.ws7cgw, nif-0000-21222, DOI:10.35094, DOI:10.17616/R3S634, r3d100011558 | https://www.fludb.org/ https://doi.org/10.17616/R3S634 https://doi.org/10.17616/r3s634 https://doi.org/10.35094/ https://dx.doi.org/10.35094/ https://fairsharing.org/10.25504/FAIRsharing.ws7cgw https://doi.org/10.17616/R3S634 |
http://www.fludb.org/brc/home.do?decorator=influenza | SCR_006641 | , Influenza Research Database, IRD | 2026-02-14 02:01:13 | 28 | ||
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Federal Interagency Traumatic Brain Injury Research Informatics System Resource Report Resource Website 50+ mentions |
Federal Interagency Traumatic Brain Injury Research Informatics System (RRID:SCR_006856) | FITBIR | data repository, storage service resource, portal, data or information resource, service resource, narrative resource, topical portal, database, standard specification | Platform for Traumatic Brain Injury relevant data. System was developed to share data across entire TBI research field and to facilitate collaboration between laboratories and interconnectivity between informatics platforms. FITBIR implements interagency Common Data Elements for TBI research and provides tools and resources to extend data dictionary. Established submission strategy to ensure high quality and to provide maximum benefit to investigators. Qualified researchers can request access to data stored in FITBIR and/or data stored at federated repositories. | Traumatic, brain, injury, platform, common, data, element, medical, imaging, clinical, assessment, environment, behavior, brain, magnetic, resonance |
is recommended by: National Library of Medicine is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) is listed by: NIH Data Sharing Repositories is related to: NIH Data Sharing Repositories has parent organization: Center for Information Technology |
Traumatic Brain Injury | NINDS ; U.S. Army Medical Research and Material Command ; Center for Information Technology |
Restricted | nlx_151755, r3d100012837 | https://doi.org/10.17616/R31NJMED | SCR_006856 | Federal Interagency Traumatic Brain Injury Research (FITBIR) Informatics System, FITBIR Informatics System | 2026-02-14 02:01:23 | 57 |
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