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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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Florida Brain Bank Resource Report Resource Website |
Florida Brain Bank (RRID:SCR_004936) | brain bank, tissue bank, material resource, biomaterial supply resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 11, 2023. A service and research oriented network of statewide regional brain bank sites. The intent of the brain bank program is to study brains of persons clinically diagnosed with dementia and provide tissue for research after their deaths. Mt. Sinai Medical Center contracts annually with the State of Florida to operate the primary brain bank. Coordinators at regional brain bank sites in Orlando, Tampa and Pensacola assist in recruiting participants and act as liaisons between the brain bank and participant families. Alzheimer's disease respite care program providers, memory disorder clinics, and model day care programs also recruit brain bank participants. The Florida Brain Bank supports collaborative research programs related to Alzheimer's disease and other degenerative disorders of the brain. | post-mortem, tissue, brain, alzheimer's disease, dementia, clinical, mild cognitive impairment, florida, brain bank, degenerative brain disorder |
is listed by: One Mind Biospecimen Bank Listing has parent organization: State of Florida Alzheimer's Disease Initiative has parent organization: Wien Center For Alzheimer's Disease and Memory Disorders |
Alzheimer's disease, Dementia, Mild Cognitive Impairment | State of Florida Department of Elder Affairs | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_143950 | http://elderaffairs.state.fl.us/english/BrainBank/index.php | SCR_004936 | State of Florida Brain Bank, Florida Alzheimer's Disease Brain Bank | 2026-02-16 09:46:24 | 0 | |||||
|
Alzheimer's and Dementia Resource Center Resource Report Resource Website 100+ mentions |
Alzheimer's and Dementia Resource Center (RRID:SCR_004924) | ADRC | brain bank, tissue bank, material resource, biomaterial supply resource | The Alzheimer's and Dementia Resource Center (ADRC) facilitates tissue donations for the Brain Bank Research Program in order to help find better treatments, more diagnostic tools and a cure for Alzheimer's disease and dementia. The Brain Bank Program is administered by Mount Sinai Medical Center in Miami Beach and under contract with the Florida Department of Elder Affairs. ADRC also provides caregivers with the educational resources, spiritual comfort and emotional support. The ADRC facilitates training for professional caregivers that meets requirements for the Florida Department of Elder Affairs. | alzheimer's disease, dementia, brain, tissue, brain bank, caregiver, educational resource, patient support | is listed by: One Mind Biospecimen Bank Listing | Alzheimer's disease, Dementia | Public, Registration and pre-registration required to access the brain bank | nlx_143948 | SCR_004924 | alzheimer's disease, tissue, brain, patient support, educational resource, caregiver, dementia, brain bank | 2026-02-16 09:46:33 | 421 | ||||||
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PheKB Resource Report Resource Website 10+ mentions |
PheKB (RRID:SCR_005292) | PheKB | software repository, knowledge environment, software resource | Collaborative environment of building and validating electronic phenotype algorithms using electronic medical records (EMRs) and natural language processing (NLP) for use in genome-wide association studies (GWAS). On this site you can: View existing algorithms, Enter or create new algorithms, Collaborate with others to create or review algorithms, View implementation details for existing algorithms. The Electronic Medical Records and Genomics Network (eMERGE) has investigated whether data captured through routine clinical care using electronic medical records (EMRs) can identify disease phenotypes with sufficient positive and negative predictive values for use in genome-wide association studies (GWAS). Most EMRs captured key information (diagnoses, medications, laboratory tests) used to define phenotypes in a structured format; in addition, natural language processing has also been shown to improve case identification rates. PheKB is an outgrowth of that validation effort. Phenotype algorithms can be viewed by data modalities or methods used: CPT codes, ICD 10 codes, ICD 9 codes, Laboratories, Medications, Vital Signs, Natural Language Processing Algorithms can also be viewed by: * Implementation results (positive predictive value, sensitivity, publications) * Institution * Work Group | phenotype, electronic medical record, medical record, human, clinical, white blood cell, red blood cell, lipid, algorithm, height, cardiac conduction, genome-wide association study, natural language processing |
is related to: eMERGE Network: electronic Medical Records and Genomics has parent organization: Vanderbilt University; Tennessee; USA |
Atrial fibrillation, Crohn''''s disease, Multiple Sclerosis, Rheumatoid arthritis, Type 2 diabetes mellitus, Dementia, Cataracts, Hypothyroidism, Diabetic Retinopathy, High-Density Lipoprotein, Peripheral Arterial Disease | PMID:20362271 | nlx_144339 | SCR_005292 | Phenotype KnowledgeBase, PheKB - a knowledgebase for discovering phenotypes from electronic medical records | 2026-02-16 09:46:27 | 28 | ||||||
|
NeuroBiobank Munich Resource Report Resource Website 10+ mentions |
NeuroBiobank Munich (RRID:SCR_005014) | NBM | tissue bank, material resource, biomaterial supply resource | A brain bank which collects brain tissue from patients who died from various neurological and psychiatric diseases. These tissues are available for biochemical, molecular biological, and other work groups with the aim of supporting research on the pathogenesis, diagnosis, and therapy of these diseases. Collected brains are clinically and neuropathologically well-characterized. The collection and distribution of brain tissue samples is an ongoing process. NeuroBiobank Munich offers help with the organization and implementation of autopsies as well as with the neuropathologic diagnostics. The thematic emphasis of the NeuroBiobank Munich is Parkinson's disease and demential degenerative disorders such as Alzheimer's disease or Creutzfeldt-Jakob disease. NeuroBiobank Munich coordinates the German national brain tissue bank (BrainNet) and the European brain tissue bank (BrainNet Europe). | brain, tissue, brain bank, neurological disease, mental disease, parkinson's disease, alzheimer's disease, creutzfeldt-jakob syndrome, post mortem, neurodegenerative disease, dementia |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Ludwig-Maximilians-University; Munich; Germany |
Parkinson's disease, Alzheimer's disease, Creutzfeldt-Jakob Syndrome, Neurodegenerative disease, Dementia | Public | nlx_144006 | SCR_005014 | ZNP Biobank | 2026-02-16 09:46:35 | 26 | ||||||
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Dementia Brain Bank Research Program Resource Report Resource Website |
Dementia Brain Bank Research Program (RRID:SCR_005129) | tissue bank, material resource, biomaterial supply resource | A brain bank which has obtained brains from individuals who suffered from some form of dementia. Clinical records and a family history are obtained for each donor in order to better understand each dementing illness and to work towards the improvement of diagnosing, treating, and preventing these diseases. | dementia, clinical data, family history, alzheimer's disease, brain, tissue |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Regions Hospital Alzheimer's Research Center |
Dementia, Alzheimer's disease | nlx_144137 | SCR_005129 | Brain Bank Research Program | 2026-02-16 09:46:36 | 0 | ||||||||
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University of Kentucky's Alzheimer's Disease Center Resource Report Resource Website 1+ mentions |
University of Kentucky's Alzheimer's Disease Center (RRID:SCR_008766) | UK-ADC, UK ADC | tissue bank, material resource, biomaterial supply resource | An organization which includes a tissue bank, a database, study design consultation, clinical resources, and a community registry database. The UK-ADC shares data with the NIA national database (NACC), as well as with independent, qualified investigators both within and outside the UK-ADC. This resource's associated tissue bank is comprised of anonymized brain tissue, blood, and cerebrospinal fluid samples from patients in the clinic, as well as frozen post-mortem brain tissue samples. This organization also shares research resources with the National Alzheimer's Coordinating Center (NACC), NACC collaborative initiatives, the Alzheimer's Disease Neuroimaging Initiative (ADNI), other Alzheimer Disease Centers (ADCs), and any qualified investigators from either the University of Kentucky or the general scientific community. | post-mortem, brain, brain tissue, cerebral spinal fluid, serum, plasma, buffy coat, blood, alzheimer's disease, dementing disorder, mild cognitive impairment, dementia, frozen, formalin fixed, paraffin embedded slide, clinical, neuropathology, neuropathologic disease, neuropathologic diagnosis, clinical, registry |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Kentucky Alzheimer's Disease Center |
Alzheimer's disease, Dementing disorder, Dementia, Neuropathologic diagnosis | NIA P30 AG028383 | Public | nlx_144056 | http://www.mc.uky.edu/coa/clinicalcore/alzheimercenter.html#neuropathology, http://www.mc.uky.edu/coa/clinicalcore/Neuropathology%20Core.html | SCR_008766 | University of Kentucky Alzheimer's Disease Center Biospecimen Data or Clinical Request, UK-Alzheimer's Disease Center Biospecimen Data or Clinical Request | 2026-02-16 09:47:16 | 1 | ||||
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Seattle Longitudinal Study Resource Report Resource Website |
Seattle Longitudinal Study (RRID:SCR_003654) | SLS | data set, data or information resource | Data set from an ongoing, longitudinal-sequential study of adult-cognitive development, which began in 1956, that focuses on individual differences in age-related changes and differences across cohorts. The general purpose of the study is to examine the changes in intelligence and various abilities throughout adulthood. The data provide a normative base to determine the ages of detectable decrements in ability and the magnitudes of the decrements. The study also seeks to examine patterns of generational differences and age-related differences and to determine the effects of educational intervention on intellectual decline. This study is a mixed cross-sectional, longitudinal, and time-lag design. Included are family studies of cognitive similarity, prospective studies of early signs of dementia via psychological and genetic markers, as well as the investigation of personality and demographic variables that affect cognitive change in adults from young adulthood to advanced old age. Questionnaire topics include health behavior, behavioral rigidity, family environment, Life Complexity Inventory, CES-D Depression, and cognitive and neuropsychology batteries. Group Health Cooperative of Puget Sound Medical Records and Pharmacy Records. * Dates of Study: 1956-Present * Study Features: Longitudinal * Sample Size: 6,000+ | late adult human, blood pressure, cognition, cohort study, exercise, female, leisure activity, likelihood function, linear model, male, memory, middle adult human, multivariate analysis, professional autonomy, risk factor, washington, longitudinal, psychological development, personality, demographic, cognitive ability, cognitive functioning, cognitive impairment, cognitive processes, intelligence, questionnaire, health behavior, behavioral rigidity, family environment, life complexity inventory, ces-d depression, cognitive battery, neuropsychology battery, behavior |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Pennsylvania State University |
Aging, Dementia, Cognition disorder | NIA | PMID:19606423 | Must consult data owners directly | nlx_157807 | http://geron.psu.edu/sls/ | SCR_003654 | Seattle Longitudinal Study (SLS) of Adult Cognitive Development, Seattle Longitudinal Study of Adult Cognitive Development | 2026-02-16 09:46:14 | 0 | |||
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Aging Dementia and Traumatic Brain Injury Study Resource Report Resource Website 10+ mentions |
Aging Dementia and Traumatic Brain Injury Study (RRID:SCR_014554) | data set, data or information resource | The Aging, Dementia and Traumatic Brain Injury Study is a detailed neuropathologic, molecular and transcriptomic characterization of brains of control and TBI exposure cases from a unique aged population-based cohort from the Adult Changes in Thought (ACT) study. The study contains six data sets: histology and immunohistochemistry, in situ hybridization, rna-seq, protein quantification by luminex, isoprostane quantification, and specimen metadata. | aging, dementia, traumatic brain injury, study, data set, histology, immunohistochemistry, in situ, hybridization, rna seq, protein quantification, isoprostane quantification, specimen, metadata, human |
has parent organization: Allen Institute for Brain Science has parent organization: University of Washington; Seattle; USA |
Aging, Dementia, Traumatic brain injury | Paul G. Allen Family Foundation | Available to the research community | SCR_014554 | Aging Dementia and TBI Study | 2026-02-16 09:48:35 | 23 |
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