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Resource Name
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National Ataxia Foundation Patient Registries (RRID:SCR_005341)
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Resource Information

URL: http://www.ataxia.org/research/patient-registry.aspx

Proper Citation: National Ataxia Foundation Patient Registries (RRID:SCR_005341)

Description: A portal presenting the patient registries and databases of the National Ataxia Foundation. The registries include: Ataxia Patient Registry at CoRDS, Friedreich's Ataxia Research Alliance Patient Registry; the Fragile X Research Registry; Autosomal recessive spastic ataxia of Charlevoix-Saguenay ARSACS; and, Ataxia-Telangiectasia (A-T) Children's Project Family Data Base.

Abbreviations: NAF Patient Registries

Resource Type: people resource, patient registry

Keywords: ataxia, friedreich's ataxia, fragile x syndrome, patient registry, patient database

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This resource

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National Ataxia Foundation

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