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Resource Name Proper Citation Abbreviations Resource Type Description Keywords Resource Relationships Related Condition Funding Defining Citation Availability Website Status Alternate IDs Alternate URLs Old URLs Parent Organization Resource ID Synonyms Record Last Update Mentions Count
CERAD - Consortium to Establish a Registry for Alzheimer's Disease
 
Resource Report
Resource Website
1000+ mentions
CERAD - Consortium to Establish a Registry for Alzheimer's Disease (RRID:SCR_003016) CERAD assessment test provider, material resource THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 4, 2023.Consortium that developed brief, standardized and reliable procedures for the evaluation and diagnosis of patients with Alzheimer's disease (AD) and other dementias of the elderly. These procedures included data forms, flipbooks, guidebooks, brochures, instruction manuals and demonstration tapes, which are now available for purchase. The CERAD assessment material can be used for research purposes as well as for patient care. CERAD has developed several basic standardized instruments, each consisting of brief forms designed to gather data on normal persons as well as on cognitively impaired or behaviorally disturbed individuals. Such data permit the identification of dementia based on clinical, neuropsychological, behavioral or neuropathological criteria. Staff at participating CERAD sites were trained and certified to administer the assessment instruments and to evaluate the subjects enrolled in the study. Cases and controls were evaluated at entry and annually thereafter including (when possible) autopsy examination of the brain to track the natural progression of AD and to obtain neuropathological confirmation of the clinical diagnosis. The CERAD database has become a major resource for research in Alzheimer's disease. It contains longitudinal data for periods as long as seven years on the natural progression of the disorder as well as information on clinical and neuropsychological changes and neuropathological manifestations., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. clinical, behavior, late adult human, male, female, caucasian, african-american, autopsy, longitudinal, neuropsychology, neuropathology, FASEB list has parent organization: Duke University; North Carolina; USA Aging, Alzheimer's disease, Dementia, Cognitive impairment, Neurodegenerative disorder, Systemic illness, Cerebrovascular disease, Parkinson's disease, Depressive Disorder NIA THIS RESOURCE IS NO LONGER IN SERVICE nif-0000-00523 SCR_003016 Consortium to Establish a Registry for Alzheimer's Disease 2026-02-07 02:13:55 2336
Duke University Kathleen Price Bryan Brain Bank
 
Resource Report
Resource Website
Duke University Kathleen Price Bryan Brain Bank (RRID:SCR_005022) biomaterial supply resource, tissue bank, material resource, brain bank A research repository of human brains with neurological disorders and normal controls, recruited through the Autopsy and Brain Donation Program coordinator. The Kathleen Price Bryan Brain Bank contains brains from patients with Alzheimer's disease, Parkinson's disease, Amyotrophic Lateral Sclerosis, Huntington's disease, Muscular Dystrophy, and other neurological and dementing disorders. The brain tissue is subjected to a detailed neuropathological evaluation and then stored as fixed and frozen hemispheres, paraffin blocks and histological slides. After receipt of an IRB approved request, tissue is supplied to investigators at Duke University, major medical centers and pharmaceutical companies across the United States and worldwide. brain, tissue, brain bank, biospecimen repository, spinal cord, cerebral spinal fluid, dna, fixed hemisphere, frozen hemispheres, paraffin block, histological slide, neurological disorder, alzheimer's disease, parkinson's disease, huntington's disease, dementing disorder, muscular dystrophy is listed by: One Mind Biospecimen Bank Listing
has parent organization: Joseph and Kathleen Bryan Alzheimer's Disease Research Center
Neurological disorder, Normal control, Alzheimers disease, Dementing disorder, Parkinsons disease, Amyotrophic Lateral Sclerosis, Huntingtons disease, Muscular Dystrophy NIA P30 AG028377 Public, Tissue must be requested, Available to the research community nlx_144011 SCR_005022 Bryan Brain Bank, Kathleen Price Bryan Brain Bank, DU Brain Bank 2026-02-11 10:57:01 0
Taub Institute for Research on Alzheimers Disease and the Aging Brain
 
Resource Report
Resource Website
Taub Institute for Research on Alzheimers Disease and the Aging Brain (RRID:SCR_008802) biomaterial supply resource, tissue bank, material resource, brain bank An institute which conducts research of Alzheimer's, Parkinson's and other age-related brain diseases. This organization also provides clinical evaluations to patients with memory problems, Alzheimer's disease or other types of dementia. Furthermore, the institute leads multi-center clinical trials for the treatment and prevention of Alzheimer's, Parkinson's and other age-related brain diseases. There is a brain donation program for enrolled/examined patients. The Education Core of the Taub Institute sponsors community events and Continuing Medical Education programs, as well as the distribution of periodic newsletters and brochures highlighting research developments and other Alzheimer's topics. alzheimer's disease, parkinson's disease, age-related brain disease, neurodegenerative disease, late adult human, frontotemporal lobar degeneration, lewy body dementia, vascular disease, metabolic disease, geriatric psychiatry, normal aging, autopsy, brain tissue, brain, tissue, imaging, clinical trial, cell biology, neuroscience, cognitive neuroscience is listed by: One Mind Biospecimen Bank Listing
has parent organization: Columbia University; New York; USA
Alzheimer's disease, Parkinson's disease, Age-related brain disease, Neurodegenerative disease, Frontotemporal lobar degeneration, Lewy body dementia, Vascular disease, Metabolic disease, Aging NIA ;
Taub Family Foundation
nlx_144343 SCR_008802 Taub Institute ADRC, Taub Center for Alzheimer's Disease Research, Taub Institute Alzheimer's Disease Research Center, Taub Institute for Research on Alzheimer’s Disease 2026-02-11 10:58:02 0
Massachusetts Alzheimer's Disease Research Center
 
Resource Report
Resource Website
1+ mentions
Massachusetts Alzheimer's Disease Research Center (RRID:SCR_008764) MADRC, ADRC biomaterial supply resource, tissue bank, material resource, brain bank An Alzheimer's disease research center which supports new research and enhances ongoing research by providing core support to bringing together behavioral, biomedical, and clinical scientists. The Center conducts multidisciplinary research, trains scientists, and spreads information about Alzheimer's disease and related disorders to the general public. The principal goal of the Massachusetts ADRC is to support research in aging, Alzheimer's Disease and other related disorders. Researchers work with national and international multi-disciplinary teams to understand: normal aging, the transition from normal aging to mild forms of memory problems, and the later stages of dementia. The Massachusetts ADRC has an active brain donation program at the Massachusetts General Hospital (MGH) for patients as well as subjects enrolled in research studies. brain, tissue, healthy control, alzheimer's disease, neurological disease, parkinson's disease, frontotemporal dementia, dementia with lewy bodies, dementia, neurodegenerative disease is listed by: One Mind Biospecimen Bank Listing
has parent organization: Harvard Medical School; Massachusetts; USA
Aging, Alzheimer's disease, Neurological disease, Parkinson's disease, Frontotemporal dementia, Pick's disease, Primary Progressive Aphasia, Dementia with Lewy bodies, Dementia, Progressive Supranuclear Palsy, Corticobasal Degeneration, Vascular dementia, Cerebral Amyloid Angiopathy, Dementia pugilistica, Boxer's Syndrome, Neurodegenerative disease U.S. Department of Health and Human Services ;
NIA
Public, Available to the research community nlx_144104 SCR_008764 Massachusetts ADRC, Massachusetts Alzheimer's Disease Research Center 2026-02-11 10:57:54 1
Rush Alzheimer's Disease Center
 
Resource Report
Resource Website
1+ mentions
Rush Alzheimer's Disease Center (RRID:SCR_008763) RADC biomaterial supply resource, tissue bank, material resource, brain bank An Alzheimer's disease center which researches the cause, treatment and prevention of Alzheimer's disease with a focus on four main areas of research: risk factors for Alzheimer's and related disorders, the neurological basis of the disease, diagnosis, and treatment. Data includes a number of computed variables that are available for ROS, MAP and MARS cohorts. These variables are under categories such as affect and personality, chronic medical conditions, and clinical diagnosis. Specimens include ante-mortem and post-mortem samples obtained from subjects evaluated by ROS, MAP and clinical study cores. Specimen categories include: Brain tissue (Fixed and frozen), Spinal cord, Muscles (Post-mortem), and Nerve (Post-mortem), among other types of specimens. Data sharing policies and procedures apply to obtaining ante-mortem and post-mortem specimens from participants evaluated by the selected cohorts of the RADC. clinical, post mortem, ante mortem, late adult human, brain, tissue, spinal cord, muscle, nerve, dna, lymphocyte, serum, plasma, urine, fixed, frozen, cryopreserved, alzheimer's disease, memory is listed by: One Mind Biospecimen Bank Listing Alzheimer's disease, Alzheimer's-related disorder, Aging NIA Available to the research community, Data sharing policies apply to both data and specimens nlx_144050 SCR_008763 Rush ADC, Rush Alzheimer's Disease Center 2026-02-11 10:57:51 3
NYU Alzheimer's Disease Center
 
Resource Report
Resource Website
NYU Alzheimer's Disease Center (RRID:SCR_008754) NYU ADC biomaterial supply resource, tissue bank, material resource, brain bank The NYU Alzheimer's Disease Center is part of the Department of Psychiatry at New York University School of Medicine. The center's goals are to advance current knowledge and understanding of brain aging and Alzheimer's disease, to expand the numbers of scientists working in the field of aging and Alzheimer's research, to work toward better treatment options and care for patients, and to apply and share its findings with healthcare providers, researchers, and the general public. The ADC's programs and services extend to other research facilities and to healthcare professionals through the use of its core facilities. The NYU ADC is made up of seven core facilities: Administrative Core, Clinical Core, Neuropathology Core, Education Core, Data Management and Biostatistics Core, Neuroimaging Core, and Psychosocial Core. brain, tissue, alzheimer's disease, dementia, meeting resource, clinical, imaging, neuroimaging, psychosocial, post-mortem, autopsy, vaccination, treatment is listed by: One Mind Biospecimen Bank Listing
has parent organization: New York University School of Medicine; New York; USA
Alzheimer's disease, Dementia, Aging NIA Available to collaborators nlx_144383 http://www.med.nyu.edu/adc/ SCR_008754 NYU Alzheimer's Disease Center, New York University Alzheimer's Disease Center 2026-02-11 10:57:54 0
Stanford/VA Aging Clinical Research Center
 
Resource Report
Resource Website
1+ mentions
Stanford/VA Aging Clinical Research Center (RRID:SCR_008678) ACRC biomaterial supply resource, tissue bank, material resource, brain bank Portal for gerontology research with a variety of clinical, research and educational programs, with the aim of improving the lives of those affected by Alzheimer's Disease and memory losses associated with normal aging. The Center investigates the nature of Alzheimer's Disease, its progression over time, its response to treatments, and problems patients and caregivers experience in dealing with the changes that occur. It also conducts studies that look at changes that occur over the course of normal aging and have a Normal Aging Brain Donor Program. The Aging Clinical Research Center puts out a newsletter that showcases various projects and includes informative articles on dementia. gerontology, alzheimer's disease, memory loss, normal aging, dementia, late adult human, post-traumatic stress disorder, sleep disorder, brain tissue, tissue, brain, depressive disorder, late adult human, clinical data is listed by: One Mind Biospecimen Bank Listing
has parent organization: Stanford University School of Medicine; California; USA
is parent organization of: Geriatric Depression Scale
is parent organization of: Signal Detection Software for Receiver Operator Characteristics
is parent organization of: Geriatric Psychiatry Knowledge Test
Aging, Alzheimer's disease, Memory loss, Dementia NIA ;
United States Department of Veterans Affairs
Public, Available to the research community nlx_143944 http://alzheimer.stanford.edu SCR_008678 Stanford/VA ACRC 2026-02-11 10:57:53 1
Precursors of Premature Disease and Death
 
Resource Report
Resource Website
Precursors of Premature Disease and Death (RRID:SCR_010483) Precursors of Premature Disease and Death data or information resource, data set Data set of annual questionnaires of a long-term prospective study of 1,337 former Johns Hopkins University medical students to identify precursors of premature cardiovascular disease and hypertension. The purpose of the study has broadened, however, as the cohort has aged. The study has been funded for 15 years. Participants were an average of 22 years of age at entry and have been followed to an average age of 69 years. Data are collected through annual questionnaires, supplemented with phone calls and substudies. Self-reports of diseases and risk factors have been validated. Every year from 1988 to 2003, anywhere from 2 to 6 questionnaires have been administered, in categories such as the following, which repeat periodically: Morbidity, Supplemental Illness, Health Behavior, Family and Career, Retirement, Job Satisfaction, Blood Pressure and Weight, Medications, Work Environment, Social Network, Diabetes, Osteoarthritis, Health Locus of Control, Preventive Health Services, General Health, Functional Limitations, Memory Functioning, Smoking, Religious Beliefs and Practices, Links with Administrative Data, National Death Index searches for all nonrespondents * Dates of Study: 1946-2003 * Study Features: Longitudinal * Sample Size: 1,337 (1946) questionnaire, longitudinal, precursor, morbidity, illness, health, behavior, family, career, retirement, job satisfaction, blood pressure, weight, medication, work environment, social network, preventive health services, functional limitation, memory, smoking, religion, death, adult human, early adult human, middle adult human, late adult human is related to: National Archive of Computerized Data on Aging (NACDA)
has parent organization: Johns Hopkins University School of Medicine; Baltimore, Maryland; USA
Aging, Cardiovascular disease, Hypertension, Diabetes, Osteoarthritis NIA nlx_157767 SCR_010483 2026-02-11 10:58:19 0
Resources for Enhancing Alzheimers Caregiver Health
 
Resource Report
Resource Website
Resources for Enhancing Alzheimers Caregiver Health (RRID:SCR_003638) REACH data or information resource, data set Data set from six research sites that examined the feasibility and outcomes of the most promising home and community-based intervention approaches for enhancing family caregiving for Alzheimers Disease (AD) and related disorders (ADRD). A unique feature is the examination of AD burdens and interventions in three ethnic groups (Caucasians, Hispanics, and African Americans). Caregiver/care recipient dyads are entered into the study using standardized eligibility criteria. The dyads are randomized at each intervention site using site-specific procedures. Standardized assessment batteries are administered at baseline, 6, 12, and 18 months. The five general types of REACH interventions are: Individual Information and Support strategies that increase caregivers' understanding of dementia and their particular caregiving situation; Group Support and Family Systems efforts that provide caregivers with multiple forms of social support; Psychoeducational and Skill-Based Training approaches that teach caregivers coping and behavioral management strategies; Home-Based Environmental interventions that modify the home environment's effect on the care recipient and support the caregiver; and Enhanced Technology Systems such as home-centered computer/telephone networks that are designed to reduce caregiver distress and isolation. REACH II was funded in 2001 to test a single multi-component intervention among family caregivers of persons with ADRD, building upon the findings of REACH. Recruitment for REACH II was completed in January 2004 with 642 participants entering the study across 5 participating sites. longitudinal, minority, caucasian, hispanic, african american, intervention, caregiver, caregiver burden, emotional state, family, health services utilization, health status, home health care, mental disorder, mental health, late adult human, outreach program, psychological wellbeing, questionnaire, anxiety, caregiver health, health behavior, sociodemographic, medication is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
has parent organization: University of Pittsburgh; Pennsylvania; USA
Aging, Alzheimer's disease, Alzheimer's related disorder, Dementia, Stress NIA ;
NINR
nlx_157789 http://www.edc.pitt/REACH SCR_003638 Resources for Enhancing Alzheimer's Caregiver Health (REACH), Resources for Enhancing Alzheimer's Caregiver Health 2026-02-11 10:56:46 0
Piedmont Health Survey of the Elderly
 
Resource Report
Resource Website
Piedmont Health Survey of the Elderly (RRID:SCR_006349) PHSE data or information resource, data set Data set of a follow-up study (one of four Established Populations for Epidemiologic Studies of the Elderly - EPESE) that obtains information on four primary outcome variables (cognitive status, depression, functional status, and mortality) and four primary independent variables (social support, social class, social location, and chronic illness); and examines the relationships between social factors and chronic disease on the one hand and health outcomes on the other. This data set complements the other three sites providing a population which is both urban and rural and contains approximately equal numbers of black and white participants across a broad socioeconomic base. The Duke site was originally funded by the NIA Epidemiology, Demography and Biometry Program (EDBP) to complete seven waves of data collection (three in-person and four telephone interviews) in order to examine the health of a sample of 4,162 persons aged 65+, and factors that influence their health and use of health services. The cohort was originally interviewed in 1986/87 and followed annually for 6 years thereafter. The study design consisted of a random stratified household sample with an over-sampling of blacks. Questionnaire topics include the following: Demographics, Alcohol Use, Independence, Health condition, Cognition, Personal mastery, Health Service Utilization, Activity of daily living, Social Support, Hearing and Vision, Incontinence, Social Interaction, Weight and Height, Smoking, Religion, Nutrition, Life Satisfaction, Self Esteem, Sleep, Medications, Economic Status, Depression, Life Changes, Blood pressure. National Death Index files have been searched and death certificates obtained for the members of this study. Sample members have been matched with Medicare Part A files to obtain information on hospitalizations, and will be matched on Medicare Part B (outpatient) files. Data from the first wave of the survey is in the public domain and can be obtained from NACDA or from the National Archives, Center for Electronic Records in Washington, DC. * Dates of Study: 1996-1997 * Study Features: Longitudinal, Oversampling * Sample Size: 1986-1988: 4,162 Links: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/02744 * National Archives: http://www.archives.gov/research/electronic-records/ late adult human, african-american, caucasian, interview, questionnaire, health, health service utilization, cognitive status, functional status, mortality, social support, social class, social location, chronic illness, social factor, chronic disease, health outcome, questionnaire, demographics, alcohol use, independence, health condition, cognition, personal mastery, activity of daily living, social support, hearing, vision, incontinence, social interaction, weight, height, smoking, religion, nutrition, life satisfaction, self esteem, sleep, medication, economic status, depression, life change, blood pressure, survey, chronic illness, disease, epidemiology, hospitalization, long term care, mortality rate, risk factor, death, clinical is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
is related to: Established Populations for Epidemiologic Studies of the Elderly
has parent organization: Duke University School of Medicine; North Carolina; USA
has parent organization: National Archive of Computerized Data on Aging (NACDA)
Aging, All noninstitutionalized persons 65 years of age and older (at baseline, 1986-1987) in Durham, Warren, Vance, Granville, And Franklin counties in north central North Carolina NIA 1-R01 AG12765 Public: This product is distributed as a CD-ROM. nlx_152068 SCR_006349 Piedmont Health Survey of the Elderly (PHSE) Ten-Year Follow-up of the North Carolina EPESE 2026-02-11 10:57:18 0
English Longitudinal Study of Ageing
 
Resource Report
Resource Website
10+ mentions
English Longitudinal Study of Ageing (RRID:SCR_006727) ELSA data or information resource, data set An interdisciplinary data resource on health, economic position and quality of life as people age. Longitudinal multidisciplinary data from a representative sample of the English population aged 50 and older have been collected. Both objective and subjective data are collected relating to health and disability, biological markers of disease, economic circumstance, social participation, networks and well-being. Participants are surveyed every two years to see how people''s health, economic and social circumstances may change over time. One of the study''s aims is to determine the relationships between functioning and health, social networks, resources and economic position as people plan for, move into and progress beyond retirement. It is patterned after the Health and Retirement Study, a similar study based in the United States. ELSA''s method of data collection includes face-to-face interview with respondents aged 50+; self-completion; and clinical, physical, and performance measurements (e.g., timed walk). Wave 2 added questions about quality of health care, literacy, and household consumption, and a visit by a nurse to obtain anthropometric, blood pressure, and lung function measurements, as well as saliva and blood samples, and to record results from tests of balance and muscle strength. Another new aspect of Wave 2 is the ''Exit Interview'' carried out with proxy informants to collect data about respondents who have died since Wave 1. This interview includes questions about the respondents'' physical and psychological health, the care and support they received, their memory and mood in the last year of their life, and details of what has happened to their finances after their death. Wave 3 data added questions related to mortgages and pensions. The intention is to conduct interviews every 2 years, and to have a nurse visit every 4 years. It also is envisioned that the ELSA data will ultimately be linked to available administrative data, such as death registry data, a cancer register, NHS hospital episodes data, National Insurance contributions, benefits, and tax credit records. The survey data are designed to be used for the investigation of a broad set of topics relevant to understanding the aging process. These include: * health trajectories, disability and healthy life expectancy; * the determinants of economic position in older age; * the links between economic position, physical health, cognition and mental health; * the nature and timing of retirement and post-retirement labour market activity; * household and family structure, social networks and social supports; * patterns, determinants and consequences of social, civic and cultural participation; * predictors of well-being. Current funding for ELSA will extend the panel to 12 years of study, giving significant potential for longitudinal analyses to examine causal processes. * Dates of Study: 2002-2007 * Study Features: Longitudinal, International, Anthropometric Measures * Sample Size: ** 2000-2003 (Wave 1): 12,100 ** 2004-2005 (Wave 2): 9,433 ** 2006-2007 (Wave 3): 9,771 ** 2008-2009 (Wave 4): underway Links * Economic and Social Data Service (ESDS): http://www.esds.ac.uk/longitudinal/about/overview.asp * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/00139#scope-of-study middle adult human, late adult human, adult human, biological marker, direct assessment, physical impairment, interview, clinical, physical, performance, health care, literacy, household consumption, anthropometric, blood pressure, lung function, measurement, saliva, blood, balance, muscle strength, psychological health, care, support, memory, mood, longitudinal, international, health, disability, economic circumstance, social participation, well-being, behavior, family life, health care, health status, household income, income, marriage, retirement, social network is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
has parent organization: University College London; London; United Kingdom
Aging NIA ;
UK Department of Health ;
UK Department of Social Security ;
other UK government departments
Public for the first 3 waves through the University of Essex Economic and Social Data Service (ESDS) website. Greater restrictions may apply for researchers seeking to access more sensitive data (e.g., Geographical classificatory variables and DNA). nlx_151823 SCR_006727 English Longitudinal Study of Ageing (ELSA), ELSA - English Longitudinal Study of Ageing, English Longitudinal Study of Aging 2026-02-11 10:57:25 16
Alameda County Health and Ways of Living Study
 
Resource Report
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Alameda County Health and Ways of Living Study (RRID:SCR_008889) Health and Ways of Living Study data or information resource, data set Data set from a long-term population-based prospective study of non-institutionalized residents (aged 21 or older, or aged 16-21 and older if married) in Alameda County, California investigating social and behavioral risk factors for morbidity, mortality, functioning and health. Questions were asked on marital and life satisfaction, parenting, physical activities, employment, health status, and childhood experiences. Demographic information on age, race, height, weight, education, income, and religion was also collected. Included with this dataset is a separate file (part 2) containing mortality data. With the aging of this cohort, data are becoming increasingly valuable for examining the life-long cumulative effects of social and behavioral factors on a well-characterized population. The first wave collected information for 6,928 respondents (including approximately 500 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The 1974 questionnaire was sent to 6,246 living subjects who had responded in 1965, and were able to be located. The third wave provides a follow-up of 2,729 original 1965 and 1974 respondents and examines health behaviors such as alcohol consumption and smoking habits, along with social activities. Also included is information on health conditions such as diabetes, osteoporosis, hormone replacement, and mental illness. Another central topic investigated is activities of daily living (including self-care such as dressing, eating, and shopping), along with use of free time and level of involvement in social, recreational, religious, and environmental groups. The fourth wave is a follow-up to the 1994 panel and examines changes in functional abilities such as self-care activities, employment, involvement in community activities, visiting friends/family, and use of free time since 1994. * Dates of Study: 1965-1999 * Sample Size: 1965: 6,928; 1974: 4,864; 1994: 2,729; 1995: 2,569, 1999: 2,123 * Study Features: Longitudinal Links: * 1965 ICPSR, http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06688 * 1974 ICPSR, http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06838 * 1994 and 1995 ICPSR, http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/03083 * 1999 ICPSR, http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/04432#summary longitudinal, adult, adolescent, social, behavior, risk factor, morbidity, mortality, functioning, health, woman, late adult human, chronic health condition, psychological characteristic, questionnaire, activities of daily living, chronic illness, community involvement, health behavior, health care service, independent living, living arrangement, mental health, physical condition, social behavior, social life, social network, survey data is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
is related to: National Archive of Computerized Data on Aging (NACDA)
has parent organization: University of Michigan; Ann Arbor; USA
Households in Alameda County, California., Aging NIA 5 R37 AG11375-03 Public nlx_151356 SCR_008889 Alameda County [California] Health and Ways of Living Study, Alameda County Health Ways Living Study 2026-02-11 10:57:53 0
Early Indicators of Later Work Levels Disease and Death (EI) - Union Army Samples Public Health and Ecological Datasets
 
Resource Report
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1+ mentions
Early Indicators of Later Work Levels Disease and Death (EI) - Union Army Samples Public Health and Ecological Datasets (RRID:SCR_008921) Early Indicators of Later Work Levels Disease and Death, EI project data or information resource, data set A dataset to advance the study of life-cycle interactions of biomedical and socioeconomic factors in the aging process. The EI project has assembled a variety of large datasets covering the life histories of approximately 39,616 white male volunteers (drawn from a random sample of 331 companies) who served in the Union Army (UA), and of about 6,000 African-American veterans from 51 randomly selected United States Colored Troops companies (USCT). Their military records were linked to pension and medical records that detailed the soldiers������?? health status and socioeconomic and family characteristics. Each soldier was searched for in the US decennial census for the years in which they were most likely to be found alive (1850, 1860, 1880, 1900, 1910). In addition, a sample consisting of 70,000 men examined for service in the Union Army between September 1864 and April 1865 has been assembled and linked only to census records. These records will be useful for life-cycle comparisons of those accepted and rejected for service. Military Data: The military service and wartime medical histories of the UA and USCT men were collected from the Union Army and United States Colored Troops military service records, carded medical records, and other wartime documents. Pension Data: Wherever possible, the UA and USCT samples have been linked to pension records, including surgeon''''s certificates. About 70% of men in the Union Army sample have a pension. These records provide the bulk of the socioeconomic and demographic information on these men from the late 1800s through the early 1900s, including family structure and employment information. In addition, the surgeon''''s certificates provide rich medical histories, with an average of 5 examinations per linked recruit for the UA, and about 2.5 exams per USCT recruit. Census Data: Both early and late-age familial and socioeconomic information is collected from the manuscript schedules of the federal censuses of 1850, 1860, 1870 (incomplete), 1880, 1900, and 1910. Data Availability: All of the datasets (Military Union Army; linked Census; Surgeon''''s Certificates; Examination Records, and supporting ecological and environmental variables) are publicly available from ICPSR. In addition, copies on CD-ROM may be obtained from the CPE, which also maintains an interactive Internet Data Archive and Documentation Library, which can be accessed on the Project Website. * Dates of Study: 1850-1910 * Study Features: Longitudinal, Minority Oversamples * Sample Size: ** Union Army: 35,747 ** Colored Troops: 6,187 ** Examination Sample: 70,800 ICPSR Link: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06836 late adult human, male, caucasian, african-american, veteran, military, medical, socioeconomic, civil war, american civil war, cause of death, census data, demographic, disease, health status, labor force, medical record, midlife, military pension, pension, military recruitment, military service, mortality rate, nineteenth century, nutrition, socioeconomic status, twentieth century, union army, census is related to: National Archive of Computerized Data on Aging (NACDA)
has parent organization: University of Chicago; Illinois; USA
Aging NIA PO1 AG10120;
NSF SBR 9114981
Publicly available from ICPSR; copies on CD-ROM may be obtained from the CPE, Which also maintains an interactive Internet Data Archive and Documentation Library. nlx_151822 http://www.cpe.uchicago.edu/ SCR_008921 Public Health and Ecological Datasets, Aging of Veterans of the Union Army, Early Indicators of Later Work Levels Disease and Death ������?? Union Army Samples 2026-02-11 10:57:53 1
Puerto Rican Elderly: Health Conditions
 
Resource Report
Resource Website
Puerto Rican Elderly: Health Conditions (RRID:SCR_008916) PREHCO data or information resource, data set A dataset that provides researchers and policy makers information about issues affecting the elderly population in Puerto Rico: health status, housing arrangements, functional status, transfers, labor history, migration, income, childhood characteristics, health insurance, use of health services, marital history, mistreat, sexuality, etc. It investigates the characteristics of older adults (aged 60+) through an island-wide cross-sectional sample survey of target individuals and their surviving spouses. The sampling frame was constructed on the basis of an advance release of the 2000 US Census. The population for the study consists of the elderly population (60+) in households in Puerto Rico. The sample design used a multistage probabilistic sample by cluster. All elderly adults who lived in the selected households were eligible. If more than one person was in the target population, one 60+ adult was the target and one was the spouse. Respondents 80+ and males in couples who were both 80+ were oversampled. There were 4,293 targets aged 60+ and 1,444 spouses (all ages) in the first wave. Types of data include demographic; household composition; marital history; Cantrill Scale; mini-mental (designed to measure cognitive capacity of Spanish-speaking Latinos with low levels of education and to provide early indications of dementia); self-reported health status; diagnosed health conditions; childhood conditions; transfers; labor history; migration; housing; assets; Activities of Daily Living; Instrumental Activities of Daily Living; medicines; health insurance and use of health services; family structure; sexuality; anthropometric measures. Project innovations include: (1) the design and test of a new tool for assessing cognition among Spanish speaking elderly of low levels of education, (2) a symptoms section to assess the validity of selected self reported conditions, (3) a modification of the Cantrill''s Ladder Scale, (4) protocols for physical measurements to assess current, as well as past, conditions, and (5) the use of GIS and GPS in the fieldwork supervision and to geocoding the survey data. At this moment PREHCO has completed a second wave to become a longitudinal study. The questionnaire included questions regarding the changing conditions (health, residential, social and economic) of those individuals who responded the first questionnaire. The new questionnaire included novel components: vignettes for health status self-report, a new improved section on disability and dependency, and on labor force participation. We also expanded the section of anthropometry by adding a few measurements and physical efficiency tests. Those participants deceased or institutionalized were interviewed using a proxy. Data Availability: First and second wave data are available for public use through BADGIR, the online data archive at the University of Wisconsin-Madison, at: http://nesstar.ssc.wisc.edu/ * Dates of Study: 2002-2003, 2004-2006 * Study Features: Longitudinal, International, Minority Oversampling, Anthropometric measures * Sample Size: 5,336 longitudinal, international, minority oversampling, anthropometric measure, late adult human, questionnaire, puerto rico, health, residence, social, economic, self-report, disability, dependency, labor force has parent organization: University of Wisconsin-Madison; Wisconsin; USA
has parent organization: University of Puerto Rico; Puerto Rico; USA
Late adult human, Aging NIA RO1 AG1620901A2 Public nlx_151829 SCR_008916 Puerto Rican Elderly: Health Conditions (PREHCO), Health Conditions of Elderly Puerto Ricans (PREHCO) 2026-02-11 10:57:58 0
Cross-Sectional and Longitudinal Aging Study
 
Resource Report
Resource Website
Cross-Sectional and Longitudinal Aging Study (RRID:SCR_008903) CALAS data or information resource, data set A data set designed to provide a cross-sectional description of health, mental, and social status of the oldest-old segment of the elderly population in Israel, and to serve as a baseline for a multiple-stage research program to correlate demographic, health, and functional status with subsequent mortality, selected morbidity, and institutionalization. Study data are based on a sample of Jewish subjects aged 75+, alive and living in Israel on January 1, 1989, randomly selected from the National Population Register (NPR), a complete listing of the Israeli population maintained by the Ministry of the Interior. The NPR is updated on a routine basis with births, deaths, and in and out migration, and corrected by linkage with census data. The sample was stratified by age (five 5-year age groups: 75-79, 80-84, 85-89, 90-94, 95+), sex, and place of birth (Israel, Asia-Africa, Europe-America). One hundred subjects were randomly selected in each of the 30 strata. However, there were less than 100 individuals of each sex aged 95+ born in Israel, so all were selected for the sample. The total group included 2,891 individuals living both in the community and in institutions. A total of 1,820 (76%) of the 75-94 age group were interviewed during 1989-1992. An additional cognitive exam (Folstein) and a 24-hour dietary recall interview were added in the second round. Kibbutz Residents Sample The kibbutz is a social and economic unit based on equality among members, common property and work, collaborative consumption, and democracy in decision making. There are 250 kibbutzim in Israel, and their population constitutes about 3% of the country''s total population. All kibbutz residents in the country aged 85+, both members and parents, were selected for interviewing, of whom 80.4% (n=652) were interviewed. A matched sample aged 75-84 was selected, and 85.9% (n=674) were successfully interviewed. The original interview took approximately two hours to administer, and collected extensive information concerning the socio-demographic, physical, health, functioning, life events (including Holocaust), depression, mental status, and social network characteristics of the sample. The questionnaire used for kibbutz residents in the follow-up interview is identical to that utilized in the national random sample. Data Availability: Mortality data for both the national and kibbutz samples are available for analysis as a result of the linkage to the NPR file updated as of June 2000. The fieldwork for first follow up was completed as of September 1994 and for the second follow up as of December 2002. The data file of the three phases of the study is ready for analysis. * Dates of Study: 1989-1992 * Study Features: Longitudinal, International * Sample Size: 2,891 late adult human, israel, cognition, jewish, diet, interview, social, economic, kibbutz, socio-demographic, physical, health, functioning, life event, depression, mental status, social network, questionnaire has parent organization: Tel Aviv University; Ramat Aviv; Israel
has parent organization: National Library of Medicine
Kibbutz Resident, Matched Resident, Israel resident, Aging NIA Public nlx_151821 SCR_008903 Cross-Sectional and Longitudinal Aging Study (CALAS) 2026-02-11 10:58:03 0
Matlab Health and Socio-Economic Survey
 
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Matlab Health and Socio-Economic Survey (RRID:SCR_008942) MHSS data or information resource, data set A data set of the health and socioeconomic factors that affect the elderly in Matlab, a region of rural Bangladesh. The survey captures measurements and statistics such as adult survival, health status, health care utilization, resource flows between generations and the impact of community services and infrastructure on adult health care. Data was collected through surveys that touch on four topics: household and individual information; determinants of natural fertility; migration out of the community; and community and provider survey of healthcare and education infrastructure. survey, bangladesh, adult, birth control, child development, culture, fertility, health behavior, health care, health care facility, health care service, health services utilization, health status, household budget, household expenditure, housing condition, infant feeding, reproductive history, school, social network, socioeconomic status, traditional medicine, women's health care, socioeconomic, behavior, family, community, household, woman, female, pregnancy status, outmigrant, family planning, international, questionnaire, clinical, interview, research, data is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
has parent organization: National Archive of Computerized Data on Aging (NACDA)
Aging NIA P01AG11952 Public, Data and documentation may be used for academic and public policy research purposes only nlx_151854 SCR_008942 Matlab Health and Socioeconomic Survey, Matlab Health and Socioeconomic Survey (MHSS), Matlab Health and Socio-Economic Survey (MHSS) 2026-02-11 10:57:59 0
Longitudinal Study of Elderly Mexican American Health
 
Resource Report
Resource Website
1+ mentions
Longitudinal Study of Elderly Mexican American Health (RRID:SCR_008941) HEPESE data or information resource, data set A dataset of a longitudinal study of over 3,000 Mexican-Americans aged 65 or over living in five southwestern states. The objective is to describe the physical and mental health of the study group and link them to key social variables (e.g., social support, health behavior, acculturation, migration). To the extent possible, the study was modeled after the existing EPESE studies, especially the Duke EPESE, which included a large sample if African-Americans. Unlike the other EPESE studies that were restricted to small geographic areas, the Hispanic EPESE aimed at obtaining a representative sample of community-dwelling Mexican-American elderly residing in Texas, New Mexico, Arizona, Colorado, and California. Approximately 85% of Mexican-American elderly reside in these states and data were obtained that are generalizable to roughly 500,000 older people. The final sample of 3,050 subjects at baseline is comparable to those of the other EPESE studies. Data Availability: Waves I to IV are available through the National Archive of Computerized Data on Aging (NACDA), ICPSR. Also available through NACDA is the ����??Resource Book of the Hispanic Established Populations for the Epidemiologic Studies of the Elderly����?? which offers a thorough review of the data and its applications. All subjects aged 75 or older were interviewed for Wave V and 902 new subjects were added. Hemoglobin A1c test kits were provided to subjects who self-reported diabetes. Approximately 270 of the kits were returned for analyses. Wave V data are being validated and reviewed. A tentative timeline for the archiving of Wave V data is November 2006. Wave VI interviewing and data collection is scheduled to begin in Fall 2006. * Dates of Study: 1993-2006 * Study Features: Longitudinal, Minority oversamples, Anthropometric Measures * Sample Size: ** 1993-4: 3,050 (Wave I) ** 1995-6: 2,438 (Wave II) ** 1998-9: 1,980 (Wave III) ** 2000-1: 1,682 (Wave IV) ** 2004-5: 2,073 (Wave V) ** 2006-7: (Wave VI) Links: * ICPSR Wave 1: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/2851 * ICPSR Wave 2: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/3385 * ICPSR Wave 3: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/4102 * ICPSR Wave 4: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/4314 * ICPSR Wave 5: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/25041 * ICPSR Wave 6: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/29654 longitudinal, minority, anthropometric measure, mexican-american, questionnaire, physical health, mental health, functional impairment, risk factor, mortality, morbidity, late adult human, southwestern united states, arizona, california, colorado, new mexico, texas, iadl, adl, living arrangement, blood pressure, social support, family, stress, life event, employment, health, acculturation, religion, social involvement, global health rating, self-esteem, medical condition, performance-oriented mobility assessment, ces-d, height, weight, cognition, health care services utilization, behavior, income, financial strain, medication, insurance coverage, migration, interview, hemoglobin a1c test, demographics, ethnicity, health behavior, health problem, health status, hispanic, latino american, life expectancy, quality of life is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
is related to: Established Populations for Epidemiologic Studies of the Elderly
has parent organization: University of Texas Medical Branch at Galveston
has parent organization: National Archive of Computerized Data on Aging (NACDA)
Aging, Diabetes NIA RO1 AG10939 Public nlx_151848 http://www.utmb.edu/pmch/hepese/, http://pmch.utmb.edu/sponsoredprograms/sp_populationhealth.aspxhttp://www.utexas.edu/cola/centers/prc/research/profiles/angellongitudinal/ SCR_008941 Longitudinal Study of Mexican-American Elderly Health (The Hispanic EPESE), Hispanic Established Populations for Epidemiologic Studies of the Elderly, Longitudinal Study of Mexican-American Elderly Health, Hispanic EPESE 2026-02-11 10:58:04 1
Cross-National Equivalent Files
 
Resource Report
Resource Website
Cross-National Equivalent Files (RRID:SCR_008935) CNEF data or information resource, data set A dataset, 1970-2009, containing equivalently defined variables for the British Household Panel Study (BHPS), the Household Income and Labour Dynamics in Australia (HILDA), the Korea Labor and Income Panel Study (KLIPS) (new this year), the Panel Study of Income Dynamics (PSID), the Russia Longitudinal Monitoring Survey (RLMS-HSE) (new this year), the Swiss Household Panel (SHP), the Canadian Survey of Labour and Income Dynamics (SLID), and the German Socio-Economic Panel (SOEP). The data are designed to allow cross-national researchers not experienced in panel data analysis to access a simplified version of these panels, while providing experienced panel data users with guidelines for formulating equivalent variables across countries. The CNEF permit researchers to track yearly changes in the health and economic well-being of older people relative to younger people in the study countries. The equivalent file provides a set of constructed variables (for example pre- and post-government income and United States and international household equivalence weights) that are not directly available on the original surveys. Since the Cross-National Equivalent File 1970-2009 can be merged with the original surveys, PSID-CNEF users can easily incorporate these constructed variables into current analyses. The most recent release of the Equivalent File includes: * BHPS data from 1991 to 2005 on over 21,000 individuals and approximately 6,000 households. * GSOEP data from 1984 to 2007 on over 20,000 individuals and approximately 6,000 households in Germany. * HILDA data from 2001 to 2006 on over 19,000 individuals and 7,000 households. * PSID data from 1980 to 2005 on over 33,000 individuals and approximately 7,000 households. * SHP data from 1999 to 2006 on 12,900 individuals and 5,000 households. * SLID data from 1993 to 2006 on over 95,000 individuals and approximately 32,000 households. With one exception, the CNEF country data are available on CD-ROM from Cornell University for a fee. The Canadian SLID data are not distributed on the CD but are available to CNEF registered researchers through special arrangements with Statistics Canada. Complete instructions for obtaining CNEF data may be accessed on the project website. * Dates of Study: 1980-2007 * Study Features: International, Longitudinal * Sample Size: ** BHPS: 21,000+ ** PSID: 33,000+ ** SLID: 95,000+ ** GSOEP: 20,000+ ** HILDA: 19,000+ ** SHP: 12,900+ NACDA link: http://www.icpsr.umich.edu/icpsrweb/NACDA/studies/00145/detail attitude, economic behavior, employment, family, health status, household expenditure, household income, housing, income, late adult human, poverty, canada, germany, great britain, united states, global is related to: National Archive of Computerized Data on Aging (NACDA)
is related to: German Socio-Economic Panel
has parent organization: Cornell University; New York; USA
Aging NIA 10-P-98358-5-02 Available on CD-ROM from Cornell University for a fee nlx_151820 http://www.human.cornell.edu/che/PAM/Research/Centers-Programs/German-Panel/cnef.cfm SCR_008935 Cross-National Equivalent Files (CNEF) 2026-02-11 10:58:04 0
National Nursing Home Survey Follow-Up
 
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Resource Website
National Nursing Home Survey Follow-Up (RRID:SCR_008948) NNHSF data or information resource, data set A longitudinal study which follows the cohort of current residents and discharged residents sampled from the 1985 National Nursing Home Survey (NNHS), thus permitting study of nursing home and hospital utilization over time. The study was conducted in three waves. To supplement the current and discharged resident components, the 1985 NNHS included a new component - the Next-of-Kin (NOK). The NOK, using a Computer Assisted Telephone Interviewing (CATI) system, was designed to collect information about current and former nursing home residents that is not generally available from patient records or other sources in the nursing home. The NNHSF obtains additional information on a portion of the residents for whom a Current Resident Questionnaire (CRQ) or a Discharged Resident Questionnaire (DRQ) was completed. In September 1994, the NNHSF Mortality Public Use Data Tape was released, covering the years 1984-1990. It contains the multiple cause-of-death information for 6,507 subjects from the NNHSF found to be deceased after linking and matching of files with the National Death Index. Information on the mortality tape includes the date of death, region of occurrence and residence, etc. All NNHSF tapes include a patient identification number common across files to allow linkage among them. Data Availability: Public Use data tapes for each wave and the mortality tape are available through the National Technical Information Office (NTIS), NACDA and the ICPSCR at the University of Michigan. The 1985 survey tape includes eight files: the facility questionnaire, nursing staff questionnaire, current resident questionnaire, discharged resident questionnaire, expense questionnaire, nursing staff sampling list, current resident sampling list, discharged resident sampling list. The next-of-kin questionnaire is available on a separate tape. * Dates of Study: 1987-1990 * Study Features: Longitudinal * Sample Size: ** 1987: 6,001 (Wave I) ** 1988: 3,868 (Wave II) ** 1990: 3,041 (Wave III) Links: * Wave I (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09813 * Wave II (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09838 * Wave III (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06142 longitudinal, survey, long-term care, hospital, interview, assisted living, health care, health services utilization, health status, institutional care, living arrangement, long term care, mortality rate, nursing home, late adult human, patient care, payment method, vital statistics, mortality, questionnaire, death, cause of death is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
has parent organization: National Center for Health Statistics
has parent organization: National Archive of Computerized Data on Aging (NACDA)
Aging NIA Public nlx_151865 SCR_008948 National Nursing Home Survey Followup, National Nursing Home Survey Followup (NNHSF) 2026-02-11 10:58:04 0
Nihon University Japanese Longitudinal Study of Aging
 
Resource Report
Resource Website
Nihon University Japanese Longitudinal Study of Aging (RRID:SCR_008974) NUJLSOA data or information resource, data set Longitudinal data set of a nationally representative sample of the population aged 65 and over in Japan, comparable to that collected in the US and other countries. The first two waves of data are now available to the international research community. The sample is refreshed with younger members at each wave so it remains representative of the population at each wave. The study was designed primarily to investigate health status of the Japanese elderly and changes in health status over time. An additional aim is to investigate the impact of long-term care insurance system on the use of services by the Japanese elderly and to investigate the relationship between co-residence and the use of long term care. While the focus of the survey is health and health service utilization, other topics relevant to the aging experience are included such as intergenerational exchange, living arrangements, caregiving, and labor force participation. The initial questionnaire was designed to be comparable to the (US) Longitudinal Study of Aging II (LSOAII), and to the Asset and Health Dynamics Among the Oldest Old (AHEAD, a pre-1924 birth cohort) sample of the Health and Retirement Study (HRS), which has now been merged with the HRS. The sample was selected using a multistage stratified sampling method to generate 340 primary sampling units (PSUs). The sample of individuals was selected for the most part by using the National Residents Registry System, considered to be universal and accurate because it is a legal requirement to report any move to local authorities within two weeks. From each of the 340 PSUs, 6-11 persons aged 65-74 were selected and 8-12 persons aged 75+ were sampled. The population 75+ was oversampled by a factor of 2. Weights have been developed for respondents to the first wave of the survey to reflect sampling probabilities. Weights for the second wave are under development. With these weights, the sample should be representative of the 65+ Japanese population. In fall 1999, 4,997 respondents aged 65+ were interviewed, 74.6 percent of the initial target. Twelve percent of responses were provided by proxies, because of physical or mental health problems. The second wave of data was collected in November 2001. The third wave was collected in November 2003. Questionnaire topics include family structure, and living arrangements; subjects'''' parents/spouse''''s parents/children; socioeconomic status; intergenerational exchange; health behaviors, chronic conditions, physical functioning; activities of daily living and instrumental activities of daily living; functioning in the community; mental health depression measures; vision and hearing; dental health; health care and other service utilization. A CD is available which include the codebook and data files for the first and second waves of the national sample. The third wave of data will be released at a later date. * Dates of Study: 1999-2003 * Study Features: Longitudinal, International * Sample Size: ** 4,997 Nov/Dec 1999 Wave 1 ** 3,992 Nov 2001 Wave 2 ** Nov 2003 Wave 3 Link: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/00156 longitudinal, international, japan, late adult human, health, disability, health care service, health services utilization, home health care, illness, independent living, living arrangement, long term care, nursing home, insurance, questionnaire, interview, family structure, living arrangement, parent, children, socioeconomic status, intergenerational exchange, health behavior, chronic condition, physical functioning, daily living, mental health, depression, vision, hearing, dental health, health care, health status, intergenerational exchange, living arrangement, caregiving, labor force participation, compact disk is listed by: Inter-university Consortium for Political and Social Research (ICPSR)
is related to: Longitudinal Studies of Aging
is related to: Health and Retirement Study
has parent organization: University of Southern California; Los Angeles; USA
has parent organization: Nihon University; Tokyo; Japan
Aging Nihon University; Tokyo; Japan ;
NIA AG021656;
NIA AG021609
Public: The data will only be released on CD after the signed agreement form is received. The CD will contain the data in SAS format as well as the codebook and questionnaire files. nlx_152062 SCR_008974 2026-02-11 10:57:59 0

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