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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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CAMD Resource Report Resource Website 1+ mentions |
CAMD (RRID:SCR_001389) | CAMD | data or information resource, portal, organization portal, consortium | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on July 8, 2022. Consortium developing new technologies and methods to accelerate the development and review of medical products for neurodegenerative diseases. It is focused on accelerating drug development for patients with chronic neurodegenerative disease, namely, Alzheimer's disease (AD) and Parkinson's disease (PD), by advancing drug development tools for evaluating drug efficacy, conducting clinical trials, and streamlining the process of regulatory review. The consortium focuses on sharing precompetitive patient-level data from the control arms of legacy clinical trials, developing new tools to be submitted to the regulatory agencies, and developing consensus data standards. CAMD has the following areas of focus: (1) qualification of biomarkers, (2) development of common data standards, (3) creation of integrated databases for clinical trials data, and (4) development of quantitative model-based tools for drug development. Regulatory milestones include a qualification opinion with EMA for the use of low baseline hippocampal volume for patient enrichment in pre-dementia trials, and most recently, positive regulatory decisions from the FDA and EMA for the use of a clinical trial simulation tool to aid in trials for mild to moderate stages of AD., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | data set, clinical trial, mild cognitive impairment, clinical, biomarker, metadata standard, disease progression model, consortium, drug, data sharing, disease modeling, drug development, disease model, imaging, cerebral spinal fluid |
is listed by: Consortia-pedia has parent organization: Critical Path Institute; Arizona; USA is parent organization of: CODR: C PATH On Line Data Repository |
Publicly funded | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_152563 | SCR_001389 | Coalition Against Major Diseases | 2026-02-17 09:59:38 | 6 | ||||||
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Brain Dynamics Centre Resource Report Resource Website |
Brain Dynamics Centre (RRID:SCR_001685) | data or information resource, topical portal, portal, database | The Brain Dynamics Centre (BDC) is a network of centers and units. It achieves a unique exploration of the healthy brain and disorders of brain function. It translates these insights into new ways to tailor treatments to the individual. There approach is: "integrative neuroscience" - bringing together clinical observations, theory, and modern imaging technologies. And it's theoretical framework derives from linking physiology, psychology and evolution. Additionally, BDC also actively researches ADHD and conduct disorder, stress and trauma-related problems, depression and anxiety, anorexia nervosa, psychosis (including early onset) and conversion disorders. The research facilities DBC include assessment, rooms, two cognition-brain function laboratories, genotyping and an MRI Suite with 1.5 and 3T GE systems. BDC is the coordinating site for an international network - BRAINnet. It has over 180 members, and coordinates access to the first standardized database on the human brain for scientific purposes: Brain Resource International Database. | evolution, function, genetics, adhd, anorexia nervosa, anxiety, behavior, brain, brain disorder, brain imaging, clinical, cognition, conduct disorder, conservation disorder, database, depression, disorder, genotyping, healthy, human, keywords: brain, laboratory, mental illness, mri, neuroscience, onset, physiology, post traumatic stress disorder (ptsd), psychology, psychosis, research, stress, technology, trauma, treatment | Free, Freely Available | nif-0000-10177 | SCR_001685 | BDC | 2026-02-17 09:59:41 | 0 | |||||||||
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Duke University Medical Center: Duke Image Analysis Laboratory Resource Report Resource Website 10+ mentions |
Duke University Medical Center: Duke Image Analysis Laboratory (RRID:SCR_001716) | data or information resource, topical portal, portal, database | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 23,2022. The Duke Image Analysis Laboratory (DIAL) is committed to providing comprehensive imaging support in research studies and clinical trials to various agencies. The capabilities of the lab include protocol development, site training and certification, and image archival and analysis for a variety of modalities including magnetic resonance imaging, magnetic resonance spectroscopy, computed tomography and nuclear medicine. DIAL uses the latest technologies to analyze Magnetic Resonance Imaging (MRI) data sets of the brain. Currently the lab is engaged in measurement of the hippocampus, amygdala, caudate, ventricular system, and other brain regional volumes. Each of these techniques have undergone a rigorous validation process. The measurements of brain structures provide a useful means of non-invasively testing for changes in the brain of the patient. Changes over time in the brain can be detected, and evaluated with respect to the treatment that the patient is receiving. Magnetic Resonance Spectroscopy (MRS) allows DIAL to obtain an accurate profile of the chemical content of the brain. This sensitive technique can detect small changes in the metabolic state of the brain; changes that vary in response to administration of therapeutic agents. The ability to detect these subtle shifts in brain chemistry allows DIAL to identify changes in the brain with more sensitivity than allowed by image analysis. In this respect, NMR spectroscopy can provide early detection of changes in the brain, and serves to compliment the data obtained from image analysis. Additionally, DIAL also contains SQUID (Scalable Query Utility and Image Database). It is an image management system developed to facilitate image management in research and clinical trials: SQUID offers secure, redundant image storage and organizational functions for sorting and searching digital images for a variety of modalities including MRI, MRS, CAT Scan, X-Ray and Nuclear Medicine. SQUID can access images directly from DUMC scanners. Data can also be loaded via DICOM CDs, THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | academic, amygdala, analysis, biotechnology, brain, cat scan, caudate, chemical, clinical, computed, development, digital, hippocampus, imaging, lab, laboratory, magnetic resonance imaging, magnetic resonance spectroscopy, medical, medicine, metabolic, mri, mrs, nmr, nuclear, nuclear medicine, pharmaceutical, research, spectroscopy, structure, technology, therapeutic, tomography, treatment, trial, ventricular, ventricular system, volume, x-ray, FASEB list | has parent organization: Duke University; North Carolina; USA | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-10213 | SCR_001716 | DMC DIAL | 2026-02-17 09:59:44 | 33 | ||||||||
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Type 1 Diabetes TrialNet Resource Report Resource Website 10+ mentions |
Type 1 Diabetes TrialNet (RRID:SCR_001508) | TrialNet | clinical trial, data or information resource, topical portal, resource, disease-related portal, database, portal | International network of researchers who are exploring ways to prevent, delay and reverse the progression of type 1 diabetes. It is conducting clinical trials with researchers from 18 Clinical Centers in the United States, Canada, Finland, United Kingdom, Italy, Germany, Australia and New Zealand. In addition, more than 150 medical centers and physician offices are participating in the TrialNet network. Studies are available for people newly diagnosed with type 1 diabetes, as well as for relatives of people with type 1 diabetes who are at greater risk of developing the disease. This NIH-sponsored clinical trials network conducts studies designed to evaluate new approaches to prevent or ameliorate type 1 diabetes specifically by interdicting the type 1 diabetes disease process. These include interventions designed to decrease beta-cell destruction and/or enhance beta-cell survival. Studies are conducted in non-diabetic persons at risk of type 1 diabetes in an effort to delay the development of type 1 diabetes as a clinical disease; or (if initiated prior to appearance of autoimmunity) in an effort to delay the appearance of autoimmunity; or in individuals with type 1 diabetes who are either newly diagnosed or have evidence of sustained beta cell function. Studies include long-term follow-up of subjects developing type 1 diabetes. The TrialNet network also supports natural history and genetics studies in populations screened for or enrolled in studies conducted by the TrialNet study group. In addition, TrialNet will evaluate methodologies that enhance the conduct of clinical trials interdicting the type 1 diabetes disease process. | intervention, beta-cell, clinical, child, young human, natural history, genetics, prevention, delay |
is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Central Repository has parent organization: University of South Florida; Florida; USA is parent organization of: Living Biobank |
Diabetes, Type 1 diabetes | NIDDK U01DK061058 | Available to the research community | nlx_152812 | SCR_001508 | 2026-02-17 09:59:40 | 22 | ||||||
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CKID A Prospective Cohort Study of Kidney Disease in Children Resource Report Resource Website 10+ mentions |
CKID A Prospective Cohort Study of Kidney Disease in Children (RRID:SCR_001500) | CKID | data or information resource, topical portal, resource, disease-related portal, bibliography, research forum portal, portal | Prospective, observational cohort study of children with mild to moderate chronic kidney disease (CKD) to: (1) determine risk factors for progression of pediatric chronic kidney disease (CKD); (2) examine the impact of CKD on neurocognitive development; (3) examine the impact of CKD on risk factors for cardiovascular disease, and; (4) examine the impact of CKD on growth. The CKiD study population will include a cohort of 540 children, age 1 16 years, expected to be enrolled over a 24-month period. | child, young human, pediatric, risk factor, kidney function, neurodevelopment, cognitive ability, behavior, kidney, urologic problem, glomerular disease, adverse effect, cognition, growth, adolescent, infant, clinical |
is listed by: NIDDK Information Network (dkNET) has parent organization: Johns Hopkins University; Maryland; USA |
Chronic kidney disease, Renal disease, Cardiovascular disease | NIDDK U01DK066174; NCRR M01RR000052 |
Free, Freely available | nlx_152790 | SCR_001500 | CKID: A Prospective Cohort Study of Kidney Disease in Children, Chronic Kidney Disease in Children | 2026-02-17 09:59:37 | 10 | |||||
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Teen-Longitudinal Assessment of Bariatric Surgery Resource Report Resource Website |
Teen-Longitudinal Assessment of Bariatric Surgery (RRID:SCR_001492) | data or information resource, portal, organization portal, consortium | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on June 29,2023. Consortium made up of five clinical centers and a data coordinating center. The goal of Teen-LABS is to conduct clinical, epidemiological, and behavioral research in adolescent bariatric surgery, through an observational prospective study protocol. Teen-LABS is an ancillary study to LABS, an observational study of adult bariatric surgery. Research staff, certified in standardized uniform data collection according to the protocol, collect data at pre-operative research visits, at surgery, 30 days and six months post-operative, and annual post-operative research visits at the five participating centers. | adolescent human, bariatrics, pre-operative, at surgery, post-operative, clinical, epidemiology, behavior, surgical outcome, metadata standard, observational study, clinical, experimental protocol, evidence-based recommendation, patient evaluation, follow-up care | is listed by: NIDDK Information Network (dkNET) | Bariatric surgery, Obesity | NIDDK R01DK080020 | THIS RESOURCE IS NO LONGER IN SERVICE | SCR_014388, nlx_152747 | SCR_001492 | Teen-LABS, Adolescent Bariatrics: Assessing Health Benefits and Risks, Teen-Longitudinal Assessment of Bariatric Surgery, Adolescent Bariatrics: Assessing Health Benefits and Risks (Teen-LABS) | 2026-02-17 09:59:40 | 0 | ||||||
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Pediatric Acute Liver Failure Study Resource Report Resource Website |
Pediatric Acute Liver Failure Study (RRID:SCR_001478) | PALF | data or information resource, topical portal, resource, disease-related portal, research forum portal, portal | Study group and network for a 2008 longitudinal study for the etiology, diagnosis, treatment, and outcome of acute liver failure in infants, children, and adolescents. Data from patients include urine, bile, serum, liver tissue, cell lines derived from fibroblast culture, and DNA. | management strategy, infant, child, adolescent, clinical, liver, patient care, rare disease, blood, tissue, longitudinal, urine, bile, serum, liver tissue, cell line, fibroblast culture, dna, etiology, diagnosis, treatment, outcome |
is listed by: NIDDK Information Network (dkNET) is related to: Acute Liver Failure Study Group has parent organization: University of Pittsburgh; Pennsylvania; USA |
Acute liver failure | NIDDK U01DK072146 | Free, Freely available | nlx_152715 | http://www.palfstudy.org/ | SCR_001478 | Pediatric Acute Liver Failure (PALF) Study, Pediatric Acute Liver Failure (PALF) Study Group | 2026-02-17 09:59:40 | 0 | ||||
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HALT-C Trial Resource Report Resource Website |
HALT-C Trial (RRID:SCR_001534) | HALT-C Trial, HALT-C | clinical trial, resource, data or information resource, bibliography | Multi-center, randomized controlled study designed to determine if continuing interferon long term over several years will suppress the Hepatitis C virus, prevent progression to cirrhosis, prevent liver cancer and reduce the need for liver transplantation. Patient enrollment began in 2000 and was completed in 2003 at 10 clinical centers, which were supported by a data coordinating center, virological testing center, and central sample repository. Patients with chronic hepatitis C and advanced fibrosis or cirrhosis on liver biopsy who failed to respond to a previous course of interferon alfa were enrolled in this study. Patients were initially treated with a 24-week course of peginterferon alfa-2a and ribavirin. Patients who remained hepatitis C virus RNA positive were then randomized to receive maintenance, low-dose peginterferon or to be followed on no treatment. Liver biopsies were done before enrollment and after 2 and 4 years of treatment or follow-up. The endpoints were development of cirrhosis, hepatic decompensation, hepatocellular carcinoma, death, or liver transplantation. 1050 patients were randomized and followed through the 4 year randomized phase of the trial and as long as 4 years off treatment. Serum samples collected at multiple time points, DNA and liver tissue are available for scientific investigation. | interferon, progression, cirrhosis, prevention, liver cancer, liver transplantation, liver, pegylated interferon, clinical, outcome, adult human, dna, liver tissue, serum, blood, b lymphoblastoid cell-line, epstein-barr virus infection in peripheral blood mononuclear cell, peripheral blood mononuclear cell, biomaterial supply resource, formalin fixed, histology, frozen, stained liver slide, unstained liver slide, advanced fibrosis, liver biopsy, peginterferon alfa-2a, ribavirin |
is listed by: One Mind Biospecimen Bank Listing is listed by: ClinicalTrials.gov is listed by: NIDDK Central Repository is listed by: NIDDK Research Resources is listed by: NIDDK Information Network (dkNET) |
Hepatitis C virus, Chronic hepatitis C | NIDDK | Free, Freely available | nlx_152835 | http://archives.niddk.nih.gov/haltctrial/displaypage.aspx?pagename=haltctrial/index.htm | http://www.haltctrial.org/ | SCR_001534 | Hepatitis C Antiviral Long-term Treatment against Cirrhosis, Hepatitis C Antiviral Long-term Treatment against Cirrhosis (HALT-C) Trial, Hepatitis C Antiviral Long-term Treatment against Cirrhosis Trial | 2026-02-17 09:59:38 | 0 | |||
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dbMHC Resource Report Resource Website 10+ mentions |
dbMHC (RRID:SCR_002302) | dbMHC | storage service resource, data or information resource, database, service resource, data repository | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on August 23, 2019 Database was open, publicly accessible platform for DNA and clinical data related to human Major Histocompatibility Complex (MHC). Data from IHWG workshops were provided as well., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | human leukocyte antigen, microsatellite, dna, clinical, major histocompatibility complex, primer, probe, sequence, allele, haplotype, sequence, histocompatibility, leucocyte, alignment |
is listed by: re3data.org is related to: NIDDK Information Network (dkNET) is related to: IMGT/HLA has parent organization: NCBI |
PMID:14705985 | Free, Available for download, Freely available | nif-0000-02729, r3d100010881 | https://doi.org/10.17616/R37W4F | http://www.ncbi.nlm.nih.gov/gv/mhc/main.cgi?cmd=init | SCR_002302 | Major Histocompatibility Complex Database | 2026-02-17 09:59:50 | 22 | ||||
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Clinical and Laboratory Standards Institute Resource Report Resource Website 100+ mentions |
Clinical and Laboratory Standards Institute (RRID:SCR_002382) | CLSI | data or information resource, narrative resource, standard specification, knowledge environment | A not-for-profit membership organization that brings together the global laboratory community to foster excellence in laboratory medicine by facilitating the development of clinical laboratory testing standards based on input from and consensus among industry, government, and health care professionals. CLSI is setting the standard for quality in clinical laboratory testing around the world. | clinical, laboratory testing, quality, clinical laboratory testing standard, laboratory, testing | is listed by: OMICtools | Membership fee | OMICS_01777 | SCR_002382 | 2026-02-17 09:59:55 | 129 | ||||||||
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Brain and Body Donation Program Resource Report Resource Website 100+ mentions |
Brain and Body Donation Program (RRID:SCR_004822) | BBDP | biomaterial supply resource, tissue bank, brain bank, material resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 11, 2023. An autopsy-based, research-devoted brain bank, biobank and biospecimen bank that derives its human donors from the Arizona Study of Aging and Neurodegenerative Disease (AZSAND), a longitudinal clinicopathological study of the health and diseases of elderly volunteers living in Maricopa county and metropolitan Phoenix, Arizona. Their function is studied during life and their organs and tissue after death. To date, they have concentrated their studies on Alzheimer's disease, Parkinson's disease, heart disease and cancer. They share the banked tissue, biomaterials and biospecimens with qualified researchers worldwide. Registrants with suitable scientific credentials will be allowed access to a database of available tissue linked to relevant clinical information, and will allow tissue requests to be initiated., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | brain, late adult human, autopsy, mini mental state examination, neuropathological data, medical history, organ, tissue, brain, blood serum, cerebral spinal fluid, clinical, FASEB list |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Banner Sun Health Research Institute |
Aging, Age-related disease, Alzheimer's disease, Parkinson's disease, Arthritis, Prostate cancer, Neurodegenerative disease, Cancer, Progressive supranuclear palsy, Hippocampal sclerosis, Vascular dementia, Dementia with Lewy bodies, Multiple system atrophy, Motor neuron disease, Frontotemporal lobar dementia, Corticobasal degeneration, Dementia, Cerebrovascular disease, Atherosclerosis, Renal hypertensive disease, Fatty liver, Type II diabetes | Michael J. Fox Foundation for Parkinson's Research ; Sun Health Foundation |
PMID:25619230 PMID:33143239 |
THIS RESOURCE IS NO LONGER IN SERVICE | nlx_80798 | http://www.bannerhealth.com/Research/Research+Institutes/Banner+Sun+Health+Research+Institute/Research/Research+Programs/Brain+and+Body+Donation/Brain+and+Tissue+Bank.htm | http://www.bannerhealth.com/Research/Research+Institutes/Banner+Sun+Health+Research+Institute/Ways+to+Give/Brain+and+Tissue/_Brain+and+Tissue.htm, http://www.bannerhealth.com/Research/Research+Institutes/Banner+Sun+Health+Research+Institute/Research/Research+Programs/Brain+and+Tissue/_Brain+and+Tissue.htm | SCR_004822 | Banner Sun Health Research Institute Brain and Tissue Bank, Banner Health Brain and Tissue Bank, Brain / Body Donation Program, Banner Brain and Tissue Bank, Banner Sun Health Research Institute Brain and Body Donation Program, Brain/Body Donation Program | 2026-02-17 10:00:41 | 121 | ||
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TRACK TBI Network Resource Report Resource Website |
TRACK TBI Network (RRID:SCR_004723) | TRACK TBI Network | data or information resource, narrative resource, standard specification, knowledge environment | Network evaluating consensus-based common data elements (CDE) for traumatic brain injury (TBI) and psychological health (TBI-CDE, www.commondataelements.ninds.nih.gov/TBI.aspx) while extensively phenotyping a cohort of TBI patients across the injury spectrum from concussion to coma. Institutions that participate in the TBI Network will be able to track the outcomes of patients through a 3, 6 and 12-month followup program and compare outcomes with other participating institutions. For the three acute care centers, patients were enrolled that presented to the emergency department within 24 hours of head injury and required computed tomography (CT). For the rehabilitation center, referrals from acute hospitals were enrolled. Patients were consented to participate in components: clinical profile; blood draws for measurement of proteomic and genomic markers; 3T MRI within 2 weeks; three-month Glasgow Outcome Scale-Extended (GOS-E); and six-month TBI-CDE Core outcome assessments. A web-enabled database, imaging repository, and biospecimen bank was developed using the TBI-CDE recommendations. A total of 605 patients were enrolled. Of these subjects, 88% had a GCS 13-15, 5% had a GCS 9-12, and 7% had a GCS of 8 or less. Three-month GOS-E''s were obtained for 78% of the patients. Comprehensive 6-month outcome measures, including PTSD assessment, are ongoing until September 2011. Blood specimens were collected from 450 patients. Initial CTs for 605 patients and 235 patients with 3T MRI studies were transferred to an imaging repository. The TRACK TBI Network will provide qualified institutions access to a web-based version of key forms in tracking TBI outcomes for Quality Improvement and institutional benchmarking. | traumatic brain injury, concussion, coma, psychological health, common data element, head injury, mri, computed tomography, post-traumatic stress disorder, clinical, neuroimage, genomic, proteomic, outcome data, clinical data, marker, blood, glasgow outcome scale-extended, one mind tbi, one mind ptsd, image, image collection, benchmark, biomaterial supply resource, database, outcome | is listed by: One Mind Biospecimen Bank Listing | Traumatic brain injury | NINDS ; NIDRR ; Defense and Veterans Brain Injury Center ; Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury |
Access to a web-based version of key forms is available to qualified institutions. | nlx_143882 | http://www.tracktbi.net/tracktbi/ | SCR_004723 | Traumatic Brain Injury Network, Transforming Research and Clinical Knowledge in Traumatic Brain Injury Network, TBI Network, Transforming Research and Clinical Knowledge in Traumatic Brain Injury: Multicenter Implementation of the TBI Common Data Elements | 2026-02-17 10:00:40 | 0 | ||||
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DermAtlas. Resource Report Resource Website 1+ mentions |
DermAtlas. (RRID:SCR_004977) | DermAtlas | storage service resource, data or information resource, database, service resource, image, data repository | Database of dermatology cases and browsable by diagnosis, category or body site with 12,176 images, 583 contributors and dermatology links. You may retrieve images using any diagnosis, disease category, body site, pigmentation, image contributor, patient age, image name, and/or key words. You are welcome submit images or to download images for lectures and other teaching purposes - or with permission for other uses. Additionally, you may search DermAtlas from your website. Add YOUR Link On the DermAtlas'''' Add a Link Page you can associate your link with as many diagnoses as you like. Case submission If you have a high quality image that you would like to submit to DermAtlas, submit the requested information, and upload the image. The data and image will automatically be sent to the editors for review. You will be notified within one week of submission of images. In order for an image to be considered for inclusion into this collection, consent must be obtained from the patient or his/her legal guardian. Contributors are solely responsible for obtaining consent. | source code, continuing medical education, dermatology, skin, disease, skin lesion, clinical |
is related to: MeSH has parent organization: Johns Hopkins University School of Medicine; Baltimore, Maryland; USA |
Dermatological condition | PMID:15360820 | May download images for lectures and other teaching purposes - or with permission for other uses. | nlx_93671 | http://www.dermatlas.org/ | SCR_004977 | Dermatology Image Atlas | 2026-02-17 10:00:42 | 2 | ||||
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Competence Network Heart Failure Resource Report Resource Website |
Competence Network Heart Failure (RRID:SCR_004979) | CNHF | data or information resource, topical portal, portal, community building portal | Association of physicians, scientists, academics, research institutes and self-help groups that provides and nurtures interdisciplinary cooperation between research and primary, secondary and tertiary health care. Many internationally renowned heart failure researchers and working groups live and work in Germany. Nevertheless, there is insufficient cooperation of the respective working groups and research projects in this area. In order to remain internationally competitive in the heart failure research community, excellent implementation of large scale clinical and genetic trials is indispensable. Further, deficits in the effective presentation and transfer of research findings into clinical practice need to be addressed. An adequate translation of guidelines into practical, tangible instructions can facilitate clinical practice both in primary and tertiary care fundamentally. The need for action to address the research-practice-gap is obvious. | heart failure, cardiology, clinical, genetic, genetic trial, clinical trial | is parent organization of: Central Biomaterial Bank - German Heart Failure Network | German Federal Ministry of Research and Education | nlx_143991 | http://www.knhi.de/en/Network/index.jsp | SCR_004979 | German Competence Network Heart Failure | 2026-02-17 10:00:26 | 0 | ||||||
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Ivy Glioblastoma Atlas Project Resource Report Resource Website 100+ mentions |
Ivy Glioblastoma Atlas Project (RRID:SCR_005044) | Ivy GAP | data or information resource, image collection, database, atlas | Platform for exploring the anatomic and genetic basis of glioblastoma at the cellular and molecular levels that includes two interactive databases linked together by de-identified tumor specimen numbers to facilitate comparisons across data modalities: * The open public image database, here, providing in situ hybridization data mapping gene expression across the anatomic structures inherent in glioblastoma, as well as associated histological data suitable for neuropathological examination * A companion database (Ivy GAP Clinical and Genomic Database) offering detailed clinical, genomic, and expression array data sets that are designed to elucidate the pathways involved in glioblastoma development and progression. This database requires registration for access. The hope is that researchers all over the world will mine these data and identify trends, correlations, and interesting leads for further studies with significant translational and clinical outcomes. The Ivy Glioblastoma Atlas Project is a collaborative partnership between the Ben and Catherine Ivy Foundation, the Allen Institute for Brain Science and the Ben and Catherine Ivy Center for Advanced Brain Tumor Treatment. | glioblastoma, in situ hybridization, hematoxylin and eosin stain, brain, tumor, gene expression, anatomic structure, histology, clinical, genomic, expression array, gene, FASEB list | has parent organization: Allen Institute for Brain Science | Brain cancer, Cancer | Ben and Catherine Ivy Foundation | nlx_99161 | SCR_005044 | 2026-02-17 10:00:46 | 126 | |||||||
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Florida Alzheimer's Disease Research Center Resource Report Resource Website |
Florida Alzheimer's Disease Research Center (RRID:SCR_004940) | FADRC | data or information resource, topical portal, portal, disease-related portal | A statewide consortium dedicated to Alzheimer's disease research to better understand the disease and related memory disorders. It includes Alzheimer's researchers and clinicians from institutions across Florida such as USF Health, Mayo Clinic Jacksonville, and Mount Sinai Medical Center. The purpose of the ADRC is to assist institutions in developing an infrastructure (cores) that can be used for various research projects with the goal of better understanding Alzheimer's disease and related disorders. The Florida ADRC is comprised of six cores, three projects and three pilot projects among other collaborations that utilize these cores. | disease related portal, alzheimer's disease, memory disorder, dementia, clinical, late adult human |
is related to: Alzheimers Disease Genetics Consortium has parent organization: University of South Florida; Florida; USA is parent organization of: Mayo Clinic Jacksonville: Neuropathology and Microscopy |
Alzheimer's disease, Memory disorder, Dementia, Mild cognitive impairment | NIA RFA-AG-04-011 | Contact the core ADRC Administrator to use Florida ADRC cores | nlx_143954 | SCR_004940 | Florida ADRC, Florida Alzheimer's Disease Research Center | 2026-02-17 10:00:51 | 0 | |||||
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BioPortfolio Resource Report Resource Website 1+ mentions |
BioPortfolio (RRID:SCR_005230) | BioPortfolio | narrative resource, job resource, blog, data or information resource, database, portal | BioPortfolio is a leading news, information and knowledge resource covering the global life science industries impacted on by biotechnology. The site aims to provide the lay person, the researcher and the management executive with a single location to source core information on specific bio-related topics, to collate relevant data associated with each topic and to point the user to relevant knowledge resources. We publish up to the minute news (see biotechnology news categories) and regularly update content across our information databases. BioPortfolio promotes and sells market research and management reports from 30+ publishers. In addition our unique corporate database lists 40,000+ companies and organizations. BioPortfolio aims to bring together high quality information about marketed drugs - medication and relevant clinical trials, research papers and recent news from PubMed, ClinicalTrials.gov, and DailyMed. Additionally, resources include biotech, pharma and medical job listings. When the BioPortfolio site was launched in February 1997 the company aimed to provide a global free-to-use resource with defined aims and mission statement: to meet the increasing demand of consumers, scientists, investors, commerce and government for timely, accurate and commercially useful information and intelligence on biotechnology companies, technologies and products world-wide. Driven by the success of the site we have made major investments and improvements to enhance our content and to apply the latest web technologies to improve functionality and site utility. We believe this unique depth and breadth of content is supporting individuals, organizations and policy-makers to become more aware of the role of biotechnology on the global economy. With 97,000 users visiting the site more than once per month we are confident that we are providing information our users need. We hope you the users find the site of value for both personal and professional reasons. Please enjoy this free resource and email your comments! | news, information, knowledge, life science, biotechnology, pubmed, corporate, clinical trial, drug, career, pharmaceutical, healthcare, medicine, clinical, industry |
is used by: NIF Data Federation is used by: Integrated Blogs |
For personal non-commercial use only | nlx_144235 | SCR_005230 | 2026-02-17 10:00:44 | 1 | ||||||||
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CTSAconnect Resource Report Resource Website |
CTSAconnect (RRID:SCR_005225) | CTSAconnect | narrative resource, ontology, data or information resource, controlled vocabulary, source code, software resource, service resource, standard specification, knowledge environment | THIS RESOURCE IS NO LONGER IS SERVICE. Documented on December 5th, 2022. Semantic framework to integrate information about research activities, clinical activities, and scientific resources to facilitate the production and consumption of Linked Open Data about investigators, physicians, biomedical research resources, services, and clinical activities. The goal is to enable software to consume data from multiple sources and allow the broadest possible representation of researchers'''' and clinicians'''' activities and research products. Current research tracking and networking systems rely largely on publications, but clinical encounters, reagents, techniques, specimens, model organisms, etc., are equally valuable for representing expertise. CTSAConnect will provide linkage between semantic representations of a wide range of clinical and research data using controlled vocabularies mapped to the Unified Medical Language System (UMLS) as a bridge between the two subject areas. The data sources include data from Medicaid, hospital billing systems, CTSAShareCenter, and other CTSA resource data, eagle-i and VIVO. It allows institutions to leverage existing tools and data sources by making the information they contain more discoverable and easier to integrate. For instance, with the ISF, researchers can be characterized by organizational affiliations, grant and project participation, research resources that they have generated, and publications that they have (co)-authored. Clinicians can be characterized by training and credentials, by clinical research topic, and by the kinds of procedures and specialization that can be inferred from encounter data. LOD refers to data that has been given a specific Uniform Resource Identifier (URI), for the purpose of sharing and linking data and information on the Semantic Web. While a large amount of data is published as LOD, there remains a significant gap in the representation of research resources and clinical expertise. Researchers can be characterized by the organization to which they belong, the grants and research in which they have participated, the research topics and research resources (reagents, biospecimens, animal models) they have generated, as well as the publications they have (co)-authored. Clinician profiles on the other hand, can be defined by their credentials, clinical research topics, and the kinds of procedures and specialization that can be inferred from clinical encounter data. They believe that integrating and relating this diversity of information sources and platforms requires addressing the overlap between research resources and the attributes and activities of researchers and clinicians. CTSAconnect aims to promote integration and discovery of research activities, resources, and clinical expertise. To this end, they will publish their ontologies and LOD via their website, which will also illustrate repeatable methods and examples of how to extract, consume, and utilize this valuable new LOD using freely available tools like VIVO, eagle-i, and Google APIs. CTSAconnect is a collaboration between Oregon Health & Science University, Stony Brook University, Cornell University, Harvard University, University at Buffalo, and the University of Florida, and leverages the work of eagle-i (eagle-i.net), VIVO (vivoweb.org), and ShareCenter (ctsasharecenter.org). | data sharing, clinical, research, semantic framework, linked open data, collaborate |
is related to: Eagle I is related to: VIVO is related to: CTSA ShareCenter is related to: Clinical and Translational Science Awards Consortium is related to: CTSA ShareCenter has parent organization: Oregon Health and Science University; Oregon; USA has parent organization: Harvard University; Cambridge; United States |
Booz Allen Hamilton ; National Center for Advancing Translational Sciences |
THIS RESOURCE IS NO LONGER IS SERVICE | nlx_144228 | SCR_005225 | CTSAconnect: A Linked Open Data approach to represent clinical and research expertise activities and resources, CTSA Connect, Clinical and Translational Science Awards Connect | 2026-02-17 10:00:30 | 0 | ||||||
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Cliniques Universitaires Saint-Luc Cancer Centre Resource Report Resource Website |
Cliniques Universitaires Saint-Luc Cancer Centre (RRID:SCR_004922) | Cliniques Universitaires Saint-Luc Cancer Centre | data or information resource, topical portal, portal, training resource | An essential reference center in Europe and a leader in French-speaking Belgium that treats all types of adult and childhood cancer. They fight against cancer while giving patients comprehensive and humane care. Their quest for excellence is in three main academic fields: clinical care, research and teaching. | cancer, adult human, child, clinical, oncology, research, young human | is parent organization of: Saint-Luc Tumour Bank | Cancer | nlx_143961 | http://www.centreducancer.be/en | SCR_004922 | Centre du Cancer Cliniques Universitaires St-Luc, Cliniques Universitaires Saint-Luc Cancer Center | 2026-02-17 10:00:42 | 0 | ||||||
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Genetic Testing Registry Resource Report Resource Website 10+ mentions |
Genetic Testing Registry (RRID:SCR_005565) | GTR | storage service resource, data or information resource, database, service resource, data repository | Central location for voluntary submission of genetic test information by providers including the test''s purpose, methodology, validity, evidence of the test''s usefulness, and laboratory contacts and credentials. GTR aims to advance the public health and research into the genetic basis of health and disease. GTR is accepting registration of clinical tests for Mendelian disorders, complex tests and arrays, and pharmacogenetic tests. These tests may include multiple methods and may include multiple major method categories such as biochemical, cytogenetic, and molecular tests. GTR is not currently accepting registration of tests for somatic disorders, research tests or direct-to-consumer tests. | genetic, gene, clinical, genetic test, condition, phenotype, disease name, trait, drug, protein, analyte, disease, laboratory, molecular, clinical, genetics, people |
lists: MedGen is listed by: OMICtools has parent organization: NCBI |
The community can contribute to this resource | nlx_144654, OMICS_01541 | SCR_005565 | NIH Genetic Testing Registry, GTR: Genetic Testing Registry | 2026-02-17 10:00:55 | 35 |
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